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whiteshadowcgb

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Everything posted by whiteshadowcgb

  1. AIC316 (pritelivir) took a dump in clinical trials. A participant stated she thougt it was due to toxicity. :( boo. I guess all the veteran 'h' people are correct in saying (don't get your hopes up) F@*# herpes!
  2. You sound stressed (with good reason) try taking a deep breath and do relaxing things. Stress can do a lot to the body. I know when I get thinking I get "symptoms" I know its hard but hang in there. And NO GOD doesn't hate you. 'if he brings you to it, he'll help you through it' God only gives you what he knows you can handle. Be strong and fight the fight. My body is going through a lot of changes as well (Feb was the encounter) hang tight, eat right and focus on relaxing.
  3. I mean at this age its not going to matter whether or not he has it.
  4. To error on the safe side, let's just say this is "h" its summer. How can I get this gone and him off to.school? I'm really not buying into the chicken pox. I'm afraid to have him swabbed due to him only being 6 I really don't want to get social services involved plus the pediatricians around here aren't knowledgeable. I'm just fearful for other children at school. I'm pissed this is even an issue
  5. I'm getting extremely freaked out here. I believe I contracted hsv both oral and genital. Now my son has blisters on his nose which spread to his forearm from rubbing his nose. The dr said chicken pox but that's just way too coincidental. In addition. A gentleman I kissed is now experiencing night twitching (my son and I are also experiencing the same thing) I thought it was easily transmitted? I'm dying a little more everday and no one can help me. IF my son and this gentleman contracted hsv2 from me does that mean eventually they'll get it genitally? This has got to be the weirdest case EVER. I feel like a monster and am thinking about legal ramifications for my giver as well. I'm an emotional wreck for my sons health and the gentleman I kissed. What does the future hold as far as outbreaks? And location? I certainly don't engage in sexual acitivities with my son. I don't even help him bathe and after the "h" fear have limited the hugs/kisses. We never reuse towels. My hands are dry from constantly washing. I just want to die and sue the bastard that did this. As a mother its hard to watch my baby's body jolt while sleeping. My whole world is upside down, I can't even work.
  6. The purple tube of desitin has zinc in it. Apply that. Helps me with burning and "h" doesn't like zinc.
  7. I've been doing some reading regarding all herpes and when people have a reactivation of Epstein–Barr virus liver enzymes elevate which can cause itchy skin. Might want to have your Dr check those levels regarding itchy skin.
  8. 16 weeks is appropriate timing. If test is still equivlicol you can confirm with a western blot from university of Washington or Terri warren and the Westover heights clinic.
  9. Thanks for signing. If all the estimated people that have been affected sign it, that may start to fuel the fire. Even if its years from now.....
  10. I've been reading that viral infections can trigger autoimmune diseases. I'm dealing with pings and pangs all over my body thyroid pain (test normal) unexplained swelling of my eyes at night, gland pain. I'm going through a plethra of "symptoms" and was fine before this hsv thing came about...everyone says its not related. Maybe see about a neurologist referral?
  11. I'm hoping it's closer to 5. There haven't been new medications in 20+ years.
  12. They are basically the same. Valtrex is a pro drug which turns into acyclovir during digestion.
  13. They're still enrolling for aic316 I wish I lived closer to a site. Filling enrollment seems to be a challenge.
  14. I am going to send you a personal message :)
  15. aic246 ----It's a drug they made and got it fast track approval for it. This current study that are doing isn't required by the FDA so I was wondering why they are doing it. The trial is basically comparing the two drugs. So deep in my pea sized brain I was wonering "why" then I little light bulb a 10th of the size of my pea brain came on and said "hey" maybe there is more to than we are being told and they are doing this so they can show significant superior results that AIC316 is in fact a better drug and should be fast tracked. I don't know, just a thought. Was wondering what others thought about idea.
