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  1. Hi with all of you, I am new to this forum. I just wanted to share my thoughts after 5 years of having HSV-1 and HSV-2. I would like to say that I appreciate this community and how fantastic is the support offered in this forum. I like the tools and skills that this website offers to cope better with the diagnosis and the condition. However, I would like to share some of my thoughts I have from my perspective. I would say that having it does not affect me. Of course, I get sad when I am rejected, it hurts; but I would say that I deal with it well. Psychologically, I am not going to lie. T
    5 points
  2. Hi Riseandfall, I've been hsv-2 postive for 5 years. I felt like you for 6 months, but you feel like this after 2 and a half years. I can share with you what I did to change it and cope with it: 1. Knowledge. I understood the virus completely well. I read academic papers and watched interviews with Terry Warren and other guy I don't remember the name. They are academics that study the virus for years. It's incredible how doctors don't even know about the virus, just that it is contagious with breakouts and that give you acyvlocir. 2. If I were you, I wouldn't even care about ha
    2 points
  3. I tested positive for both culture and blood draw. My results for the igg blood test were noted as high positive for hsv2 at 7.49 levels. This alarmed me that is is being stated as high and I also did some googling an apparently this may mean it’s chronic. Does this mean I have had it for a very long time and is it necessarily a “bad” thing or something to be worried about? What exactly do the levels represent?
    1 point
  4. Famvir is going to be the next step for me if this gets out of control again. Just makes no sense that for 8 years I was symptom free and then all of a sudden it got crazy. There is a new drug that is coming out for those who don’t respond yo what is out all ready, I forget what its called.
    1 point
  5. @ash128083 there’s got to be a hormonal link! I’ve experienced the most success on famvir without any need to up my dose around my cycle anymore. Hope we’ve both found treatments that work long term!
    1 point
  6. I dont think I ever had those levels checked. For the past 3 months I’ve felt really good down there though. Nothing has changed in my life in terms of stress or diet. I think for me a lot of it is hormonal all of a sudden. My doctor prescribed me more antivirals so the week that I ovulate which is usually when I start having discomfort I can take 2-1g instead of one. I feel like thats made a big difference.
    1 point
  7. Thank you so much for this information, I really appreciate it!!
    1 point
  8. Hello I’m in the same boat as you like we literally have the same story lol. But if it makes you feel any better me and my partner is getting through it. We already been having unprotected sex before HSV showed its ugly head so I’m waiting for him to get tested. I developed insecurities and became depressed. We almost let HSV win, we was letting it get to us bad, but communication is key. If he has it or not, if y’all had love for each other before HSV try not to loose that. And allow you partner to love you. I started pushing mines away because I didn’t want to burden him, but if he’s choosin
    1 point
  9. Hello, I just found out I have herpes. My partner informed me 2 weeks ago that he had herpes and I just got tested and also found out that I am positive for herpes, so I’m new to this and honestly I’m depressed. I want to have another child and I feel like I can’t. I’ve read so much about herpes but it’s scary due to the stigma around herpes. Lucky for me, I am asymptomatic and I have no outbreaks, but that fact that I know I have it still makes me depressed. I joined this website because I feel that I have no one to talk to about the situation. My partner does not want to talk about it becaus
    1 point
  10. Hi and welcome @Mgxoxo! Yes, it's super common to have conflicting test results like that via swab and blood test. This is because it can take up to 3 months for enough antibodies to build up in the bloodstream after an initial herpes infection whereas an outbreak can be directly tested via swab. IgM and IgG tests are notoriously bad at giving false negatives and false positives; Western Blot is the way to go for a definitive answer. Here's a post about herpes tests for more.
    1 point
  11. Yes, this exact scenario happened to me. I tested negative for HSV-2 on a blood draw, and positive on a swab. For reference, blood draw was 2 1/2 weeks after exposure, swab was 3 weeks after exposure. At this point, 8 months out, I might test positive via blood, but, for me, there’s no point in requesting the test.
