Joe Joe

He has no business telling anyone but that’s society nowadays. People like gossip. I was diagnosed ghsv1 this January. I’m terrified to disclose, that’s why I haven’t had a new partner yet. I have my family name to hold up and unfortunately I already know that this will spread around like a wild fire if I tell a couple people. Even close friends. That’s just the reality of the world we live in. At least in my community. I don’t like it of course. They will say I’m a nice guy but yeah he has H. I hate this because I’ve never been talked about in a bad way. Never was into drama. Always a laid back guy but fuck this will give people something to talk about. I just know it

I’m sorry your all going through this. I’m going through the same thing unfortunately. I’m a male though This is so frustrating, when I was diagnosed in January of this year by swab for ghsv1 all I read is how it’s one of the least active herpes aside from oral hsv2 and also read that it might be a one shot deal claiming after the primary outbreak you have a chance of never recurring but this has been far from the truth for me. I’ve had recurring lesions and the itching down there has never went away since my diagnosis. It has literally destroyed my life. My mental health has taken such a tremendous hit I can’t even explain. Well I’m sure you guys understand. My coworkers can see a change and anyone I’ve been around. I had one co-worker bluntly tell me I went down the past few months. I just can’t be open about this. Im hoping the recurrences are because we don’t have the antibodies to fight it yet. Hopefully our immune system gets a grip on it but I just don’t know. Could the history of ghsv1 be evolving since so many of us are suffering on a daily basis? Maybe it does like to live in the genital tract and not true what the experts claim about it not liking to live down there. There is not much research it seams on ghsv1 which frustrates me. I just don’t know anymore. Frustrated to hell. Dont even feel like a man anymore. To top it all off my body has went crazy with excema when I contracted this virus. I’m literally itching from head to toe. Dermatologist can’t figure it out. I always had silky smooth blemish free skin aside from when lichen planus attacked my skin but that wasn’t nearly as notable and basically went into remission a long time ago.

Interested in this also and what about l-lysine vs super lysine?

I ask God those same exact questions. Bad things do happen to good people.

No problem. I don’t know what I’d do without the forums either as I’ve said I haven’t talked to anyone about this in real life besides the female that gave it to me so talking to people on here who can relate is great therapy After I received the diagnosis of ghsv1 over the phone by my doctor he prescribed me the 10 day prescription of Valtrex. He didn’t tell me to set up a follow up appointment or anything but I just did for the hell of it. So when he walks in to the room he can feel my anxiety and he’s like what’s wrong? And I’m like I’m having a really hard time coping with this. He’s like what wrong with you, you need to stop reading about it on the internet. He’s like if you get worse I’m gonna have to put you in antidepressants which I refuse. I agree unless you have this happen to you, you will not understand the emotions that it takes on you and he made me like I was the crazy one being over dramatic. I’m a grown man and I literally cried for at least two weeks every night driving home from work. I haven’t cried as an adult ever except for my sibling that passed a few years ago from cancer. Sorry don’t want to identify the gender of my sibling in case someone can identify me here. i still pray but I honestly hate to say it but I have lost a lot of my faith and hope. My sibling passed in 2015. I asked God why at the time he/she was battling. My sibling suffered tremendously. If I told the details you wouldn’t believe it. It was such an aggressive cancer. The only reason I held on to my faith was seeing the faith that my sibling had and he/she never questioned why did this happen to me They accepted the suffering and still trust in God. It was like God was by their side. No joke. It was something you would have to experience to believe. I wouldn’t last a minute of what they were going through in the last 2 months of their lives. Through the whole battle and after the passing of my sibling there were signs that made me believe in God but I still fell into a deep depression. Now I’ll tell you how HSV did in fact question my faith. So like I said after my sibling passed I fell into a deep depression for over 3 years. Last November I got a gym membership and I was finally starting to accept that my very close to me sibling is gone and funny thing is this is also the time I met my giver. My giver was very fun to hang out and took my mind off of things. She was kind of a therapist to me in a way also because I would talk about my sibling to her all the time. I was finally starting to feel like me again and as soon as I told myself maybe I’m coming out of my depression I was diagnosed with hsv in January I asked God why, how can you do this to me? Why when I finally was coming out of my depression did you let me get this and knock me back down to s point I don’t think I’ll ell ever get back up from. I don’t know if as a believer in God we turn to him and ask him why. I tell him I know it’s not your fault but then i say i wish you would have protected me or allowed me the knowledge or changed some circumstances. There are so many what if’s. Before me and her started having unprotected sex I asked her to get tested. She and I didn’t know that hsv wasn’t on the panel but if it was then this could have been avoided even though her oral hsv1 wasn’t sexually transmitted I think clinics and doctors should test you for it and educate you and to make you aware that although your oral hsv was not given to sexually, you can still pass this to someone sexually. I read an article where it said people are dumbfounded when they get genital herpes from a cold sore. Again, what if she knew her oral cold sores were herpes and can be transmitted to the genitals. She honestly didn’t know which sucks. She told me afterwards that she’s had them All her life as a kid. I told her she should have been aware of her condition and how did not one single person tell her that’s herpes. “What if” someone told her, she would have been more cautious. But what if’s drive me crazy. I try to keep faith but it is hard

