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  1. I know this thread is older but did either of you ever get any answers or relief? I am dealing with the same symptoms for 3 years plus bumps that seem exactly like HSV but all negative tests. Very frequent. I am a nurse so I know it’s not all in my head or just normal stuff. Thanks for this thread, it was good to know I am not alone
  2. I don’t know for sure if I have HSV but I am 99% sure I have it despite negative blood tests. I have tested for everything else, including thyroid, celiac, B12 deficiency, autoimmune diseases like lupus. Sometimes I wake up with pins and needles in one arm or leg when I am NOT in a bent up position (like I know it happens when you sleep on your stomach with your arms above your head). This will happen several nights in the same extremity and then aching dull joint pain in my knee or hip or elbow, then an outbreak on my butt on the same side of the body. It’s freaky. Obviously those coul
  3. It definitely shouldn’t be herpes that often but the “prodrome” type nighttime itching and tingling (not just at night but it’s worse then) before the rash appears, plus the fact that they are fluid filled, doesn’t point to much else. It’s not celiac rash. Nothing ulcerative, it’s in my mouth and throat but not other mucous membranes. But on my thighs, butt, bikini area, one on my face today. Oh and my scalp. I can feel them in my hair so badly before the bumps. It feels like someone pulling my hair. https://www.nhs.uk/conditions/chickenpox/ Looks like the first picture on here
  4. Hi everyone. I have had what I THINK is Herpes for 3 years now. I have had 4 negative IgG tests over that time but no one will PCR test swab a damn lesion. 3 different times at 3 different doctors and they all say “no it looks like folliculitis” and swab for bacteria, which is negative. Same in my throat once- no, wasn’t strep. Anyway, this OB is particularly bad. Itchy for 2 nights and couldn’t sleep well. Does this LOOK like Herpes? I basically get some form of this every 10 days after a day or 2 of tingling/itching but not usually this bad. Also, I am not a troll, I am actuall
  5. Hi guys. I am at my wits end. I have had constant symptoms and outbreaks for 2.5 years now. I was convinced I had genital herpes and then also oral but I am now on my 4th negative IgG test. This last one was after 3 plus months of no antivirals. I itch frequently, especially at night, on my face and nostrils and butt and now newly my shins. Then I get red bumps on my face and butt. Repeat at least weekly. Frequent sore throat and sometimes sores in mouth or cuts like lines from nothing. Not actual cold sores. I have seen an allergist and immunologist which didn’t turn up much. Had to see an e
  6. Hi Exhausted Girl, did you ever figure out what was causing the symptoms? Or did they get better? I also keep testing negative but acyclovir seems to help somewhat and I think I have given this to someone else now. So frustrating as I only started seeing them since I kept testing negative. I had been 2 years for me now.
  7. Okay you're definitely negative for Herpes then, right?? Any idea of what it actually is then? Anything help? Trying to figure out what I have too, very similar. I will say a very high quality probiotic has helped me
  8. What is this protein? Does it trip the testing in to a false negative or false positive?
  9. Have you had a positive IgG or swab? I also feel like it has spread to my eyes but luckily no actual vision part of the eye involvement. Also have similar facial bumps. No pimples, stingy. But of course doctors don't believe us.
  10. Stunnedbythis, have you tested positive for HSV and have similar? Or also test negative? I am happy to report that I have less frequent bumps on my butt now but everything else is still awful, especially the facial/nostril/butt/vagina itching. It's every single day. Which also seems like not herpes, isn't it supposed to be cyclical? Can you have outbreaks if you never DON"T have an outbreak?
  11. Thanks! My symptoms started with a frequent and constantcycle of itchy genitals/butt followed by bumps on my butt which are burny/stingy, red with tiny fluid filled centers. But many individual bumps, not clusters. Frequent sore throats at the same time with occasional ulcers in back of throat or on gums, but they are small and not always there. Very very itchy nostrils and face and eyelashes. Tingling lips and irritated corners of mouth, irritated/tingling genitals. Sometimes feeling like my chin is being stabbed with thumbtacks, then ends in tiny bumps appearing with a tiny fluid filled
  12. BlurneWorder, I don't think your symptoms are from stress or in your head as I have almost the EXACT same thing. For 2 years. HSV IgG 1 and 2 negative, and pretty low of a negative at 2 years (0.23 and 0.19). When you say you once tested positive for HSV1, was that an IgM test? I also get itchy bumps in groin/on buttocks, which doctors always call folliculitis. But it comes with a terrible itchy prodrome and always comes back. And never pus filled, always fluid, but no "typical" HSV looking. Last time was negative for bacterial culture. I also have constantly tingling/chapped lips, ir
  13. Hi, I have been struggling to get properly diagnosed for 2 years now. It's a long story but I have nearly constant symptoms both oral and downtown. Anyway, 3 times I have had a negative IgG test for HSV 1 and 2. 2 were just "negative, <0.9" and one test showed my levels of 0.23 and 0.19. All of these tests were over 1 year after symptoms started. But the point of this post is this...if someone else had HSV1/coldsores for sure as a child, but had been symptom free for a long time, and now no IgG to it, would your Western Blot be positive anyway? I am interested in doing the Western
  14. Original poster here- just had Igg levels checked again and they were 0.23 for HSV 1 and 0.11 for HSV 2. To me this proves I do in fact have Herpes as I for sure had cold sores as a younger adult and this isn’t even showing that so therefore is clearly wrong. Anyway, just super frustrated as I was up all night itching and woke up with a sore inside my mouth (new spot for me! Good times). I really do think some people have something wrong with their immune system. What can I do?? In response to the above I have been checked for strep (above and below), I do sleep plenty, I have been
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