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MMissouri

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Everything posted by MMissouri

  1. Sorry! I was genuinely curious because there are people with autoimmune issues that ask for guidance and I thought perhaps you had some insight. Part of it is because I'm very into the pros and cons of treatment and part of it was I thought maybe you didn't realize that the antivirals were not necessary for some people. I learn by asking questions, but I'll refrain from asking anymore.
  2. I agree with Sail. And if you aren't 100% into moving on, maybe that's the reason for the failed disclosures. Maybe it would be best to take some time for you.
  3. I eat almonds! And chocolate..and coffee.. and alcohol. Food does not cause any issues for me.
  4. If your outbreaks are manageable, why would you want to take the antivirals since they could cause further heath issues for you? Just curious! It is essentially your decision, I just hope that you realize that they aren't a "have to take" but more of a choice.
  5. Never heard of that before @stilladjusting, but everyone reacts to meds differently.
  6. I can second that I've never heard of a urine test for HSV. You can be tested for other STDs through urine though (trich, gonorrhea, and chlamydia). Perhaps they are testing for everything?
  7. @stillstruggling. Love it. Couldn't have said it better! (I'll try to be aware of my use of adjectives in the future also, very good points).
  8. It's tricky. Some people get hit in multiple places, some don't. We aren't sure why this happens, but there are ideas (Immune system status, length of time you've had it, etc) My husband had oral herpes, about a year into the relationship I found out I have genital, and we never used any precautions other than abstaining during an outbreak. To this day (18 yrs later) we've never had an outbreak in the opposite area. And he was a horrible nail/cuticle biter, if anyone would get whitlow you would think he would have it. But then you get people that get it in every location possible. There really is no one answer for that question, sorry. The swabbing on her would be pointless if she didn't have anything to swab. The blood test (assuming shes had it awhile) would be the best bet. Was it an IgG type specific blood test? And with herpes you can carry it and never know. Although she had an ex with cold sores, there is a possibility that she may be negative. Just wanted you to keep that in mind.
  9. 1. Yes, it's more likely to catch HSV1 genitally through oral sex. 2. Since you have HSV1 genitally, I wouldn't worry about getting it orally. It can happen, but oral HSV1 is so common that people barely blink at that diagnosis. As for the fingers, its very rare to get whitlow. Just be mindful of any sex during outbreaks (but you said she was negative so far? So she may not be your giver?) 3. During the first year, it's common to have multiple outbreaks. The skin should heal up after awhile and things should look normal. Did they swab you? And how did they test her? Blood test?
  10. I've never heard of someone taking them only at the beginning of the month. The usual seems to be daily or at the beginning of (length of) outbreaks.
  11. We can all relate to what you're going through stigma wise. I was just hoping that your reasoning was the stigma, because if you can change your thinking then you'll realize that the physical symptoms are not life altering (for the majority of us). Why can't you drink? I don't remember seeing anything about alcohol and antivirals?
  12. I love your outlook and I'm glad you removed yourself from the relationship, it sounds toxic. I have to admit I'm curious about your treatment plan/options. Since antivirals are harmful to you, and you have autoimmune issues, what is the plan for the future? Are you going to wean yourself off of them eventually?
  13. Mine is going to be persistence! I have so many things going on that I often get overwhelmed and end up doing nothing. I think I'm going to put it on the mirror also :)
  14. I love this! I'm going to think of a word I need for the upcoming year.
  15. That's the best thing to do! You're welcome! Keep us updated.
  16. I would think that the outbreak would happen in the midst of all your symptoms because your immune system is busy battling what is going on, and weaker for that. Penicillin would not help with herpes, so if your symptoms are getting better, odds are that's not it. It sounds to me like you are just sick. I would just focus on getting well. If you are still worried about your status, by all means get tested.
  17. If you have genital herpes your mouth is safe. You can kiss and give oral without worrying about transmission. HSV2 prefers the genitals, so it's more common for genital to genital transmission. I think the "rare" transmission from oral sex that you are referring to is that if someone is performing oral on you, then there is a slight (rare) chance they can get HSV2 orally.
  18. I had repeat c sections as well. Nothing to do with herpes, but their reluctance to come out lol. And yes, the risk is during vaginal birth. I took the antivirals anyway (even though I knew my last would be a csection since my vbac ended up going nowhere) just for a peace of mind. There are many woman on the forum that have had successful vaginal births with no consequences. I believe the risk is mainly with those that get herpes in the last trimester. You're very welcome!
  19. @needhope_ I didn't think you were looking down on people with herpes, but that you were looking at how to adjust to your diagnosis and all the negative feelings people tend to deal with after diagnosis. Your mom sounds like a strong woman, and I bet you have a bit of that in you as well. Like hikinggirl said, there isn't a method that 100% prevents infection (other than abstinence, but even that can be argued since HSV1 is normally acquired in childhood). Hang in there.
  20. The older we get the more likely we are to have herpes. Don't feel alone in that because you're more likely to find other people with a positive status in your age group. I don't have the numbers on it, but someone will surely pop up with that information soon. Go to work. Keep dreaming. Nothing will really change in your life other than the fact that you might have to have what could possibly be an uncomfortable conversation with potential partners. It's not an additional expense really. You can take antivirals if you wish, but it's not something you have to do. You can get l-lysine if you'd like. It really depends on your outbreaks and what you are comfortable with. Try not to get ahead of yourself with possible bad things that could happen, bad things happen all the time, it's how you choose to deal with them that will impact how they affect you. What do you do next? Learn as much as you can and talk as much as you need to. It's an adjustment, but the more you know, the less it seems. Welcome to the forum.
  21. My pregnancies were like any other. I had three girls post diagnosis and they are all fine. I don't normally take antivirals but the last few weeks of pregnancy they put me on them just in case. When you go into labor they will do an exam to make sure you are not having an active outbreak. If not- things go on as normal. If so, they will talk to you about having a c-section. Congrats!
  22. They don't recommend using blood tests to tell you how long you've had it. With that little disclaimer, you could very well do that.
  23. @needhope. Maybe your inspiration is right next to you. Your mom is also a carrier? Do you love her any less? Feel she deserves any less in life than the next person? Do you find her tainted? Disgusting? Or any other negative thought you can tag onto herpes?
  24. There are so many reasons why they don't test pregnant people without signs or symptoms. Optimist has some good points. Really, the blood tests are not reliable in the way that we would like them to be. Even the select and western blot have issues. So unless the woman giving birth has signs or symptoms of an outbreak, it would be exactly like routine testing- unreliable, cause unnecessary panic, and ruin lots of relationships. The more I look into the testing and the rates in which mistakes can happen, the more I understand the CDCs standing. I would love for herpes to be added to the routine panel just to kill the stigma associated with the virus- meaning the more people that test positive the more the stigma would have to die down. But realistically, it would cause many problems, because the testing just isn't where it needs to be. It would harm more than it would help.
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