I hate to hear that and my feelings truly go out to you. That makes me sad but keep your head up high. I know easier said than done. Maybe I should take my own advice lol but you’ve been through a lot and something great may happen on your next turn. They say there’s always light at the end of the darkest tunnels. I can’t say it will ever be easy to accept it with your circumstances but when it comes to HSV you and I are not alone my friend. Hugs to you and I will say a prayer for you as well on my way home from work

How long have you had it? i was diagnosed in January of this year and it had consumed all three months of my life unfortunately. The only person I’ve told is my “giver”. I can’t get myself to tell my family or friends. I feel like I’m hiding a big secret now. I also feel so small and unworthy like everybody else is better than me. I don’t hold my head up high anymore at all. It’s a daily battle but we are not alone

That’s why disclosure is scary and I don’t know how I’ll ever go about in engaging with a new partner. What if they shame me and spread the word. I still have a reputation and family name to hold up and unfortunately I’m my community I’ll be the talk of the town. I honestly don’t know a person that has it which makes me think is it really as common as the stats make it to be? I just always thought eww someone with herpes. I suffer with an autoimmune disorder called Lichen Planus. It’s a rare skin condition where your immune system attack’s your skin for unknown reasons and it left a mark on the head of my penis. Its not an std and such can’t be transmitted through sex nor is it contagious. It’s been there for about 6 years now. There is no cure for it and I tried so many different creams and ointments and natural products on it. Seen many dermatologist about and they said why are u so worried about it. It’s just Lichen Planus. I was very insecure about it but I use to tell myself at least it’s not herpes. Smh I was very uneducated to herpes altogether and what do you know now I have ghsv1. I pray everyday there is a cure because it can cause mental health issues. I keep trying to get it out of my head and beat the stigma and hate to bring my negative comments here and bring anyone else down but right now hsv knocked me on my ass

This is how I feel regarding the I know 0 people that have genital herpes but to be fair with ourselves it’s probably because their not going around shouting I have herpes but I do ask myself the same question, of all the people I know I feel like none of them have it and I’m an outsider.

I was diagnosed with ghsv1 in January but I was able to pinpoint about the time I contracted it which was late December. Before i I even knew I had contracted hsv I went in to the dermatologist because my whole body was itchy from head to toe. He said it’s excema. I never had excema in my life and I feel like this has to be related to contracting the hsv unless a mere coincidence. After i I was diagnosed with hsv I seen a different derm and he said it’s probably because I stressed myself out from my diagnosis but I explained this happened before I even knew. The first derm gave me a cream which did not help. Neither of them know what’s going on and this itching has not stopped. Has woken me up many times in the middle of the night. I have tiny fluid filled blisters on my hands and feet. I looked it up and seams to match a certain type of dermatitis but this is so frustrating that I contracted hsv and have this problem.

