Lily,
I am terribly sorry about the pain and the intolerance towards yourself that this diagnosis has brought onto you. A few thoughts:
- your first break-out is your worst. Hence the flu-like symptoms and the severity. I remember my first break-out. A cluster of red bumps on my mound, tingling, SUPER itchy. I remember crying so much when it appeared because I knew what it was. The good news is that as I said, your initial break-out always is the worst.
- It is an ugly shock when you first realize you have it. There is a terrible stigma attached to it. In truth, quite a lot of people have at least one form of herpes. People think 'cold sores' aren't anything, and I notice that when I say 'cold sores', people don't seem bothered, but if I use the other word, 'herpes', then people are alarmed. It's like most people don't realize it's the same thing.
- Speaking of people not realizing what it is, I think it looks different on some people, but when I get a break-out, it is usually a bump or two close by my lips and honestly all they look like are ugly white headed zits. People who are not schooled in STDs, healthcare, etc usually do not know (at least in my experience) that it is anything other than pimples.
- I thought that dating and even having casual sex would be over for me after I got herpes. Not true. I remember being in the hospital and a nurse approached me and said 'I don't mind to intrude, but, your chart says you're very depressed and feel hopeless because you have herpes. I have herpes too and I am happily married with children." It is VERY possible for you to live your normal life even with herpes. It is VERY possible for you to find your true love with herpes. It is VERY possible to be with someone you love and to avoid giving it to them altogether. I've disclosed to potential sex partners, I had 3 of them since I got diagnosed, and with medication and precautions (being aware of my symptoms aka predomes) none of them have had any issues.
- The way that I handle disclosure is I do not tell anyone unless we are going to have some sort of sexual relationships or even just a hook-up. If I am looking to date, I like to get to know people more, and then if it seems like we are headed towards a sexual thing then I say 'I wanted you to be aware that I get cold sores sometimes but I am mostly contagious if I have a sore and I have none right now.' And usually they respond alright and ask more questions. So the best thing you can do is educate yourself as much as possible on the infection so you can be prepared with answers.
- I have had a couple of neutral responses to me having herpes (I wouldn't say negative because the people weren't cruel about it). Both were young (they were about 21, I am 26) and both just didn't want to have intercourse after finding out. This, of course, is their choice and yes it sucked at first but I also see it as it must not be meant to be for me to be with those people.
- Hepes is annoying, but, it is not the worst thing in the world. It doesn't lead to cancer like HPV or kill you like HIV. I'd say the hardest parts for me having herpes (other than itchiness when I break out) is the jokes people make about herpes. I used to make jokes like that all the time and not realize how hurtful they were or how COMMON herpes was. It used to hurt my feelings but now I chalk it up to people being ignorant....because most ARE ignorant when it comes to the truth about herpes.
I hope I gave you some sort of insight or hope, because I understand that the diagnosis and the stigma can make a person feel awful about themselves but none of us deserve to feel dirty or shamed because we aren't dirty at all.