timmy

Hi all I know there are a few people on here from the London region in the UK. Can anyone recommend a good Dr or clinic for me? Recently relocated from Paris and would rather talk to Dr recommended if possible. thanks in advance!

Hello. thanks @Flowerteacher55 for the reply. Yes well another appointment coming up will hopefully lead closer to some answers. Yes good that all the results are coming back normal. I do have suspicions that low B12 even when taking supplements shows that I have some Malobsorbtion problems. And what May be causing that May infact be triggering outbreaks too. But who knows 😬

So to follow up on this - I received my results and they were negative meaning I don’t have a resistant strain of HSV2. although part of me is happy, another part of me does not understand why I keep having out breaks on my hamstring then a outbreak on my butt check - so every 2 weeks one or the other 🙄 Can anyone share any causes from experience. I really don’t think it’s stress. i have had a entire range of blood tests and the only aspect that has presented twice is low vitamin b12 (just under the 136pmo/l or 184 pg/ml. I also have lowish TSH 0,781 mUI/l but within normal ranges. Can’t see how this would activate HSV2? otherwise about 30 different tests are all normal and within normal ranges. My GP suspects a possible “immune condition” but that’s all I have.

Hi @Hopeless95 Sorry for what you are going through. Interesting comment about the vaccine because there is quite a lot on the internet (government sites) the vaccines causing ‘virus reactivation’ in a small percentage of people. Shingles for example seems to common and I have seen this mentioned in videos on treatment of king Covid . This information is available on lots of government websites (France, USA, UK) exert here from Agence nationale de sécurité du médicament - the French National Medicines Safety Agency: Pfizer-BioNTecH Among the long side effects monitored in Pfizer stand: Shingles Irregular heartbeat Thrombocytopenia / Immunologically-mediated thrombocytopenia / Spontaneous bruises Diabetic imbalace in contexts of reactogenicity Guillain Barré syndrome Macrophage activation syndrome Reaction to Epstein Barr virus Zoster meningoencephalitis Etc etc. FYI I am pro vaccine and have had both myself but I know this information because I had a reaction so have been dealing with medical system in France and had to report it here. In addition to ongoing outbreaks prior to getting the vaccines 🤨 Anyways it could we be related but it could also be coincidence too - I am definitely no doctor! Dosent necessarily help you right now but @Flowerteacher55 Advice is really good. I hope you get in under control but you are not alone.

Sorry repost as hit post too early. @Ebelskiver thanks for the information. It’s seems those options are all IV only- guess not that practical but at least other options if I do turn out to have developed Drug resistant strain. Find it weird that I get repeated outbreaks now only in ew locations. It’s been a number of years since I had any outbreak in the genital region so not sure why only new areas on body. However each new outbreak is causing more pain for longer in the region which is slightly worrying - but more annoying than anything. On another note my GP wants to send me to a internal doctor (Specialist here in France who has more advanced training in some areas) to help with diagnosing what is going on. She suspects it’s immunological but is going to wait until results come back for drug resistance. But nice they are now listening to me and taking some action to help.

Hi all. Back from a weeks leave but still no test results. Will hopefully know end of week.

Hi everyone. Seems to me that resistant may become more of a thing considering most of us are taking anti virals. Definitely keen to learn more and until now have just taken famvir as the doc has told me too. For a few months I was taking only 1 a day. my outbreaks did start up when I stopped taking them but since then it’s just slowly getting worse - each outbreak a little more painful. Today I finally found a doctor to take me seriously and he took some scrapings of my leg and sent them to a specialist lab in paris to test for ani viral resistance. He did seem to think it was possible given the monthly repeat outbreaks (one month leg, next month butt cheek). I will report back anything that seems useful to share with the group.

Hi @Lucia22 Great post and I am sorry what you are going through. I was going to post that I too am going through the same thing and it’s incredibly frustrating! Hope you don’t mind adding my story to your thread. I was diagnosed with Genital HSV 2 and had a serious outbreak so have been taking famvir for a number of years now as a preventive provided by my Dr in Australia after he decided that the medication worked better for me. Possible too long circa 6 years however. Fast forward to moving to Paris, France late 2019 and go to the doctor for anti virals and she tells me here you can’t get anti virals them unless you have a number of outbreaks. I think “ok why not go off then”. Timing wasn’t great with the start of Covid in May 2020 and I had a serious out break on my butt cheek and right thigh! Lucky I had some anti virals saved just in case which helped at the time. Weirdly the virus has found a new pathway to new parts of my body. Since then I have been on acliclovir and have been having repeated outbreaks alternatively on my butt then thigh about every 4 weeks. The Lastest (current) outbreak on my thigh is the worst I have had and very painful and quite a large area for last 6 months I have had this hamstring pain which comes and goes. Very similair symptoms. Sorry for high jacking this thread but seems some people on here have or can offer some good insight as to this. I have had no genitals outbreaks during this time either! Which is even weirder, just in right leg and left upper butt check Having trouble here in Paris getting a proper answer or suggestions. Blood work all good just low b12 also. A specialist at the sexual health clinic told me to relax and maybe consider moving back to New Zealand!!! Very frustrated by that response 😬 Another reasons for high jacking this thread is that we are moving to London soon (September) so I am keen to engage and talk to a specialist so welcome any clinics or private practice anyone can suggest. Will be based in SW London. Thanks all and again sorry for high jacking this thread. I hope you find some answers and relief soon.