    1 point
  12. Yes. He can do it, and it is not a obligation to have sores to get tested. He can say: 1. I know that it is a recommendation not to test, but I do want to know it. I am informed that if I want it, I can request it. 2. My partner has it, and I'd like to know my status so we can take decissions about our sex life. 3. If it is sooo odifficult to get a test. Just pay for it on QuestDiagnostic or another lab for it. I think it's like $120. No need to go with a doctor. What I said (haha): "I read about the recommendation, but I am not American! I want to know! I have
    1 point
  13. Yes, ocular herpes is certainly a thing, but it tends to affect folks most before they’ve developed immunity (antibodies) or who have compromised immune systems.
    1 point
  14. I have a question... is it poosible women and men both be assymptomatic? No outbreak at all...or the whole idea of assymptomatic is for men...i don’t really understand this...if there r lots of ppl with assymptomatic hsv1 and hsv2...and cdc does not recommend testing for herpes, then a lot of ppl could be carrier without knowing it and then transmit the virus to the sex partner and then say oops i didn’t know that i’m sorry...is this really fair?
    1 point
  15. Asymptomatic means that the test will be positive but they have no symptoms. Meaning they are a carrier and can still potentially spread it without knowing they even have it (if they're not tested). I am asymptomatic. I only found out I had it because I asked for an STD panel at my OBGYN office and they happened to include HSV. I have been in a relationship with my HSV-negative SO for nearly 2 years now. He knows I am positive, knows the potential risks, and we carry on. He is still negative, and I am still asymptomatic. A negative test means that either you 1. Do not have it. or 2
    1 point
  16. I've has ghsv1 for 2 and a half years now. I'm lucky..I met a wonderful guy shortly after my diagnosis, he was brilliant about it (we started out as friends) and were still together now. But I can't move on. Ghsv1 has no impact on me at all physically. Despite the fact that I have a chronic medical condition and take immune suppressants... but it does mentally. I know it does to lots of us. But I can't control the waves of sadness I feel. I can't get over the sense of mourning something lost. I think the biggest thing I feel is pure shame. Maybe its not justified. But its how I feel and I need
    1 point
  17. Been struggling with depression lately. Not sure if it is caused by having herpes or that herpes just exacerbates it. I know I the past, no doubt it was because I had herpes, but I've been dealing with this for way more than half my life. It made me wonder, how many of us actually die by suicide and it never gets reported.or tracked. Herpes has been put on a shelf, way before COVID, to HIV and cancer and nearly any other disease you can think of. Of course curing HIV and cancer are critical, important. But the mentality from the scientific and medical community imo has been that herp
    1 point
  18. Just want to let you know you’re not alone in your thoughts. I think about this a lot as well- how unfair that HSV viruses aren’t included on standard STI screenings, and how dismissive HSV is as a whole. The thing is, HSV 1, and especially HSV 2, can turn into something more complicated- Mollaret’s Meningitis, which I am now struggling with. It’s not my experience that HSV-2 is a virus that should be shrugged off by the medical community the way it seemingly is.
    1 point
  19. I am no psychologist, but it sounds like you have deep regret. No one can change the past, 2020 hindsight is really a thing. If we all had it, wed all be billionaires. But that's not how the real world works. I struggle with regret everyday over many things, and it's much easier to talk about from the point of view of giving advice than receiving advice, but these are simply hard truths.
    1 point
  20. Hi! I just found out I may have herpes. It started few days ago with a line in my genitalia that was feeling quite sore...then few pimples grew around but nothing serious. Actually the main hurting thing may be that line that I said before. I even thought it was a kind if dermatitis since I'm allergic to such things as toilet paper...But hell its so painful when I try to pee. It's my first outbreak. I just started taking the treatment of acyclovir and hoping it start working fast. I'm tired of feeling like this. Ive been in a relationship with someone for over a year now and never ever had thi
    1 point
  21. Yes, it is possible for an individual to be asymptomatic and have the disease. The initial shock of being diagnosed with the disease can be overwhelming, however it gets easier. Research states outbreaks will become fewer in the years to come. Continue to take the acyclovir. You can take it on a daily basis to minimize outbreaks. Hope this helps!
