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IsWhatItIs

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Everything posted by IsWhatItIs

  1. Yes! I was taking 500mg daily for 6 months; and developed thinning that progressed into a bald spot at the crown of my head. My doctor acknowledges hair loss is a known side affect, though rare. I discontinued suppressive therapy and after two months the hair started to grow back. Downside is the outbreaks return monthly with my period.
  2. No blister clusters, or blisters that I can remember. It was patches of redness (like a rash) with small bumps, and a few scattered bumps of varying sizes. And he said they itched intensely. I remember because I aided by spreading/applying ointments.
  3. I'm taking Lo Loestrin Fe. My period is a definite trigger for me. On this bc my period last month was shorter and lighter. The prodomes that were driving me nuts have greatly diminished, a few random leg sensations here and there... but no outbreak. Also want to note... I attempted to wean myself from Valtrex. And I experienced an outbreak very similar to my primary outbreak. So I am back on the 500mg daily, but was given a 90 day prescription to increase to 1000mg during outbreaks.
  4. Followup... started on birth control and I am going on 2 months outbreak free! It's a renewed lease on life!
  5. Testing is the best option. I will say, I have seen a herpes outbreaks on the back and buttocks, while at the time I didn't know what it was. I actual commented and questioned my giver, and thought it to be an allergic reaction. Later my giver admitted to having mat herpes as a young man. Which is HSV-2, and played ignorant regarding its contagious nature.
  6. I'm now a year post first outbreak and 8 months on suppressive therapy. Curious if anyone else has/ had experience with frequent outbreaks while on suppressive therapy. I currently take Valtrex 500mg daily, but I'm experiencing outbreaks, like clockwork. Every month: week 1) I have prevalent prodomes (tingles, burning, itchiness and swollen groin), week 2): get my period, week 3) outbreak on perineum (a special kind of discomfort)... if I'm lucky I get a couple of days (3-5) of peace. Then is starts all over again! It's frustrating, trying to find normalcy when I'm in a neverever ending cycle of "having an outbreak or just getting over it". Makes me wonder if the meds are effective. And if it is, if I stop suppressive therapy, could things be worse than monthly outbreaks?
  7. I'm a fitness instructor and weight train 5 days a week. Fitness has helped me maintain a sense of normalcy (routine) since my diagnosis last June. During my first outbreak, while I wanted to workout, I couldn't will or rush my body to do so. A couple of days after the sores cleared, my energy level increased and general achiness disappeared. Personally outbreaks affect my workouts in terms of: what I wear... self explanatory: no compression pants, biking shorts, thongs, etc. Supplements I take and avoid. I favor cycling for cardio; but, avoid it during obs, as my obs are always on my perineum. The contact with the saddle causes too much discomfort. HIIT workouts on the treadmill are a go to during these times.
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