Balletdancer23

@Ohhey143Yes, it’s a free messaging app, you just create a user name and don’t need a phone number or anything. Figured it’s easier to message each other helpful tips, or vent on bad days and just help each other through this.

Thanks @Healingneeded, @Ohhey143, @Jenn88 it truly is difficult navigating through life with this. We can look so normal on the outside, but inside so much turmoil, mental and emotionally draining, which doesn’t even help the condition. Do any of you have kik messaging

New to this forum, wondering if anyone would be willing to stay in touch and help each other cope, share everyday life struggles, suggestions etc, through direct messaging. I use an app called Kik to stay in touch with friends, but it’s not the same and it will never be, because they do not have a clue what I face on a daily basis. I have been facing this for about seven years now, and there are so many things that I know now that I wish I would have known back then. The one thing I’ve learned is that the antiviral works best if you are also taking supplements to boost your immune system. I found this out years later, after long OB periods with little to no relief. Also, the most helpful topical relief I’ve found are essential oils. Still struggle with diet, and that is one of my greatest challenges.

New to this forum, but yeah the only thing I’ve found to be helpful is essential oils. A combination of tea tree, lavender, and peppermint. I’ve read about other oils that might be helpful as well like Melissa oil, echinacea and calendula. I have yet to try these, but I intend on purchasing some very soon. Currently dealing with really stressful situation and it’s not helping at all in my situation either. Hope you find some relief soon.