Laura01

Thank you for the suggestion. I am going to look into it.

Yes, I work with a therapist who is helping me get through this and have told my mom but I feel it consumes my life right now both physically and mentally right now. Since therapy is once a week that leaves a lot of time that I struggle with my thoughts and pain and my mom doesnt fully understand and I feel like it stresses her. Ive been too afraid to disclose to friends at this point. As of now the doctor hasnt suggested any specialists she just keeps telling me we need to get this under control and make a plan, but Im seeing her either weekly or biweekly. I asked about seeing a neurologist but she doesnt think I need to see one just yet. Every time I feel a little better something else seems to then drag me back down. Im SO grateful for your responses you dont even know. Thanks for your continued kind words and support 💓

Hi! My doctor said it was more of an irritant from dry skin in the outer folds. She said it wasnt another outbreak which was my fear but this never ending of pain, cuts, and nerve issues is pushing me past my limits. She prescribed a cream to apply but thats also irritating its like a no win situation. I know it “gets better” just so hard to picture that right now. Its been seven weeks since my first initial signs of an outbreak, a misdiagnosis by the er and another doctor before finally being diagnosed. I really didnt think it was possible to still be suffering. I appreciate your kind words and response. I feel so alone and depressed and dont know what else to do anymore.

Thank you for your informative response. The doctor wants me to come off the gabapentin in one week to zee how I react. Needless to say Im terrified. She doesnt think I need to see a neurologist at this point and I will ask about getting my pelvic floor tested. Yes, also have been loading up on supplements. I cant believe in this day and age there doesnt seem to be better treatment for this. What a stressful condition both physically and mentally.

I was diagnosed with herpes about 6 weeks ago. After a hosptial stay, and continued nerve pain thats being treated with gabapentin, I just went to the bathroom and noticed a cut near the top of the labia. This happened once before very close to the time of my initial outbreak and the gyno said they werent sure if it was an irritation from the yeast infection cream I was using or a healing lession. Since the area had already healed partially she didnt think a swab would be accurate to determine if it was another outbreak. Im on Valtrex at the moment as directed by my gyno to prevent another outbreak since Im in a lot of pain from the nerve pain and she doesnt want the pain to lead to stress that would cause an outbreak. It seems no matter what I do theres a new problem or cut or issue. Has anyone else had an experiece similar to this? Suggestion? Help? Any guidance or information at all would be greatly appreciated.

Thank you for your response. How do you deal/cope with your neuralgia? Yes, I am on valtrex right now for 10 days. My doctor said since pain is a stressor she wanted me to take the valtrex to prevent another outbreak. Thats intetesting to learn that valtrex can cause some neuralgia/neropathy symptoms. As if the nerve pain isnt enough I just noticed pain from another cut near the vaginal area. I see my doctor tomorrow, but am unsure how to go on like this. The pain never ends nor do the physical outbreaks it seems. I really wonder how people cope with this. I appreciate your response and knowledge it gives me some hope that Im not alone.

Yes, I think seeing a neurologist is a good suggestion. My doctor has mentioned post herpetic neuralgia as a cause for this continued pain. Thank you for attaching that article it sounds just like what I am experiencing. I just cant believe that even though the lessions have gone and every thing I read talks about how the next outbreak wont be so bad still being in this much pain for four weeks after the lessions healed is just so discouraging. Its just this never ending trauma. Im so depressed and in daily pain. I cant believe this is my new daily life. This is all so devestating. Thank you for your kindness and support its much needed and much appreciated 💓

Hi Grace, I cant thank you enough for your kind words and prayers. Just knowing that there are other people out there that are experiencing this too helps to know Im not alone. Yes, ive tried heat and ice and they have been super helpful. I worry about returning to work… idk how anyone deals with this and goes to work like normal. This has been an extremely trying time but your response has made this a little easier. Holding on to some hope this will get better 🙂

I was diagnosed with herpes in July. The outbreak was so bad I ended up being hospitalized. Ive been suffering from unbearable nerve pain for the past fews weeks. My doctor has now prescribed gabapentin for nerve pain which has finally lessened the pain. Ive been told since my initial outbreak was so severe this is normal and will take time for the nerve pain to go away. Has anyone else had a similar experience? The pain meds have helped but I still worry about the duration of this pain. Im also terrified of another outbreak. This has just been a tortureous five weeks and any hope or similar shared experiences would be much appreciated.