    1 point
  22. That’s true...everything in life has risk as well as reward...nothing in the world is risk free...i was diagnosed 17 years ago, i got that from the same person who i lost my virginity...he claimed that he did not know, however i still don’t buy that idea, but anyway i haven’t had outbreak for 7 8 years or even more, but after 17 years i’m not to be able to forget all those pain and depression that i went through...but u know we never know what lies ahead of us, maybe one day there will ba a cure for that and we all laugh at all those pains, denial, stigma and rejections...cheers to that day!
    1 point
  23. Yes, about 20% of people in general are asymptomatic and will never have an outbreak. Both men and women. And yes, it's unfortunate that even when you ask to get tested for "everything" that herpes isn't included in that. It does lead to a lot of confusion, ignorance and denial.
    1 point
  24. Like was posted above, there's so much here. And it's hard to see the forest for the trees. This won't effect his military opportunity, relax on that. I'm a former military officer and have had this since I was 16 years old. You also indicated he already had HSV1. If he now has HSV2 also, his health will not get worse. He will be ok. The hardest part about this is disclosing and limiting yourself to those already infected (if you choose that path). He was already in both those situations. The depression sounds like it was already there. That's something that can effect a person's mil
    1 point
  25. Hi All, I'm in a similar situation. I've been positive since 2016. I thought I'd never date again and this led to profound sadness. I did date again, and disclosed when things were getting intimate. He didn't seem to care but there were other issues so I ended up letting him go. Two years later I took a chance and went out with a guy and we hit it off spectacularly! We were so similar you'd think we were raised together, and we had the best fun. After two or three weeks of dating we both wanted to be exclusive. No sex yet, I did disclose. He asked me if I was only contagious w
    1 point
  26. Recently diagnosed and having a hard time after an emotional 4 months of being misdiagnosed. I would love to have someone to talk to about this as it’s been a daily struggle pain wise/emotionally. GHSV1. I’m 28 female in WA state area. Male or Female - no preference. Looking for guidance, some reassurance, and some tips and inspiration to get through this.
    1 point
  27. Everyone is different. I had my first ob 15 years ago, then nothing for well over a decade. Then I start getting them sporadic like 4 times a year for 2-3 years. I just finished a 3 month period of it coming on and off short obs followed by short breaks. I quit a crap job and now I haven't had a twinge in 8 weeks.
    1 point
  28. I get it. I've been there. I am there now, just not as far down as it seems you are or as far down as I've been before. I don't know if you ever get out of it. But when I was lowest, I knew that if I committed suicide that the pain would end. I don't discount that, it would. But everything ends. There is no more life after that. I decided to either do it, or just move on with life. I didn't enjoy life after that, but each morning I thought, well, I could be dead. So, I suppose this is better. I also thought in the back of my mind, I could kill myself at anytime, so moved forward, wo
    1 point
  29. Your symptoms pretty much mirror mine, although mine aren't quite that regular. My outbreaks are always paper cut like lesions in almost always one of three places. My "outbreaks" are so non-herpes like that when I was initially seen by a doctor for the sore she said "I will test you for herpes but this doesn't look like herpes". I will also say I have HSV2. Are you taking daily anti viral medication? I am not and I typically have an outbreak once every three-ish months, sometimes longer sometimes shorter. I am not regularly sexually active so for me personally, I'd rather not pump my body wit
    1 point
  30. Thank you this made me feel so much better ! I totally agree, it shouldn’t be about who’s to blame, in my eyes we are on this journey together in the relationship and need to support each other not try and point the finger! Hopefully he realises this soon 😊 thanks again for the response !
