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vihsv1

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vihsv1 last won the day on December 26 2018

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  1. I can relate! I got diagnosed in October and since then have been through a roller coaster of BV, yeast infections, and now this new symptom that causes the skin on my vulva to be dry and split open which is incredibly uncomfortable and I’ve been to a series of doctors (none of which provide much useful info) and have no idea what to do next. I do take valeted every day, and took an increased dose when this came up at first but it didn’t help the symptom. It’s like I’ve got a vertical fissure right above the clitoral hood that will not heal. It splits open if I squat down sometimes. It’s awful.
  2. @sweetlove884 that’s one of the hurdles I’m trying to jump right now. I love to give oral, and the one time I tried to do it with a condom my partner said there’s “no point” as he can’t feel it. Now, I am the one with HSV1, HOWEVER. I am not 100% sure on whether or not I have it in my mouth or just on the ladybits. I have no idea how to be tested for it orally as I am no longer having outbreaks of any kind. I had captain symptoms orally along with my first outbreak but my doctor told me they were most likely stress related rather than herpes related. Kind of at a roadblock because I really want to do the thing but am very paranoid.
  3. I am currently on Valtrex, yes. 500mg/day but going to talk to my doctor about lessening my dose. I feel it is a responsible choice to be on the suppressants in order to protect my partner.
  4. @TequilaGirl yeah he is H- (as far as we know). He got the blood test a few weeks ago but it still could be too soon to get an accurate reading?? (I’m not 100% on the details of all that) I disclosed after two bottles of wine and things were progressing (as they do) and pumped the brakes and straight up told him. “Look, this is all new to me and it’s really hard for me to find the words to tell you because I’m all honesty I’m just coming to terms with it myself, BUT, I recently got diagnosed with herpes.” On the topic of crying, well.... I blame (first) the wine, then I truly think it was a shock to my system saying it for the first time to a potential partner, as well as overcoming the shame and stigma I had in MY OWN MIND about herpes. That was huge. He was...obviously a little taken aback by all the dramatics of my epic reveal. But immediately turned it around and brought me off my ledge. He had questions, and due to the weeks of intensive research, I had most of the answers. I stayed at his house that night thinking in the morning he’d be totally grossed out by me and ship me off back home and never speak to me again. But he proved me wrong and I couldn’t be happier about it. My first outbreak lasted over a month. The “rash” itself didn’t last the whole time but I also had other symptoms to deal with that kept me super stressed out and paranoid and all that so he and I didn’t have sex until after asking to make it official. That’s the part that blew my mind. That someone who had NEVER EVEN SEEN ME FULLY NAKED AND KNEW I HAD THIS VIRUS still wanted me to be his girl. That played a huge role in my path to acceptance of this god-forbidden virus. You’re just as badass and wonderful as you were before. I know I got incredibly lucky meeting this guy, and I dodged many a bullet by meeting him quickly after diagnosis and not having to filter through the assholes (we all know they’re out there) that would write me off at the first mentioning of herpes. HOWEVER! As most people will tell you, if someone kicks you to the curb over you being INFORMED AND RESPONSIBLE about your condition, then seriously... you’re better off without that jerk anyways.
  5. @TequilaGirl honestly, I started seeing my now boyfriend DURING my first outbreak. I was single and online dating for the first time in my life, burdened by some irresponsible and shady asshole (I suspect, at least) and diagnosed. I was feeling absolutely horrible about myself but was torn between feeling sorry for myself or just trying to move on with my life. So heck, I went on a date. A few weeks later, events turned into a situation where I felt it was necessary to disclose my diagnosis. It was tough. I cried, a lot, I felt so gross and had so much guilt. He was confused, and had a lot of questions. But he kept hanging out with me. Now, only a few months later, he calls me his girlfriend, and we have regular (protected) sex. To my surprise, he seems to worry FAR leas about my condition than I do. I realized that I was judging myself more than he ever would. There is hope for us!! Try not to be so hard on yourself. Live freely, but take the necessary precautions of course.
  6. What side effects did you experience?? I’m trying to figure out what symptoms are from HSV and which are from the antiviral.
  7. To “seeingclearly”... did you use protection when you suspect he became infected? I fear too that since my diagnosis, sex may be a trigger. Which would zap the life out of me
  8. Hi! I hear you loud and clear. I have all of these feelings as well. Since being diagnosed I feel like a part of my freedom has been ripped away. I’ve also ALWAYS been so cautious with my encounters, just happened to have an unfortunate situation land me with this life sentence of a virus. I was diagnosed just over a month ago, actually... a month exactly to the day. And am terrified of letting anyone near me yet. I miss being a sexual person. I know a month doesn’t seem like much, but up until a week ago I was scared to even masturbate for fear of it causing an outbreak. Is that a thing?? I love vibrators, but fear that it will stimulate the nerves so much that I’ll get an outbreak as my initial one had sores around my clitoris. (Brutal) anyhow, you’re not alone. Hopefully we can find out how to maintain our sexual prowess amid all of this herpes bullshit. Much love.
