Danaaaaaasaur

Danaaasaaur, Were you ever healed? I am experiencing similar nerve pains. Please let us know. It has been 5 weeks now for me Hi Fonda! I'm sorry you're going through this. I can 100% confirm my pain has almost all gone away :) but it did take about 2 years before it got a good deal better. I had next level pain though so hopefully yours isn't so bad, even if it is please know it does slowly get better :) Have you been to the doctor about it?

Thanks so much for posting your story! :) I'm sorry you had a rough time to start with. I was just wondering which medications you were on to stop the pain? I've had post herpetic neuralgia for almost 2 years and I'm not sure I'll ever be able to fix it :( x

Hi So basically I've been on suppressive Valtrex ever since I was first diagnosed in Sept 2014. I've just recently lost my job so can't totally afford to pay for them so I thought I would give not being on the suppressive Valtrex for a while and hopefully give my body a break. I thought I was doing well 3 days in then bam! I found a sore. Should I jump straight back on the Valtrex? Or should I just wait a couple of months to see if my body does get a better handle on it? Thanks :)

What is with doctors saying the neuropathy is only ever on one side?? Mine certainly isn't just one side!! And I was 23 when this pain started so it's not just a super old person thing. Mine is from HSV2 but my doctor knew straight away that the herpes caused it thankfully. It would be hell to have to try and convince a doctor that it's not just shingles that causes this! Hope you get some info soo @tooold :)

Have you been tested for shingles? A lady at my mums work who is pretty much the same age as you had shingles on her face which presented as a rash. I myself have neuralgia so I get the tingles and the burning/ pain. So I definitely know how sucky it is!! :)

You are amazing! Thank you for posting :) x

How did you fix the discharge? @wcsdancer2010 I'm currently having to insert iodine pessaries for 4 days a week and it's not overly helpful :(

Hey @As89 it looks like problems falling asleep can be associated with your meds. Chec out the link which lists all of the possible side effects. Not sure how to fix it though...maybe there's a vitamin of some sort that can help? http://www.drugs.com/sfx/valtrex-side-effects.html

@2legit2quit That actually happened to me when I watched Lets be cops with a date. Talk about awkward! Haha Congrats on the disclosure @sunshinegal Be sure to keep us posted :)

I'm in the same position as you so you're not alone :) I'm going back to my infectious disease specialist tomorrow to chat about it

@2legit2quit She stated above they were within the last 3 years with one still taking place. Either way it's up to you @Bambina3 to make the decision. I agree with Dancer on letting your recent sexual partners know about being recently diagnosed with HSV though so they can get tested and look out for their health :)

Make sure you get tested for HIV again at the 4 month mark because those antibodies take 3-4 months to show up too (I'm sure you'll be fine though just as a precaution) :)

My first couple of outbreaks I got the swollen groin lymph nodes which was surprisingly uncomfortable!! Have you been more stressed lately or been exercising more or anything?

Just woke up with another outbreak :( 3rd one in a row. I Just hit a year with this as well. I really hope something changes soon because this is just awful! Mine have been in a different location each time. Do you guys get just one blister each time or clusters?

Hi I was wondering if anyone else out there has had back to back outbreaks while they're on antivirals?? This has just happened to me and I'm not sure why?? I have felt a little bit under the weather since the weekend and donated blood a week and a bit ago...could all of this have contributed?? As far as I've noticed it hasn't happened like this before except when I went off the antivirals for a few months. Any help or suggestions on how to stop the stinging would be much appreciated :(

Have you tried an infectious disease specialist @baseballfan ? That might help to rule out whether it's the HSV causing it.

It will be ok don't worry :) x

Really really really uncommon. Wiki says It's a 1 in 50,000,000 chance. What's got you freaked out about it?

I'm sorry you & your wife are going through this it must be really tough :( I remember seeing a guy on a different forum who had herpes & ended up being diagnosed with EM along with something else...I'll see if I can find it again just in case it's any help. Also I'm not sure what you've checked out on the Internet (or what treatments your derms have tried already) but this article talks about a trial where people were infected with herpes & had recurring EM. Not sure if it's any use at all but it is an interesting read at the very least http://www.aafp.org/afp/2006/1201/p1883.html I hope the EM clears up soon!

That's the dosage I was given for my primary outbreak of HSV2. Had you gotten a script from her after your primary or did you go straight to planned parenthood? She probably just did it accidently but a couple of extra pills might be handy in the end :)

Awesome! Thanks for sharing :)

Thank you so much for the responses! It really helps to know that other people get outbreaks spread out all over the place too :) I honestly have never seen a female condom..I never knew they existed until I came on this forum! Hopefully being on antivirals & using condoms will minimise the risk by a lot .. Fingers crossed anyway! :)

Judging by the tone of the first article I think there main concern is stopping the spread of HIV and HPV so I could definitely see how it could make someone feel safer using them :) However it would be more difficult when it came to herpes. Bummer about the irritation as I've still got neuralgia so it's quite sensitive down there so Im pretty sure i would be one to get the irritation!

Hi I was just wondering where other females have there outbreaks? My very first outbreak (almost a year ago now - how time flys!) was pretty horrible where I got them at the start of my Labia on both sides and around the opening to my vajayjay. As I've had more outbreaks I tend to only ever get one sore at a time but it seems to have spread further back to my anus and the skin inbetween both parts. Is this normal? Also because I have had outbreaks at the the very top part of my vagina where the labia starts am I more likely to pass the virus on as this can't be protected by condoms? I'm on antivirals but will that reduce the risk enough? Or should I avoid certain positions like missionary so there's no body on body or skin to skin contact there? I haven't slept with anyone yet because I'm pretty scared I'll pass it on accidently. Thank you :)

I'm from Aus and would be really interested in knowing if these are really that effective too :)