    1 point
  31. Hello, so here goes I started a new relationship about 10 months ,he’s amazing and we connect so well on a whole new level, he’s lovely as well & I’m fully trusting of him and he spends all his free time with me when he isn’t at work ( so I know he hasn’t cheated) Before him I was single for 2 years and when I say single I mean no sex nothing for 2+ years ! Which was purely down to focusing on university and going on dates with people who just never progressed to that level. Before that I had a 2 year relationship and have slept with a total of 6 people ( includin
    1 point
  32. There is definitely a possibility he had it first. You can carry the disease for years without knowing you have it. It makes me mad that he's laying the blame at your feet. I broke up with my partner and dated someone else. 2 weeks after sleeping with my new partner I developed an outbreak. We broke up and I got back together with my ex. Even he, in his situation, is wise enough to realise that we can't fully know where it came from. And actually, does it matter. That's the thing, you've got it, he's got it. Laying blame achieves nothing, which is why myself and my now husband don'
    1 point
  33. Yes!! I have been experiencing the same. It’s affecting my sleep. It’s so horribly annoying. THC edibles help dull the itching/ tingling and pain also helped me sleep a little more in the last couple of days.
    1 point
  34. Hi @SillyBean and welcome! Here are some thoughts on your questions: Full STI checkup: Unfortunately, based on how most clinics operate, even a full STI checkup doesn't include a herpes blood test. Why? Because they figure it's not necessary (I don't agree) since most people in the world have some version of herpes, and a positive diagnosis would make a lot of people unnecessarily scared. So when you get an STI panel, you need to clarify "including herpes." Razor: Impossible that it was transferred this way. Herpes is transmitted via skin-to-skin contact with friction (think
    1 point
  35. Hi! I’ve had this for about 11-12 years. The past 2 years I have been getting HORRIBLE outbreaks despite being on antivirals. I went 8 years of no symptoms or outbreaks on the meds, met a man fell in love and got married. Then 8 months after our wedding I was hit with the worst outbreak of my life. Even when I first contracted this I didn’t even know I had it because it was so mild I thought I had an ingrown hair. I dont get sores anymore just intense discomfort, swelling, itching etc. It happens once a month the day after my period ends for about 4-5 days. I double up on my Valtrex usually an
    1 point
  36. Does anyone have a high stress job while dealing with outbreaks? I'm in graduate school and am wondering if the stress of this has caused my outbreak to last 4+ months. Any tips on destressing under constant high pressure?
    1 point
  37. Any rejection sucks. IMO a rejection over herpes is 100% about the person doing the rejecting and nothing to do with you. I agree with @Little_Curly drop it in before you get the feels. I like @thestiproject on Instagram run by Jenelle Marie Pierce. She also has a new Facebook group. Feel better soon mate. It always hurts to lose someone we think is special ❤️
    1 point
  38. Hey lovelife2020, The ex who gave me herpes also denied it and refused to get tested. I stayed with him for 10 months after I was diagnosed (even though I knew he was not right for me) because I thought I was ruined and no one would love me. Finally, I decided that being alone was better than being with him. I am proud of you for ending things with your ex. Something I look for in a partner (or actually, expect in a partner) is the ability to own up to - what ever it might be. Which is part of being a mature adult. It took me a long time to accept myself. Lots of trial and error. Man
    1 point
  39. Kacey, I’m sorry that happened to you, that the way you got herpes was done to you with force ... Fuck that guy, for real. But don’t let your anger at that guy ruin your chance of a trusting connection with the next guy. Some guys deserve to be trusted and will honor your vulnerability as a strength. The question becomes: Who do you trust with your vulnerability? That is a big and important question, for sure. Especially since you haven’t been treated right in the past. And it’s really important to see how you are saying two conflicting things here: have soul-to-soul connected sex, but do
    1 point