  16. prayerful, I think you know the answer to this. Just because you have this condition doesn't make it acceptable to be disrespected. There are MILLIONS of people that are just like us. And shame on her for using that against you. You are MOST definately better off without her. Chin up :)
  17. "Fast track is a process designed to facilitate the development, and expedite the review of drugs to treat serious diseases and fill an unmet medical need" MY THOUGHT: There haven’t been any new treatments in the last how many years? With 2200 new daily cases it is time we start taking preventative measures and also find treatment for those already affected. "Determining whether a disease is serious is a matter of judgment, but generally is based on whether the drug will have an impact on such factors as survival, day-to-day functioning, or the likelihood that the disease, if left untreated, will progress from a less severe condition to a more serious one." MY THOUGHT: This disease has caused havoc among young teens and college aged students. We need to find a way to STOP it. The disease itself may not be “life threatening” in itself but it surely leads to serious problems ( depression, suicide, neonatal herpes, the risk of HIV becomes 3-5 times more likely) Sexual education just isn’t enough these days and MOST of the Dr.’s I have seen when first being diagnosed didn’t “think” I had HSVII and clearly stated “you would know, you would have sores, feel REALLY ill” (not my case) In addition, the standard STD check doesn’t include testing for HSV. ****So I have to ask, “who/what is protecting us and our children”***** Any drug being developed as a treatment or preventative measure for a disease that does not have a current therapy is labelled as an unmet need. If there are existing therapies, a fast track drug must show some advantage over available treatment, such as: • Showing superior effectiveness • Avoiding serious side effects of an available treatment • Improving the diagnosis of a serious disease where early diagnosis results in an improved outcome • Decreasing a clinically significant toxicity of an accepted treatment A drug that receives Fast Track designation is eligible for some or all of the following: • More frequent meetings with FDA to discuss the drug’s development plan and ensure collection of appropriate data needed to support drug approval • More frequent written correspondence from FDA about such things as the design of the proposed clinical trials • Eligibility for FDA Accelerated Approval, i.e., approval on an effect on a surrogate, or substitute endpoint reasonably likely to predict clinical benefit • Rolling Review, which means that a drug company can submit completed sections of its New Drug Application (NDA) for review by FDA, rather than waiting until every section of the application is completed before the entire application can be reviewed. NDA review usually does not begin until the drug company has submitted the entire application to the FDA • Dispute resolution if the drug company is not satisfied with an FDA decision not to grant Fast Track status MY THOUGHT: With all this being said and AIC316 doing another Phase II Study (which they didn’t need to do) I am HOPING and PRAYING that after this study they find that AIC316 is indeed superior to Valtrex and AiCuris will apply for a FAST TRACK. Am I being to optomistic? I hope not. AiCuris isn’t “new” to the fast process. Their AIC246 received fast track approval. So maybe there is “reason” they are conducting this phase to truly show that AIC316 is superior. Any thoughts?
  18. Learn a lesson from your dog- no matter what life brings. Kick some grass over that shit and move on.
  19. People already do love you!!! Remember that! I honestly an about 6 weeks into this and am remaining really positive, surprisingly. I do a lot of reading regarding this "opportunity" ( I no longer refer to it as H) You should look in the book by Terri Warren on google books. "The good news about the bad news" I am not sure that you can read the entire book but it is a good start and also her PDF at the Westover Heights Clinic website. All very information. Our "fear" comes from the unknown. Educate yourself as much as you can. You'll start feeling better (it has helped me) In addition, you have to ask yourself "are you ready for a relationship" if you're not then I wouldn't be worrying too much about the future. You're wasting today, worrying about tomorrow. All we have to do is LIVE!!! Hugs to you :)
  20. Thanks Adrial. I'm hoping SOON some kind of treatment will be put on the fast track. There are an estimated 2200 daily diagnosis. This really is an epidemic. People are not educated enough about this, me included.
  21. I'm not takimg any chances, this is MY life! I'll be damned if I make another 'mistake' trust no one...that's where I'm at right now. Trusting the wrong person got me in this opportunity. :)
  22. That's IF you sleep with someone that has HIV. I'm pretty sure herpes will make you make better choices before sexual contact. I'm screening all new partners w/paperwork!
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