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TreeHugger44

If it’s not HSV then what?

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Hi guys. I am at my wits end. I have had constant symptoms and outbreaks for 2.5 years now. I was convinced I had genital herpes and then also oral but I am now on my 4th negative IgG test. This last one was after 3 plus months of no antivirals. I itch frequently, especially at night, on my face and nostrils and butt and now newly my shins. Then I get red bumps on my face and butt. Repeat at least weekly. Frequent sore throat and sometimes sores in mouth or cuts like lines from nothing. Not actual cold sores.  I have seen an allergist and immunologist which didn’t turn up much. Had to see an eye specialist for new eye pain and redness. All other labs like thyroid, inflammatory/rheumatoid markers normal. Celiac negative. 
Today I received my latest negative HSV lab results and boom, 2 lesions on my butt. Any ideas for what it could be if not herpes? It’s 100 percent not a pimple, it is fluid filled. 
What else could it be? I keep trying to get it swabbed but no luck so far, urgent care keeps treating me for folliculitis (for 2 years...okay...). Any chance it’s still HSV? Appreciate all your advice. 
(also I am an RN and basically never went to the doctor for anything before this started. It’s not in my head and it’s not an exaggeration of symptoms). 

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Have you considered Hidradenitis Suppurativa?

"Hidradenitis suppurativa often shows up in skin folds, such as the:

  • Underarms
  • Breasts
  • Groin
  • Buttocks
  • Stomach
  • Nape of the neck
  • Backs of the ears

Sometimes HS can appear on your face or back. The bumps heal and then come back."

 

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