  40. I went to the doctor a few days ago. I am always sad about the way i contracted herpes because it was forcefully done and i am always afraid to disclose. I spoke to my doc and he told me that " did you know when the men come and hear about this, they treat it like its nothing, its always the females who overly anxious and worried" looking back i realise that the predator have had several gfs after me and some must have been aware of the herpes status" ARE WE SELF DEFEATING OURSELVES? ITS JUST A VIRUS THAT CAUSES RASH OR SORES AND IT HEALS IF WE TAKE CAEE OF OUR HEALTH
    1 point
  41. When I was first diagnosed (via blood test, I've never had an OB that I'm aware of in over 11 years), I told the guy that I was talking to...we'd had 1 date at that point and happened to have been texting when I found out the results. He immediately rejected me. I was upset. And then I took a few months to just be, and then decided to get back out there...and met my SO. I disclosed to him on our first date and he immediately Accepted me. We've been together about a year and a half now and things are still great! A couple months after my SO and I started dating, the first guy decided that
    1 point
  42. So most of us can tell when an OB is about to come on & it usually starts with itching. Well, I already had a double wammy outbreak 3 weeks ago & REFUSED to tolerate another OB. This is what I did to basically stop one from forming: I stopped eating sugary items (I was splurging daily on desserts), started taking my 1000mg L-lysine Tablets daily (normally it’s every few days), APPLIED undiluted TEA TREE OIL on the itchy spot daily (3 days total, itching stopped on day 2), & blow dried the area after every shower & did my usual commando (no panties). This is day 5 and there is n
    1 point
  43. I can relate. I thought I had herpes for a year. I am so thankful for this site and the support of Adrial and my sister convincing me to get tested.I think everyone should get tested and know their std status.
    1 point
  44. It's refreshing to see a celebrity speaking truth about the absurdity of herpes stigma in our culture (his herpes rant starts at 9:10). He says he was trapped in a "mental prison" for months thinking he might have herpes or some other STI. Turns out his test results came back negative, but the mindfuck affected him enough that he goes on a 3-minute long rampage about how herpes is just blown too far out of proportion in our society. He unfortunately still uses the "clean" label to describe himself (clean/dirty are still stigmatizing labels), but hey, overall this is a solid
    1 point
  45. I've read you should wait 7 days after the sores heal, others a few days, and others as soon as the sores heal. I've also read asymptomatic shedding occurs during this time. Any thoughts?
    1 point
  46. My wife and I have been together over 4 years, decided together to not use protection, only suppressive therapy (twice daily acyclovir) and haven’t passed herpes to her yet. But we did get her pregnant! Hence this cute lil boy we have. 😉
    1 point
  47. Hi all! So happy to have found this forum. I am very confused right now. About nine years ago I came down with a UTI that turned into a bladder and kidney infection. I was so sick for about three weeks and during that time I also developed a sore on my inner labia. When I went to my gynecologist she Did a swab test on it. A couple of days later she called me and said that I tested positive for herpes. She didn’t say if it was one or two and at the time I didn’t think to ask. I did a couple of courses of Valtrex back then but that was it. I take about 1000 mg of L-Lysine a day and just try to
    1 point
  48. HSV1 can be spread to any open wound. Hsv2 tends to not like living in the oral cavity but can. Misinformation and the taboo aspect leaves this a very misunderstood virus.
    1 point
  49. I havent diclosed to anyone yet...30 years old and just found out i had H2 + two months ago, blood test say i was a carrier for a while but never had an outbreak till then...a flu, a hung over and 2 days of intense separfishing at 60 feet deep dives welcome my fist outbreak. Herpes never crossed my mind as a risk, i was totaly unaware of the virus and how it works, no doctor ever suggested to get tested and school doesnt teach it ... My body feels fine now and i have sexual desire again, but that desire goes a little deeper than before now, i guess im a hopless fool LOL. Havent seen anyon
    1 point
  50. Headaches, backaches, stomachaches, yeast or other types of infections, pimples -- these are all code for "I'm tired! Stop beating me up! Get some sleep, put down that third appletini and leave your work at work! If you keep going on like this, I will really break and you will not be able to move!" Hm... was genital HSV diagnosis a 'yield' sign?
    1 point
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