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smalltown23

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Everything posted by smalltown23

  1. Thank you very much for advice. Pregnancy is hard enough and now dealing with this on top it scares me. I'm excited to be a mother and hope that my ob's stay few and far between but I understand the stress and hormone changes can trigger more. As I have only had my primary ob, I'm trying to stay proactive about any possible prodrome symptoms.. Is acyclovir safe to take throughout the pregnancy or if I take just one pill a day to maintain it? I currently take 2-400mg pills a day for treatment. I have read a few studies regarding pregnancy and acyclovir, but nothing is cut and dry so to speak. Having another ob is daunting but my baby's health is more important than a sore that will heal.
  2. Recently my SO and I decided that we want to start a family. I was diagnosed about 7 months ago with ghsv and am coming to terms with my diagnosis and am on the suppressive therapy and have only had clitoral swelling and slight itching since my first OB, but have had no lesions or open sores that I am aware of. My biggest thing with starting a family was finding a doctor who I feel comfortable with so a friend of mine who has HPV referred me to a great doctor that I met with and made me feel very comfortable especially knowing that she sees patients with diagnosis similar to mine. Thus getting us to the point where we felt comfortable enough to start a family. I worry about passing this along to my child. I have read up on the risks and understand they are very low etc. I am seeking any advice or tips on how best to handle things such as a day to day care for the child etc. I understand good hygiene and good hand washing etc. but if anyone has any advice I would appreciate it. I spoke with my doctor about keeping on the suppressive therapy throughout the pregnancy and she said that it should be safe, but that is something that will be decided when we conceive. I am worried that I will have frequent ob's (more than 1 every 2 months) etc. so any advice on how best to control them if I decide not to continue the suppressive therapy would be appreciated. If there is anything I forgot to mention that someone has advice on feel free to comment. Thank you
  3. I can relate to how you feel. I have been with the same person for 2 years now and was diagnosed 6 months ago. Came as a huge shock. Neither of us ever showed signs until I woke up with symptoms one morning. Thought I was having an allergic reaction to something and it took 2 weeks to heal but I couldn't shake the feeling that it wasnt that simple since we both get cold sores. Went to the dr and had blood work done to clear my head and then just like that my worries were confirmed. Im doing much better now then i was a few months ago (a special thanks to my therapist) and we have no intention of telling anyone. I have even gone to the length of choosing to dr an hour and half away since makes me more comfortable.
  4. I too am in a similar situation. I'm in a long term relationship and was diagnosed about 6 months ago with both. It was really hard in the beginning to resume intimacy as well. Just dealing with all of it was daunting. I was scared of every little itch I felt etc. I'm slowly getting back into the groove of things. I take daily suppressives to help reduce his risk. We were not using condoms for a while, but I recently decided that we should until we are both more comfortable with the situation. Since doing so I feel more at ease with being intimate. I prefer astroglide as lubricant. Its pretty basic and hasn't caused me any irritation. We do have oral sex, but strive to be careful. If I have any symptoms or an unusual itch etc. we refrain from being intimate. We are still learning and it definitely helps when your partner is understanding and supportive. Hopefully this is somewhat helpful for you. Good luck and if you need someone to talk to feel free to message me.
  5. I can relate to how you feel. I was with my bf for a year and half before I was diagnosed. I actually told him that he could go and that I understood. I told him he didn't deserve this. But you know what he refused to leave me and our relationship is still going strong. While I am still scared of passing it to him. We take precautions, I am on daily antivirals and I recently told him that we should start using condoms again until we are both as comfortable as we can be about the situation. It makes me feel better knowing that we are doing what we can to keep him safe. There are amazing guys out there who are accepting of this and who will love you! Let him be there for you.
  6. Thanks for all advice. And i do feel better about the pregnancy thing now to. What shocked me the most was the positive for type 2. We both get oral cold sores so I figured if anything it was type1 genitally. So when the doc told me type 2 t and i did all the normal research it was a surprise. Thats why we think it may be him and he just maybe asymptomatic bt like u all said we wnt know unless he does a test. This site has helped me alot in the last few weeks coping with it all. The support is amazing!
