Kjlo82

I disclosed, he was fine with it at the time but then ghosted me. I think I'm better with being ghosted now than I ever was, which seems bizarre but I feel that I deserve better than that regardless.

Sorry I have just seen this. My prodrome symptoms aren't as constant as they once were but I still get them daily. Im sorry to hear about your pain. Have you been to the clinic? Are you taking lysine, vitamins etc?

Hi, Ive had herpes for 6 years, 5 years were prodrome symptoms and I didn't know I actually had herpes until I had an outbreak last year, so for the past 6 years I have been to all sorts of different doctors to get to the bottom of it. Its not the best condition to have but at least now I know what it is I can treat it and Im not putting people through what I went through which unfortunately I may have in the 5 years I didn't know. I think my body dealt with it being hidden, so I had prodrome symptoms as and when I was stressed or other stuff but my body now has to deal with the actual sores so I have to do it all again. I am trying so hard to embrace this condition Im not happy that I have it but I have and I am dealing with it in the best way that I can. I have recently started taking vitamins I now have a little collection going haha. So I take vitamin c, a probiotic, vitamin d, magnesium and zinc and vitamin b12 as well as an antihistamine as well as aciclovir twice a day. It doesn't feel as bad, its not waking me up as much as it used to. Ive also found some pages on instagram and a podcast which is quite informative. Ive been listening to positively positive on podcast. I also follow her on instagram as well as safe slut, you, me and hsv is a UK based one and Samm from PP recommended some others to me which I have also started to follow, I wasn't going to as I was worried about people knowing that I was following these pages but if they find out they can ask me, when lockdown is over I will start telling people who matter to me some how. Since I got a diagnosis, I haven't been in a relationship, I started one when I was in the process of finding out but I ended it before it could get physical because I was too scared to tell him, I never had luck with men before this, so I am scared about how it will be afterwards. I am currently speaking to someone and I have no idea what I will do when we finally meet and I have to tell him but one good thing to come is that I am now managing to weed out men that just seem to be after sex. I have been searching for places to help but cant seem to find anything UK based but I am going to keep trying. x

They definitely seem to say not to worry a lot of the time. My local clinic know that I am not going anywhere and I will keep going until I am satisfied, so they are trying to help me more now as I have been trying to get to the bottom of this for 6 years, 5 of which was just prodrome symptoms so there was no chance of finding out until I had an outbreak. It's so difficult when you feel like you're not being taken seriously but I think most of that is because they don't know anything about it, I can remember going in with a list of questions and speaking to a nurse/healthcare assistant and being told I know more than she does when it comes to it, I think they just work with the symptoms and thats it, you're by yourself with the rest. It took me a long time to tell one of my friends, she was so understanding and had no judgement towards me and I am aiming to tell a few more because I feel that if I cant tell them how am I going to be able to tell someone I will date. £8 for a phone call thats awful, I cant believe that they were no help to you, what is the point of having a help line if they aren't going to be there to support you and recommend things to help you. I believe that they have herpes support groups through the sex clinic but they are the type you go to and sit with people who have it, I live in a small city where people like to talk so thats out for me. I am the same i'm 38 years old and have this and feel like I should have known better and I hate the person that gave it to me, as he seems to be living his best life and I'm having this constant pain. Do you take any vitamins? Have you worked out your triggers? I've found that I cant drink gin, or eat a lot of sweet things (which i'm hating as I have a massive sweet tooth) and I can't drink more than one day a week. This has helped me a little just need to give up sweet things. Have you been tested for BV or Thrush? I have had BV a couple of times and it is just awful and makes it worse? I don't believe that there are any specialists but then again its not something that I have looked into.

Hi, I am in the same positions as you and feel exactly the same. I was constantly getting prodrome symptoms even when on my medication which made me make the decision that I would stop taking it, which gave me an outbreak and probably the worst one since my first one. I am also from the UK and I know exactly what you mean about the clinic staff. Im on first name basis with some of them because I am constantly on the phone to them, trying to get on top of it but they don't seem to know much about the condition and gave me a lot of leaflets to read over but they have just given me more questions than answers, which they are unable to answer. So I have found that I am by myself with this and I am trying to find ways to help myself, trial and error with vitamins and other things to help. Im also trying to clean up with my diet and see if that helps. Did the clinic give you the herpes.org leaflet? Im sorry I probably haven't been much help here but do know that you're not in this alone.

My daily symptoms are starting to get better, slowly but surely. I know exactly how you feel, it's been like that for me too. Before I had my first OB in August last year, Before that I actually had symptoms on and off for around 6 years (until I finally found out it was HSV2 when I had my OB) it was worse at the beginning for me both times. First one was, Im assuming when I got infected lasted around a year, as we had no idea what to treat. I have a bit of a daily regime now (if you can call it that) which I am working on. I try hard to eat as well as possible, I have found that if I eat/add a table spoon each of Flex/lin seed and pumpkin seeds starting from the first day of my period for 2 weeks then for 2 weeks after that I eat/add table spoon of both sunflower seeds and sesame seeds to my food. I take vitamins b and d, an acidophilus and an antihistamine daily and I read somewhere that vitamin E can help, which I will probably try soon. I've found that sugar is a trigger for me, which I am struggling to give up, I really need to work on it. I cant drink gin but I'm ok with alcohol in moderation. Keep a diary or make notes of what youve eaten/drank on the day when you feel worse as this might give you an idea of what can trigger your symptoms. I'm sorry I've gone on a bit there and I hope that some of it will help you.

I was the same, I had my first ob in August and since then I had the same problem, I am currently on the medication, which is helping a bit but I am still getting mild symptoms. I've felt like this, like there was no help, nothing that can be done but it does get better. The months after my first ob, I couldn't sleep for the constant itching, I was red and I was swollen I literally couldn't concentrate on anything, this was until February, I was given aciclover, bv treatment, hydrocortisone cream and advised to take antihistamines and used a fragrance free moisturiser if needed. Not sure if these have worked or it is my body starting to build up antibodies to help fight it. Do you take any supplements? I have read on here that a lot of people seem to take them.

Hi all, So happy that I found this website. I am from the UK, so there isn't too much like this over there, this subject seems quite taboo and from my experience a lot of the practitioners within the sexual health occupation don't know a lot about them as I have been shoved everywhere for the last 6 years but that is another story. Any way my question is I started taking suppressive medication as I was having constant prodrome symptoms for the past 6 months, it does seem to have stopped them, I am also doing the usual other stuff that we have all become accustomed to vitamins, cotton underwear, washing etc but Ive noticed for the past week or so that I have been getting mild prodrome symptoms after I have taken my tablet, I am fine all until until this moment, I am wondering if it is too much for my body and thats why it is reacting to, if that makes sense. Im thinking of finishing of this weeks course then giving my body a rest from it then take it from there. Has anyone else found this has happened before? 🙏

Yes for the itching, I think to help ease it as it can be really bad at times.

I was diagnosed with hsv 2 in August last year and I have also had daily symptoms. It really gets me down and I have been on speed dial to my local clinic in the hope that they will help. I have to say I've been made to feel like I'm over reacting that was until my last appointment I went got a swab taken I had bv but most importantly I was listened to. She gave me treatment for my bv, for my herpes but also advised me to take antihistamines which i have just started taking in the hope that they will help I am on day 4 and they seem to help ease them. I hope that it is my body getting used to having it and will eventually feel better.