Worriedgal89

Just to clarify I always have the nerve pain and itching on and off every day but the big swelling and redness happens like once every few months

So starting about 3 days ago I have had swelling , redness and itching . I started taking valtrex 3 days ago , 1 gram the first day , 2 grams the second and 1.5 gram the 3rd .. I woke up this morning still with the same symptoms. I have decided I will do the autoimmune testing , start a strong probiotic and try to overhaul my Health. I’m not even sure that this is the herpes causing my symptoms all I know is my body is very inflamed . Any more responses will be greatly appreciated

Thank you so much for your response . I am not sure exactly when I contracted hsv so I’m not sure , I have had weird symptoms for even years before that .. like before the pain started I had a cut that didn’t heal for 3 years down there . Very very bizarre. I think you are right and maybe I have an autoimmune issue . I have ms in my family along with arthritis. I will go to the doctor and ask for autoimmune testing along with being referred to a specialist. It is all so bizarre . I really wish I was one of the lucky ones that either don’t know they have it or have very rare symptoms .

I am posting again to see if anyone new has any advice . I have had burning , swelling , sensitivity, tiny cuts , and nerve pain DAILY for about 6 years straight now . Nothing gives relief . Have tried vitamins , cutting out foods , yeast infection treatments, bv treatments, random creams , steroids , estrogen cream and antivirals . All std tests clear except positive hsv1 .The antivirals seem to work I think .. I just started trying them again after the steroids stopped working . So we will see .. does anyone know if this is herpes why in the hell my body can’t suppress it? I talked to Terri warren and she said that hsv 1 would never cause this. This has been ruining my life for years and I need to know if anyone has experienced this and figured out why their body had this reaction. I met one other girl on here with the same issue and we have been trying to figure out … thanks guys .

Thank you so much for your response .. I think I have been holding onto the idea that this is lichen and am kinda in denial about it being the herpes causing these symptoms but I just need to accept it. I think I just worry why I am having constant symptoms . When I say constant I mean I maybe get one week of relief a month . It's insane.. I have talked to too specialists in the topic like Terri Warren and she says it's not likely what is causing my symptoms but I think she is wrong ..

I have had this every day for 5 years including swelling and redness and raw spots in my vulva. Gyno diagnosed lichen but I have no white patches and steroids don't work.. my life is hell.

What was the outbreak you had like ? If you went ten years without issues this will probably be a temporary thing , has anything changed in your diet /stress etc ?

But most people test positive for hsv 1

Hey, if you had a type specific IgG test that says you have hsv that means you do usually . Regardless of having lichen schlerosis or not . You can have both

So I posted on here a while back about how confused I was about having a hsv 1 + blood test and negative hsv2 . I have had constant problems daily on my labia for over ten years , getting worse in the past 5. I have seen countless doctors and just accepted that it must be herpes and my body must have something wrong with it where it can't fight it . I had every test under the moon and tried everything . Living with a raw vagina for 10 years does a number on your mental health and relationship . Yesterday I went to discuss getting my tubes tied with a new gyno and mentioned this to her , she said she would take a quick look . She immediately said it looks like lichen schlerosis and half my inner labias are gone (which I somehow didn't notice until later looking that day and being astonished) . I don't have the typical white coloring of lichen as I am still early in the progression luckily . But I wanted to put this out there as an option to look into for the people that had responded to my original post . I used the steroid cream she gave me last night and my vagina hasn't felt this good for a decade. If you have cuts , itching , irritation, redness , pain during sex , and raw patches this could be your problem, if you have white areas of thin skin down there this is even more likely but as I said this doesn't have to be the case ! . It can also cause blisters so at this point I'm not even sure if I have genital herpes or not . I thought I would post this so that it might help one or two people . Also ask your doctor about low estrogen if you have this issue.

Are you able to do the letsgetchecked online blood test? They ship a box to you, you fill a vial and send it back , it's very discreet , do you have ups delivery around where you live? That's how I got my results since I live in Canada and it's super hard to get a bloodtest here , you could maybe even ask them to label it as a hormone test or something if you call

Most likely , yes . You probably have type 1 , which is generally mild in most people

Yes I have heard twice a day instead of once can help , try that for sure !

Yes the nurse will talk to you and help you out with info , no problem , hope you get a negative !

Yes ! I just used it and they were great . When you get the kit though , make sure you prick your finger like right at the tip , it can be hard to get enough blood out , I found just letting the blood drip and not massaging the finger was better . I had my results within 2 or 3 weeks of ordering the kit I think . I had to call to get the exact numbers of my results , ask to speak to the head nurse she is the best I can't remember her name.