  7. When we went to the clinic for coaching. The doctor actually told us that she doesnt like to do the blood test if you have had no symptoms so we listened to her. Thats why he wasnt tested. She said that the odds of him not having it were slim since we had been together so long. I know that doesnt make much sense but it did at the time. It was new to us so we listened to her. He takes equal responsibility for this being apart of our lives now and we try to refrain from pointing fingers since whats done is done. I actually had a blood test done after the sore had healed because i did not have time to get in any sooner. It came back positive for both. I should note that about 9 months to a year prior to this sore. I had one in the same spot. I thought I scratched myself and it caused it. Didnt think anything of it never had another problem until this one happened and it thru up a red flag.
  8. I have been with my bf for almost 2 years now. About 5 months ago I was diagnosed with ghsv. We have a great relationship, open communication, just a very stable relationship and he has been amazing thru everything that has been going on. He's been so supportive and as understanding as he can be and we still plan on marriage and children in the future. The hard times are when it comes to being intimate. I'm scared everyday that I am going to pass it to him (he hasn't been tested and has had no symptoms so we treat it like he doesn't have it). I'm worried every time I feel even a slight itch even tho each time so far it has proven to be just be normal irritation and we refrain from intimacy when I feel anything going on down there. I did have swollen lymph nodes for the first time a few weeks ago and we refrained from intimacy until it healed. (Epsom salt baths helped tremendously). Do these fears ever go away. The thought of having kids etc. someday scares me now that I have to deal with this. I am taking daily antivirals and we have opted not to use condoms. He is fully aware of the risks (we had couples coaching at a reproductive clinic) and figures if he gets it that it would just be another thing we have in common. But it scares me because I feel like he is to good of a man to have to deal with this. Is it bad that sometimes I feel like if I had to deal with this alone it may be easier. I wouldn't have to worry about passing it on because I wouldn't want to get involved with someone... I know that sounds terrible and I love him to no end, but some days its so hard to deal with having this. Im not trying to be a debbie downer, just venting. I'm tired of being scared..I'm tired of not understanding my body right now..and I know this is hard on him at times because its hard for him to understand whats going on with me when even I do not fully understand it.
  9. Update: I went to the reproductive clinic and they pulled my records and blood test results from my first blood test 4 months ago. They did do an IGM and an IGG test on my first blood test. She showed me the papers. My results from the IGG test were positive hsv1 with about a 6.4 number and positive hsv2 with about a 10 for a number. I asked her if since my number seemed relatively high if that meant that I have had this for a while and she said it was possible. So basically it comes down to either my bf gave it me unknowingly since he has never had symptoms or I had it this whole time and didn't know. Is there anything you can add to this to help me understand it a little more? I am thinking that through correctly?
  10. Thank you for your input. I really appreciate it and I think we both will be getting blood tests in the near future.
  11. Thank you for clearing up the difference between h1 and h2. I have never been swabbed because when i went in the sores had already healed. No unfortunately I do not know my values or the type of test. At the time I didnt know much about any of this and I just asked for the blood test, figured the doctor knew what to do. Starting to wonder if I should get another blood test or just let it go.
  12. I have been on antivirals since I found out. And yes as of now we are approaching this as if he does not have it. We have debated him getting a blood test to be sure, but we have not made an appt yet. He still has not shown any symptoms. I know we should get one done to be safe. I understand to a certain degree why the doctor decided against it. We are trying to take this one day at a time. We have a very mature and stable relationship and despite everything, we still do not have major arguments and are trying to remain positive. I have a few questions just to get some clarity of some things. In order to be positive for h2 I would have to have contracted h2? So say I had a cold sore that could pass to my lady bits as H1 only? Is it possible that I could have h1 on my lady bits but when I had the blood test, could it have given a false positive for h2 when its really h1? And according to some comments on here for your blood to test positive I would have to have had it for at least the last 3-4 months prior to my blood test. So odds are that I have probably had this for the past year or so and not have realized it? I got my blood test about 3 weeks after the most recent sore appeared. Is it possible that either of us could have had this and not have realized it until one of us had symptoms? I hope my questions make sense.