I’m not an expert but I’ve read that the western blot is the gold standard of testing for hsv

Your doc is not up to date 50 percent of new genital herpes cases are caused by Hsv1 I’m a male and I contracted genital Hsv1 in January of this year through receiving oral sex from a female who has oral Hsv1 (cold sores) ive done endless reading on this after my diagnosis and from what I gathered genital Hsv1 is mainly transmitted through oral sex (from someone’s mouth to someone’s genitals). Genital to genital is rare from what I’ve read. Also once you have genital Hsv1 you can pass it to a negative persons mouth if they give you oral sex but again mainly transmitted by someone having oral Hsv1 and they give you oral sex is the main way it transferred to the genitals ive also read that ghsv1 doesn’t prefer the genitals and recurrences can be rare and are rated at about .7 recurring outbreaks a year so about 1 outbreak every other year. Unfortunately I’m finding this untrue with myself as I’m having a massive recurring outbreak right now, only three months after I contracted it. I’m hoping this is because my body hasn’t built the antibodies to fight it but I feel like it should have by now as I don’t think I’m immunodeficient. I also read that recurring outbreaks will be much more mild and of less duration but again not true in my case right now as this recurring outbreak might even be worse than my horrific primary outbreak with the exception of the painful urination this time. Im not in daily antivirals and my doc said it wouldn’t be needed but maybe time to reconsider? What even makes you think you have herpes? What are your symptoms? Have you recently received oral sex before suspecting herpes? If so, do you know if the person that gave you oral sex has a history of cold sores?

This is going to be long and I’ll do my best to not be all over the place but I guess I will have two questions at the end as I post this while waiting on customers at work And I’m going to try to post my history 33 year old male diagnosed with ghsv1 No daily antivirals started seeing a new female in November, we had a sexual relationship, come December 26, 2018 I go see my dermatologist because my body started itching from head to toe (tell u why I mention this later on) mind you when I went in for this appointment I had no idea or thought of ghsv1 but in hindsight I must have contracted it just before my body started itching. I don’t know if it’s a coincidence but I strongly feel contracting the ghsv1 made my immune system go crazy and attack my skin. I have suffered with an autoimmune disorder called Lichen Planus for about 7 years but it has prettty much been in remission and never really aggressive but I have had one spot on my penis head that never went away. Anyways like I said during this dermatologist appointment I hadn’t had any symptoms or thought of ghsv1 but rather went in for itching all over. Derm asked if I had a change in soap, drier sheets, fragrances etc so I brushed it off after telling him I’d been staying at hotel rooms I’m not use to normally staying at but anyways he said it’s probably atopic dermatitis. That I probably had a reaction to the soap or whatnot come January I had my first symptom of h which started with excruciating urination, went in to my primary doc and tested for all std including h through blood work, everything comes back negative. Week later inflammation along with new symptoms and painful urination so had swab test confirm ghsv1. I had two blisters at the base of my shaft so I was diagnosed mid January and the itching from head to toe has never gone away. It’s so intense that it keeps me from sleeping or wakes me out of my sleep when I do fall asleep. I went and seen a new derm twice and he can’t figure it out. Just says it’s eczema and tried to prescribe me the same thing the original derm prescribed which has done nothing. This derm suggested that after my diagnosis that I strsssed myself out so mad that my body had this reaction but when I told him it started before I knew my diagnosis then that ruled it out but can’t figure anything out. I’ve never had skin issues like this. Always was complimented on how smooth and blemish free my skin was anyways full body itching is still persistent. Last weekend I had rough sex with my giver, a few days later I’m suffering a massive outbreak. Kind of confused as to why so aggressive when all that I read is that ghsv1 doesn’t occur often in the genital tract and about .7 outbreaks a year unless someone is immunodeficient which I don’t think I am. I’ve been healthy overall although I don’t take too good care of myself. I do smoke and don’t diet but I’m not in the worst shape by any means. I was getting back to good shape before my diagnosis. Anyways I’m suffering with two much bigger blisters on the shaft of my penis this time than the primary and also two new blisters on my testicles which are a pretty big size. It’s awful looking. Can this be because I don’t have the antibodies built up or is it my luck that I’m gonna suffer with an aggressive case of ghsv1. Should I consider daily antivrails now. L lysine? Please I need help or advice with anything

