Thisismeuk

Thank you for your reply it's much appreciated. I'm feeling so down with this, it's been 8 months of my life on hold it feels like. Plus I keep beating myself up because I can't have sex in what feels like forever. I've had to give up so many of my hobbies because they irritate so badly. I've hsv 1 which I read is meant to be the 'easier' one to deal with. Ha! My symptoms range from stabbing to itching, burning, prickliness, redness, swelling and a sciatic type pains all down my leg almost to my feet. Did you get all that too or just tingling? I'm finding the most difficult part is not being honest with people, I've shut myself away from as embarrassed to explain why I can't go out for a night drinking anymore as I was known as a person to get stuck in and party. Also would normally get on a bike for 20 plus miles on a weekend and I obviously can't do that. I also horseride and that's causing it to aggravate too. I feel so cross with the specialist who describes it as a childhood illness that not really any cause for concern, really? Sorry I'm probably coming across as all whingey and moaney but struggling to keep things in perspective atm.

Apparently not 😢

I was diagnosed in September last year and outbreak was week long, then after 2 weeks had the most horrendous nerve pains 24/7 gp didn't know what was wrong and ended up seeing a specialist who diagnosed extreme nerve damage, took til end of January to repair. Had February as a normal individual and started to put my life back together. Have now had nerve pain again as in prodrome since first week of March and had 5 outbreaks almost back to back one after the other alongside of constant sore throat and headaches. I'm now outbreak free by a week but prodrome still present as is heat, inflammation and nerve pain. I'm normally extremely healthy and don't even suffer colds. I've now even broken out in pettechiae all over my body just to add to things. Hard to explain tbh but it's really affecting me mentally now and putting such a strain on my relationship (still with guy I caught it from) as we haven't had sex for nearly three months. Tried once and was too painful then had vaginal ob. I've been started on antidepressants which I'm absolutely gutted about but don't know where else to turn and aciclovir not helped either. Can anyone give hope that this will end? It's affecting so many areas of my life due to my nornally very active lifestyle and I can accept having it if I could only get on with my life normally but so many things trigger symptoms to worsen even wearing the wrong undwear to the gym.

Thanks for reading and replying. I don't think I want to read an outbreak a week, that's not good either, but glad you're not in pain. I need a light at the end of the tunnel. I'm already supplementing 3000mg lysine and eating clean. Plus taking alot of immune boosting supplements so am very frustrated that nothing is alleviating symptoms. I have a phone appointment with my GP later today so will see what she has to say.

Hi, I was diagnosed with type 1 almost 9 weeks ago and had apparently a very severe case. I had to take 6 lots of aciclover per day, I then went back to the clinic and symptoms hadn't cleared up so was given another short course of aciclovir. Symptoms remained and I had another outbreak and was put on another short course of aciclovir. They went away. A few days later and I booked to see the GP as symptoms were horrendous and keeping me awake all night and I was put on one month's suppressive aciclover. I am in week 3 and I have had 2 outbreaks and the last OB cleared on Saturday /Sunday. I am having horrendous burning pains down there and a fever, leg pain etc.. But no blisters. When I received my diagnosis I was told not to worry it won't rule my life and its not debilitating but it is for me. I am unable to maintain my activity levels. If I ride a bike it makes symptoms alot worse. I am a fit and normally active and healthy person, my BF (who gave it to me) have had sex only twice in the last 2 months and now I am too scared to have sex anyway. Its putting a huge strain on my work life, my personal life and I am feeling desperate now. I was relieved when I found it was 1 and not 2 as supposedly it doesn't reappear as bad but that hasn't been the case for me, this hasn't gone away since I contracted the virus. Has anyone else been in this position and can you offer any advice? I am trying to take all the correct supplements and eat well etc but am seeing no benefit. Thanks for reading