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tiredgirl

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  1. So a little about me first: I’ve had (assuming HSV2 for 2 years now, as I’ve never been able to get a test), the first year I had no outbreaks, no problems, nothing. Roll on a year and I’ve develop full body tingling, and random outbreaks all over my body. ALL OVER. My “outbreaks” are atypical, mine look like pimples, they appear in one singular spot, and they appear everywhere but my genitals (lol can you believe it). I get them on my arms, legs, neck, back, face, etc, and the tingling and nerve buzzing hasn’t stopped for 8 months now, even when symptoms aren’t present. anyways, I know hsv can cause neurological problems, and it feels like I’ve become the unlucky one in this scenario as I have every neurological symptom going. I experience tinnitus, visual problems, balance issues, full body tingling, burning, migraines, etc… 24/7. This came on ever since the spots appeared on my body and it hasn’t stopped since, so I’m quite tired and fed up. I’m a healthy individual, I take my vitamins, I eat clean, I rest well and I’m very holistic and try not to stress, so I don’t understand why I’ve been affected so badly from this. Basically, I’m asking for help. I live in the UK and they do not test for hsv here without symptoms, which I don’t really have, I’ve requested blood tests but they just won’t give them to me. I want to go on anti vitals but without proof of hsv, I can’t go on them, also I don’t know how to navigate getting help for this? I’ve been in and out of hospitals for months, trying to see neurologists, but no one will listen to me when I say I think this is all from hsv. Sexual health professionals tell me you can’t spread herpes after the initial outbreak/without symptoms… also a lie. I started off with one spot on my buttock and now I’m infected head to toe in random places, it makes no sense to me. i just need some help and some guidance, because even my partner doesn’t believe it’s hsv (he is the one who gave it to me, he’s my only partner) as he doesn’t even show symptoms either! I know! My life! Any help, support, guidance, or anyone who’s going through something similar is appreciated. Thank you & take care x
  2. Hi all, Thought I’d reply on here. Sorry to hear that some of your are going through something similar. Unfortunately I am just getting worse and worse. I’ve had my blood done, MRIs done, all normal. No answers. Nobody will even give me a test for herpes as I don’t show any symptoms, or If I do, it’s one spot like bump and gone within a day. I have tingling, buzzing, burning in my back, legs, shoulders, arms, and face. This hasn’t stopped for months, I’m borderline suicidal at this point, I just want it to stop or atleast someone take me seriously, but nobody believes this is related to hsv, but I know it is. i now have hsv2 on my face, which has made my vision and hearing worse. I also have a constant electrical current feeling in my head, presumably where my ganglion is, where hsv is laying - same to my sacral ganglion too. I’m honestly just over it all now, I can’t seem to find any help or answers. Sorry to depress you all. people really need to wake up and realise hsv can cause neurological symptoms, as my “breakouts” are literally one pimple that’s gone in a few days, but yet I’ve been left with constant nerve pain all over my body, tingling sensations, tinnitus, visual blurriness, headaches and general wellness being completely off, it’s a joke. take care all <3
  3. My whole body is buzzing, it started randomly 3 months ago in my tailbone area and now it’s in my feet, legs, hands, arms, pubic area, and now my mouth. I’m lost and I don’t know what to do 😞 Im in the Uk so no one will give me a blood test to even confirm hsv2 even though I’m positive I have it. Me & my partner are both asymptotic and use protection so how the hell is this happening to me? Could it be something else? How can herpes cause this? I’ve barely had any outbreaks and now it feels like my whole body and nervous system is damaged. I’ve been referred to see a Neurologist but it could be a year wait and in the meantime I’ve just been left with no answers and I’m scared. 3 months ago I was happy and healthy and I’ve had herpes since 2020, so why now? Im not even joking my whole body is buzzing 24/7, I’m having suicidal thoughts at this rate. Can someone please help? 😞
  4. I had two mild outbreaks last year! Since then I’ve had the occasional tingling or little dot here and there but as of a month ago I had whole body tremors, buzzing and tingling in the effected area and all down my legs. That went on for a month, it then stopped for a week, it seems im now going through an outbreak again and the sensations have come back - it’s all really weird. Thank you for your help!
  5. Hi, The past month I’ve had burning, tingling, buzzing around my area of first outbreak (lower back and buttocks) and I’m assuming this is either neuropathy or post herpetic neurgalia. I just wondered what my next steps should be? Should I consult a doctor? thanks!
  6. Hi, I have very mild sacral hsv2, only ever had one outbreak but do tend to get tingling a lot down there with no outbreak. My question is, you you transmit herpes yourself to other areas of the body? I see differing opinions. for example, say I touched the area of my original outbreak and then touched my thigh, would it spread to my thigh? I just wondered in terms of transmission and being safe when intimate. if anyone could help I would greatly appreciate it! 🙂 thanks x
  7. Hi Grace, Thank you for the lovely words - I appreciate it. With all of this said, I have had these conditions checked out and I think these came on due to loud music abuse and stress over the years, but thank you anyways! With reactivation, I make sure to keep my immune system in good check and when this “reactivation” occurred 4 weeks ago, I had no stressor that I could think of. I also haven’t had any redness, sore, itchiness at all - hence why I’m worried. Can this actually happened? I’m terrified. I was under the impression that HSV couldn’t cause nerve damage, atleast thats what experts say. But since browsing this forum, it feels like people are saying differently. My first outbreak was so minor I wouldn’t of even noticed it, so to go from that to full blown nueropathy when I’m a healthy person? I’m so confused and worried 😞 I’m assuming I have HSV2 as I’ve never had any oral signs and I caught it from my long term partner when having unprotected sex once! But I am booking myself to get a blood test to get some clarity. I really just want to know if I should be worried or not? It feels like my whole body is crawling of tingling all of the time and it’s been so debilitating and has caused me great emotional and professional distress with not being able to sit down without feeling like my legs are shaking. I’m trying to stay positive and praying this isn’t permanent but it seems like I can’t get a straight answer anywhere or even knowledge as to why this is happening. Anyways, thank you for your time and I appreciate your support ✨
  8. Hi, I’ve had Hsv (never tested, but pretty much confirmed from physical symptoms) for 18 months. I initially had a tiny outbreak on my tailbone area last year which cleared up within a few days never to be seen again. Since then I’d had no other outbreaks or issues until 4 weeks ago where my tailbone area started to tingle/buzz. Since then, I’ve had a buzzing/pins and needle sensation in my tailbone to my feet and it’s driving me insane. I’m really worried it’s nerve damage or post herpetic nueropathy and it’s making me so upset. I just don’t understand why it would happen suddenly after having the virus for so long with no outbreaks? Can anyone help? I’m worried sick and I don’t know how to get help for this as doctors aren’t taking me seriously or even noting that it’s herpes causing this. If anyone could shed light I would appreciate it greatly, thanks.
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