There are claims that ozone can eradicate the virus but maybe that’s false hope. Did the ozone therapy do anything for you?

I’m a male that contracted ghsv 1 last month and I have had an autoimmune disease called Lichen Planus for about 7 years but it was pretty much in remission until I contracted hsv 1. It woke this sob up like none other. It’s been attacking me for a month to where it’s unbearable. I can’t sleep and always wake up in the middle of the night itching. Erosive Lichen Planus is when your immune system starts attacking your skin for an unknown reason. There is no cure for it so now I have two incurable diseases. F’ing great. To make matters worse Lichen Planus attacked my penis and I have a Lichen Planus scar on my penis head that has not went away for over 5 years. It was starting to look a little better then bang I get diagnosed with genital hsv1. Can’t catch a break. It’s a storm out here but yeah anyways I don’t know whts causing me more trauma right now getting diagnosed with hsv or this Lichen Planus waking the hell up. I can’t take it! I’m trying to tell the lord this is more than I can handle. They say he doesn’t give you more than you can’t handle but lord I’m not as strong as you think. I hope the best for all of us on here. I wish there would be a cure. I know they say hsv is not serious but it mentally is and making me lose my mind. My doctor told me it’s not gonna kill me but it’s destroyed my mental health real quick

Did he have any sores when the rubbing occurred or do u think u got it while he was asymptomaticlly shedding? And damn that means you got it as genital to genital when I’ve read that genital to genital is rare but maybe not?

Thanks for the reply and support. How did he pass it to you if you don’t mind me asking? This anxiety is far too real. My anxiety level has reached the sky. Doc said he will have to put me on antidepressants but I refuse

By the way I am a smoker. Work in a very stressful environment. I’m in fair shape for not going to the gym in a while. I plan to go back. I just started taking olive leaf extract pills and oregano oil. I’ve read about oregano oil being able to destroy the virus and supposedly cure it but that’s probably fantasy land and I don’t want to be the one to misinform any one or get their hopes up because I’ve got my hopes up from reading and I guess I still have my hopes up in some way. Lol idk. I even watched James destroys diseases but I would never be able to follow his all fruit diet and protocol unless I knew it was 100 cure. Also nobody ever comments back to being “cured” in his videos but some people have made claims of retesting negative. Somewhat interesting I guess. Like I’ve said this had consumed my life. Even had a dream or nightmare I should say that I broke out all over my lips. I just really wish there was a cure. I would do anything to take my life back.

