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AlexFrancis

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  1. Hi, Anyone UK based, that has had the WB by sending a blood sample from the UK. My problem seems to be finding a lab that will spin blood for me! Thanks
  2. Hi TBarr, Yes I read your story and I am glad you are in a better place. I would love to focus and convince myself that I don't have GHSV, but 20 years on and having put it to bed for almost a decade I can't reconcile what I see and feel every day as being psychosomatic. I have also passed this on to my partner, which reinforces my view of what is really going on. Diagnosis of GSHV is problematic in the absence of lesions that can be swabbed. And I feel that that is the reason why I am in this nightmare, not the fact that I don't have it. If I was US based I would have the WB, being
  3. Elysium17, You are not unique as I feel as I am in your situation. However, my condition has been for almost 20 years. I forget the exact timeline of all my pain but like you I see a visual indication of this problem and have consistent nerve pain in my legs, genital soreness. I am going to add that I have never been diagnosed, but I know I was infected as my situation is unique which is pointless to discuss here. All 3 approved antiviral drugs had no effect on me. My post is not to depress you but highlight that what you are being told by doctors, that it is in your mind, isn'
  4. Not sure if you read my story a few posts below this. But having not had a diagnosis and my problems starting immediately (within 1 day of the event, peaking with intense pain at day 4) after a very unique single event that did not involve sex, oral or other (which I don't want to discuss). I am as certain as I can be I have GHSV. I don't know whether it is type 1 or 2. In the first 4 or so years I had probably 40 doctor appointments, seeing maybe over 10 different doctors, I found one understanding doctor and had many appointments with her. But what I learnt from my experience is that de
  5. Robmat, this is my take on the subject. HSV for some, it seems a massive deal, for others it's barely a thought. Those like myself, reach out to the internet and we are presented with horror story after horror story and it reinforces our own belief on what we are experiencing. I am guilty of this same fact. No one posts to forums like this to say HSV has been insignificant to them. You can look in an outsider and think what!! That is all in his/her head but you aren't able to apply the same logic to your own situation. But looking at facts. HSV1 diagnosis is most likely to be oral herpes,
  6. How were you tested? A single test, without ever having symptoms I would discount. That is the problem with this virus, unless you have classical symptoms that can be swabbed and HSV virus grown from that swab, testing seems so unreliable.
  7. Hi, Looking for help again after having buried this disease many years ago. I will keep this post brief as my story is for another post. I was infected 20 years ago next year. But I still do not have a positive diagnosis. There is a singular event that enables me to understand very clearly why I know I was infected. And another major factor is that I passed this onto my partner, 1 year after I was infected, I am still with her and she has had problems over the same period. (again undiagnosed) My question is related to trying to understand why over 19 years my 3 blood tests have
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