  9. Hi all, I was diagnosed with GHSV1 on October 14th of this year. Although it is not totally relevant as to how I got it, I feel like my story is worth sharing as I feel some people may have thoughts on it. Anyhow, I was with a guy who didn’t present with symptoms (that I knew of) and we had had intercourse three times (twice with a condom, once with one that was broken). See, this is where things get interesting. I am convinced that this guy intentionally RIPPED the condom. He claims that he was “adjusting” it and that it “may have” broke at that time. I was reminded of all of this when I found the broken piece of condom in my sheets the next day. And my heart sank. Within two days of this encounter, I experienced very runny discharge, and noticed it smelled a bit different... so I thought oh I might just have a yeast infection, and went about the normal procedures of dealing with that, however... things did not get better. NOTE: I also had a strange canker sore type thing on the top of my tongue at this same time. It was a small painful, almost swollen tastebud type sore. Also, I have a nipple piercing that was also VERY AGGRIVATED around this time as well. I took a look down yonder with a mirror and noticed a small chancre-like lesion on my outer labia. It was itchy, but not sore. I saw a doctor on October 12th and he took a look, claimed to not think it was HSV. He took swabs that WERE NOT SUBMITTED TO PROTOCOL (which I found out later) and left me with no information. That evening, I was itchy around the area of my clitoris, where the mobs pubis meets the fleshier bits of the vulva, and noticed some red bumps developing. Of course, I panicked. This whole time I had been experiencing watery, sometimes blood streaked discharge. I’m lead to believe that I have sores internally, however, of the three doctors I’ve seen since symptoms began, not one has looked at my cervix. Note: A month prior to all of this, I had a clear STI screening. (I now know that HSV is not part of that) On Sunday, October 14th I returned to the clinic and saw another doctor who took one look and said “looks like herpes”, took swabs, and put me on Valtrex 500mg 2x/day for five days. It seemed to really help and the sores all disappeared within a weekl, including the soreness in my nipple. HOWEVER, this only seemed to last a few days. I returned to the clinic and saw another doctor to discuss my results. Let’s just mention that this doctor was ANCIENT; I call him Dr. Dinosaur. He insisted that the lab results were wrong, that it MUST be GHSV2, and insisted that I be on daily suppressant Valtrex, starting with 1/day until I had an outbreak, then 2/day, and so forth. I questioned his recommendations based on what I had read about HSV1; and the fact that he completely disregarded the facts of the lab results. I didn’t take the suppressants at first, in hopes of getting a second opinion. Almost exactly a week later, the discharge started up again, I got a splitting headache, felt the “tingle/itch” but wanted to convince myself it was all in my head, yet sure enough, two little bumps came up. I immediately filled the rx for the Valtrex that dr. Dinosaur had given me and did the whole 2x/day of Valtrex 500mg for another five days. Everything seemed to subside quite quickly. After the five days, I decided to go ahead and try the 1/day idea, and for the first few days everything seemed fine, but within a week, the tingle returned, no visible bumps, but I got the signature splitting headache, and the abnormal discharge returned as well. I returned to the clinic, and saw a younger doctor and grilled him with questions. He disagreed with Dr. Dinosaur about the daily suppressant but couldn’t really answer the questions I had. Throughout all of this, since the initial canker sore on my tongue, I’ve had a pretty constant “tingle” sensation in my tongue that I cannot explain. I have never had signs of a cold sore or sores in my mouth other than the swollen tastebud at the beginning. I am PARANOID that I’ve got HSV 1 in both my mouth and on my genitals as well as my nipple. But no one has been able to answer me. I have since been taking 2/day Valtrex 500mg (with a short period of taking 3/day) as I was planning to meet a new guy I’ve been seeing (and hope to be seeing for a long time, and YES I have disclosed my situation to him and he has been nothing but wonderful and supportive about it) and am now going back to 2/day and hoping that I can wean myself off of the antivirals and be okay. MY QUESTIONS TO YOU ALL ARE: -has anyone had experience with abnormal discharge from herpes? What did it entail and what were you told about how to deal with it. - it’s been a month of on/off symptoms. Is this all just an initial outbreak or am I getting slammed with recurrent outbreaks? - how will I know if the internal sores have healed and how long do I have to wait to have sex again? (I am terrified of intercourse now, for fear of passing this on to this lovely man, and for the fear of sex being a trigger for outbreaks) - has anyone experienced the tingling of the tongue? Advice? - are there better options than Valtrex? Is it possible that I am resistant to the antiviral right off the bat? I appreciate anyone with answers-to /experiences like mine. This forum has been a saving grace for me so far but it is SO HARD to have questions answered. Ive been trying to manage my stress and diet and supplements to cater to this virus, yet I feel it’s kicking my ass. I’m almost convinced that the rest of my life will be one constant outbreak and that my sex life is doomed forever. lots of love and appreciation, H.
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