Mid 30’s male here. Contracted Genital HSV1 symptoms started late December diagnosed mid January Never had an exposure to any hsv till now. I know this because I was experiencing painful urination as my first symptom, went to the doc and was tested for all Sti including H and the results came back negative for everything. I believe the H test was igg and reason it was negative is because I hadn't built up the antibodies yet. Doctor disregarded H at the time after that test came back negative till I experienced more symptoms such as skin irritation or sores on the penis, sore back and legs and the painful uriniation was excruciating so I called the doc and he told me to come in. He performs a swab test of the urethra (not sure what test this is called? Culture test?) comes back positive for hsv1 and negative for hsv2. This indicates a new exposure. He acts like no big deal on the phone with the results. Maybe to protect my sanity and I’m starting to see this is the norm for doctors to do with hsv. They almost don’t even want u to know. He says well the results came back and I’m like ok? He’s like it’s a cold sore! I’m thinking yeah on my private’s. He prescribed me 10 days of generic Valtrex. I go back for a follow up and he can feel my anxiety and ask what’s wrong and I tell him I’m having a hard time coping with this. He tells me to stop reading about it. I’m thinking yeah easier said than done plus I should now educate myself because I got this in the first place by not being educated. It’s made me feel so dumb that I catch myself in the car calling myself a dumb mother f’er. I’m so disappointed in myself to say the least and have had all the thoughts most people have when being diagnosed with this. I got this is a result of oral sex from a female. We were having sex for about 2 or 3 months and she was the only partner in over a year. We talked about std’s because I initiated it and She said she’d take sti test to make me feel better so she tells me everything came back negative and I hadn’t even thought or knew hsv was not on the menu of standard sti testing so it slipped my mind. If I knew I’d obviously ask if she ever had cold sores. One day I go to pick her up and she has a huge blister on her lip and I’m like is that herpes? She’s like no it’s a fever blister. I’ve had them since I was a kid. I just had received oral sex from her that whole week. She’s going to school to become a medical assistant and that makes it even harder for me to know she did not know and kind of pisses me off that she wasn’t aware of her condition or body. She goes to class the next day and tells her teacher that someone told her this fever blister is herpes and her teacher tells her to tell whoever that person is that their a dumbass. Lack of education all around I guess. Anyways I’ve really been struggling with this in my head. It’s literally taken over my life. I’ve lost about 8 ponds due to no appetite. Can’t sleep and when I fall asleep I have trouble waking up. Been late to work several times. Coworkers are telling me mind is somewhere else. Customers asking me what’s wrong. Family knows something is wrong because I’ve isolated myself from the world. This has caused a major depression and don’t know what the future holds. I wish they would discover a cure for people’s sanity. Also I’ve read people’s post that says this is just a skin condition but how can you say when this can kill a newborn if we were to try to get with a women that was negative? Guess thats because a negative women would go for us and risk catching genital or oral. I’m aware of c section if primary exposure happens during pregnancy but again if I had to explain all this to a negative women how the hell can I convince her to gonfor me. I feel like my manhood has been taken away from me. I don’t even feel like a person anymore. More like a walking herpetic zombie. I’m sorry everyone for being negative. This might be against forum rules, I’m not sure. I am here to vent and get advice. I appreciate everyone here and glad I found this site but I pray to God this nasty virus can be eradicated someday soon for the sake of us that can’t see ourselves moving on. I do still want to hear from men who have had ghsv1 for a while and what to expect? How many outbreaks can I expect? I know it varies from person to person and have read that it decreases after first year. I also read an article with a doctor claiming that with ghsv1 “it’s a one shot deal” but I don’t seam to believe that. I’ve read many articles on transmission rates and recurrences but want to hear from real life people also that are going through it. I’m also afraid that I caught this orally simotanously. I haven’t developed a cold sore on any corner of my lip anywhere but I can feel it in the middle of my lip if that makes sense. I’m just lost in life right now. I just was coming out of a 4 year depression and this knocked me on my ass. Also reason I’m asking to hear from men because it seams like women are suffering with multiple outbreaks a year with genital 1 and obviously they have a different part so I haven’t found many guys posting about their ghsv1 with my countless hours of searching. Also my primary outbreak is still going, no lie. It’s been about a month and a half of hell. I still feel a tingling itchy feeling in my urethra (pee hole) and a had a secondary scab or blister. Maybe this was a secondary OB? Not sure but the first OB never healed all the way. I’ve been itching like crazy and I was already suffering from an autoimmune disease called Lichen Planus and this has woken that SOB up like no other. My whole body had been itching. Lichen Planus is when your immune system attacks your skin basically by mistake and causes erosive lesions. This life has been hell to say the least. I know his post is too long and all over the place but can you guys also tell me if your on some kind of diet? Have u been with a negative partner and avoided infecting her? I wanted to settle down soon and have kids but not sure how that’s looking for me?