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Joanne

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Everything posted by Joanne

  1. i got very sharp painful stabbing pains in womb area and back passage area, then very itchy sore vulva - within 3 days of start of OB (which was mild at first) i came on period. Un-bloody-believable. after period thats when the herpes stepped up a gear and went pandemic.
  2. hi guys!! thanks for your positivity - must be working as today for first time in near 4 weeks feel FABULOUS!! Am now on medicine i demanded from doctors thanks to this wbsite and other ones (GP was non-plussed when i arrived in his surgery with list of medicines i wanted!) he finally gave me a huge box of Gabapentin and extra aciclovir (so i can self medicate as soon as feel symptoms in future) he also insisted on giving me high strength anti-allergy tablets as he was insistent the itching was skin and not a damaged nervous system problem - i am now on day two of gabapentin (generic dosage is: 1 tab 1st day, 2 tabs 2nd day, 3 on 3rd day, 3 everyday thereafter) and this drug WORKS! i took tablet walking out of pharmacy and within 20 mins 70% itching subsided ..... after 5/6 hours i could feel itching returning and that night it seemed worse than ever, despite taking strong anti-allergy tablet (it did nothing) it came back with a vengence and i got no sleep, in fact at one frenzid moment at 4am i had to stop myself scratching and gouging my raw skin between my butt crack with a fork .... ouch .... i counted down the hours pacing until reached 8am this morning when took day two 1st tablet - within 30 mins i was in bliss - no itching!! nothing bar the occasional twitch. i slept for 5 hours and woke fine - despite back ache (at bottom of cocix) i had no itching - i could even put on jeans - rather than jogging pants as felt didnt need to get easy access to scratch! i have just taken 2nd tablet, its 10.30pm here in England and i cant wait to get in bed!! The relief from the itching/electric shock/bubble feeling/insect feeling/twitches and jerks is immense. i have felt brilliant all day. focused and positive but exhausted and drained, however life is easier with sleep. I still have problems peeing - it feels like ''will it wont it?" and its SUPER itchy on vulva when you touch it with loo roll - and my poo is still constipated and has a mind of its own - going once a day with laxitives, but v dry and as still completely numb in whole genital region (my ass hole is worse - honestly you could stick a foot up there and i'm pretty sure i wouldnt feel it - no joke) i do not know when a poo is coming either, other than feeling my gut twinge about 3 seconds before a start pooing - and then it just all comes out automatically until its empty. i am like a baby. Yes, i have had accidents, but am lucky in that i work from home. How the hell you would hold down a job when you have an outbreak like this is unthinkable. i will keep you posted with results. i aim to wean myself off aciclovir from this friday, and will give myself a week on gabapentin before i try to wean off that! in meantime i have also booked nutritionist to give me full service and hair sample test to see what body is lacking in. They say Elsberg / PHN only happens really to comprimised immune systems. mine is not - blood tests say so - but maybe i need more vitamins!? xxxx
  3. hello Katie! many thanks for replying to my comment/thread. i am amazed and feel its a great thing that we all muck in and help understand this 'herpes' disease which seems to manifest itself however it chooses!! sufferers know and hold the answers. yes, i tried piriteze, one tablet a day for 3 days - i was thinking around same thing - anti allergy - but sadly it did zilch! - this is what led me to researching 'fake itchy skin' /nerve damage. been awake all night on google - and results are in! - it sounds like i have Post Herpetic Neuralgia (PHN) - every single symptom described rings true to me - i also think i was borderline Elsberg syndrome - or suffered it - altho it only lasted 3 days with urine retention and complete constipation ( i was totally paralaysed). my other symptoms are also very extreme - my leg ache for example and 'jelly bones' made it almost impossible to walk over 15ft unaided. i had fever, agonising lower back ache and itching/burning/serious genital pain inc. piles! my feet were super sensitive and i felt like death. i would toss and turn every second of the day, was bedbound for 5 days and would have scratched down to the bone if i was stupid enough. i believe i was terribly unlucky and the virus hit me so hard. been on aciclovir 1 week and feel turned a corner but nerve damage is holding me back - a lot! however, tomorrow i have docs appoint at 10.15am. i am going to ask about epileptic drugs and antidepressants - it seems there are couple of these drugs out there that can ''turn volume down'' on PHN although treatment can last anything from 3 weeks to 3 years :( or indefinatly ...... (also googled how to sue bfriend who gave it to me! hahaha - but sadly here in England no one seems to do that) - to sum it up - AS SOON as you feel an OB coming on - get on antivirals as leaving for 3 weeks like i did has done severe damage to my nervous system in my sacral region/spine and god know how long my nerves will take to recover - in meantime i am a sufferer of PHN. so sorry for typos but not slept for 46 hours and run an equestrian farm so knackered!! (maybe that is why am so affected by this OB?? - rundown/stressed/worn out?? - even tho i take vits& minerals every day) will keep you posted!!! x
  4. Hello need some advice! how long does the itching last?? i need sleep!! im 33yr female, very petite and husband gave me virus after he had affair 5yrs ago. Am 3 weeks now into 2 'attack' - been a week on 800mg aciclovir 3 times daily, can now pee / poop ok ( admitted to A&E 1 week ago with urine retention - they cathed me & drained 1.3ltrs - also gave me 'stool softner' - my gosh they work!!) feel million times better BUT am faced with chronic itching off my poor bum crack, anus, buttocks and my cervix is still v itchy too. also, this area is very 'numb'. weirdly my feet are also mad itchy. its driving me NUTS. Been like this 3 weeks now and showing NO sign of leaving. cannot sleep - worse at bedtime - tried heat (i think it makes worse) cold flannels (5 mins respite then BAM back times ten) - my skin is raw and i am drawing blood. tried topical creams, salt baths, oat masks, painkillers, massage therapy you name it - nothing working. i read that it is nerve damage from sacral region - which makes sense as this is why could not wee and poo - nerves swollen and infected with virus. does anyone have any advice?
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