  13. I would like to start out by thanking you for this site. It is by far the best support site I have found and I have come on here a lot the last few days so I thought it was time for me to share my story. For the last 2 years I have been in the most amazing and blessed relationship I could have dreamed of. He is the most supportive and caring man I could asked for. We are from a small town in the Midwest. We are well like in our community and have a great circle of friends and family. We are outgoing, busy people and we love to travel etc. What no one knows tho is that we have a secret. About 4 months ago I was diagnosed with HSV1 and HSV2. We both get cold sores orally and we thought we were being safe. About 6 months into our relationship I was taking a shower and I had an odd itch. I didn't look and just scratched it for a minute..rather roughly..not even thinking about it. When I got out of the shower I had a small sore..figured it was self inflicted at that point. It healed in about a week. I didn't notice any out of the ordinary symptoms. It itched a little during the week and slight swelling, but thought it was just from the healing process. I checked the area periodically after that just incase I developed other spots..nothing appeared out of the ordinary and life went on as normal. I told myself that if by some crazy chance another spot appeared I would go in. Fast forward about 10 months give or take. It was in the heart of our really busy season at work. 12 hour days for about a month or so straight. I had been sick with a severe sinus infection for about 3 of those weeks, but with limited office help I didn't even have time to see a doctor. Stress level was thru the roof and I was constantly running back and forth trying to get things done. It was about week 4 when I noticed something wasn't right. I got in the shower and once again I felt an itch, but this time it was a little more intense, but it was a familiar itch. Instead of just scratching it I checked things out. It was swollen in the exact same spot as the sore I had had months earlier. A few days later a decent sized sore developed etc. At that point I just figured it was rash because a few days before all this occurred I had switched panty liner brands..figured I was having an allergic reaction. The symptoms persisted and it took about 2 weeks to heal. I had an appointment with a urologist coming up in a few days because I have overactive bladder so I figured I just get a blood test done when I got there to clear the air. Part of me thought for sure it was something bad. He initially refused saying that I was probably right about the allergic reaction thing, but I wanted clarity. I would rather know than not know. My boyfriend and I had only been intimate once that month due to the fact that it is also his busy season and when I had the sore we refrained from intimacy. He called a week later. Positive for both. I immediately went on suppressive medication. The next few months were filled with all the classic emotions after finding out. I still have days where I struggle, but it is getting easier to manage. I made an appointment at a reproductive clinic where we could get couples coaching on how to deal with everything. It made us both feel much better. He has never had symptoms that we know of and the doctor opted not to give him a blood test. Her reasoning was that if we were going to continue to be together etc. what was the point without symptoms. What was that test going to change between us as a couple. If he were to develop symptoms we make another appointment. I have since been lucky and have not experienced another outbreak that I am aware of and hope to continue on that path, tho I know an outbreak is always possible. I have also decided to see a counselor since we have opted to keep this information to ourselves and health care professionals and of course this site. My boyfriend has been nothing but supportive throughout this entire ordeal. He still loves me and thinks of me the same way he did before. We took a neutral stance on the matter since we both get cold sores and it could have been either of us that accidently caused this. He understands that I am going through a lot. He accepts my status and figures if he gets it that it will just be another thing we have in common. We are slowly becoming intimate again and he knows it will be a process as I learn my bodies signals etc. I'm at that point where I'm worried that every little itch etc. is another outbreak and I'm learning that that is not necessarily the case. We want a future together with marriage and kids and we will not let this skin rash determine how we live our lives. I'd like to leave you with a quote I read. 'You will never be free until you free yourself from the prison of your own false thoughts.' This has resonated with me since I tend to get stuck in my own head about everything going on. We (and that means everyone) are not the stigma that surrounds this. We are still our same silly, lovable, and amazing selves. I'm taking the reins of my life back and while it can be an inconvenience at times I refuse to let it control me and my happiness.
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