This is so helpful thank you for this it really means a lot.
Sorry to hear you’re having such a similar issue, I really appreciate hearing from your experience.
Nerve pain and fatigue have been the worst parts for me, which has meant it took a while for me to be given a higher dose in the first place ‘herpes doesn't act like that?!!’ Well it’s responded to higher dose antivirals - so yes it does.
They were constant for 3 and a half months with no break but I’ve had a month off and now had a small one which I hope is now clearing. I’m definitely going to ask about this higher dose, thank you, from my understanding it takes a while to clear it completely even on the right dose but how long is another matter..
I’m looking into the Perrin Technique for the fatigue as it’s supposed to help the body clear infections and anything that might be causing toxicity, this is a chronic fatigue/ post viral treatment so not a solution to the herpes but hopefully something to help my system.
I think it’s well worth looking into resistance, I think I will struggle as I’m not getting the ulcers at the moment, just bumps that don’t break the skin and the internal nerve symptoms (which I couldn’t believe could be so painful). But I’m going to push for swabs and more investigation.
I think I’m repeating myself from another thread, but I am also trying Llysine to see if it helps - incase that’s something you could also try.
Wishing you well. I can’t imagine all of this with a new baby as well, you’re doing really well in the face of something awful and underestimated by the medical community.
(** Posting about all of this not intending to scare any newly diagnosed people, these things often become a problem for a season, along with other physical strains on the body and it’s very individual to the person. I think it’s worth sharing low points on forums for those in need but if you’re reading this and are someone who worries a lot take the experience of others with a pinch of salt, as no two people have the exact same medical experience)