hi202020

Thanks for chiming in! It does seem like my symptoms are getting slightly better day over day. I have been doing Wim Hof breathing and using Joe Dispenza type visualization of my white blood cells eradicating the virus. I don't know if it's helping but it doesn't hurt to try. This is in addition to all the other healthy habits and diet that are recommended. I'm gonna speak to some HSV doctors/specialists to get a better idea of what is going on with this and will report back if I find anything interesting!

I've only disclosed once as I am brand new to this (diagnosed GHSV1 3 months ago) but my take is you should get to know someone VERY well and trust them a ton before disclosing. If you are confident they are a good person and have your best interests at heart then there's less of a chance they will go tell a bunch of people, at least in my opinion. This is one of the parts about this that worries me too because it's just completely out of your control. But again you can mitigate this by only telling good people who you trust. I feel like I will have to date someone for 3+ months before knowing them well enough to trust them with disclosing.

Hey guys, I have GHSV-1 (diagnosed 3 months ago) and I've been taking daily 1,000mg Acyclovir due to ongoing burning/itching in order to prevent what always seems like an imminent OB (see my other thread on that). Does daily anti-viral use mess with the bodies ability to produce anti-bodies over time? I really hope I'm not doing myself a disservice with the medicine and inhibiting the bady's natural defense buildup. Any feedback on this would be appreciated!

@Ellie88 @Meggers23 Hey guys I hope you're doing well! I wanted to check in on this thread. I am still experiencing the neuropathic itching and burning all over my groin. It's been about 3 months of this non-stop since my first OB. How are your guys doing? Unfortunately it doesn't seem like there's an end in sight for me, I've been taking 1,000mg/day of acyclivor to try to counteract it with no luck so far. I've also had an anti herpes diet, I'm taking supplements, exercising, etc so I'm doing everything I can do 😕

@Michgirl73 @Meggers23 @Ellie88 Thank you guys for sharing your experience, sounds like this is pretty common. I suppose it's just the virus having made its way through the neural pathways and there is a lingering irritation there of some kind. I'd be really curious to hear from any veterans if they experienced this and how long it took for it to go away. Hang in there guys! I've been following a strict Paleo/Lysine diet, taking immune system support supplements, getting sleep and exercising every day as well as meditation and wim hof breathing/cold water exposure and so far I haven't had a 2nd outbreak for 2 months since the first one - fingers crossed it goes into remission for good. Now I just have to get my head straight to get back into the dating game. I feel like I will have to date a girl for like 6 months to a year before I would trust her enough to tell her such a sensitive piece of information and that's a long time to date with no intimacy but I guess that's the new world I live in - at least from my point of view right now. In a way this feels empowering because I am going to screen heavily and only date people I feel could be a long term partner.

By the way, I have been experiencing tingling, burning and itching since my first outbreak, and have been worried that another outbreak might come on but I have no outbreak symptoms. Is a good rule of thumb to stay on the anti-virals until the tingling, burning and what not goes away (despite not having an OB)?

Hi guys, I was recently diagnosed with gHSV1 and my initial outbreak cleared up over a week ago and I am still experiencing neuropathic burning, itching and tingling all around my genitals. I don't have any signs of a second breakout, so I'm wondering if this is common and if so if it's something that is associated with the initial outbreak, and if I should expect it to go away, and not come back, or is this something that tends to stick around? I'm really curious to hear other people's experiences with this, and also I'd like to understand what exactly is going on physiologically if anyone has insight. I'm hoping that my first outbreak will be the last, which seems to be a good chance with gHSV1, and of course I'm hoping the burning, tingling and itching I'm experiencing post outbreak goes away for good soon as well, and just want to hear other people's experiences or even get some data as to what I can expect here.

Hi guys, I was recently diagnosed with gHSV1. I'm wondering if it is a good idea to take medication daily for an extended period of time to suppress the virus as much as possible since I heard the first year can be indicative of frequency of outbreaks moving into the future, and it seems plausible that the more you suppress it early on, the less likely it might be to cause outbreaks in the future. I was speaking to my doctor and they said that they recommend only taking Valtrex/Anti-viral medication during an outbreak and not daily long term as a preventative measure because the virus can become resistant to it and it may not work as well long term, plus there are negative side effects on your kidneys and other organs. Does anyone have first hand experience with which strategy to use? 1) Only use medication during outbreaks versus 2) Taking daily to prevent outbreaks long term)? Does anyone know of any studies that suggest which strategy is better?