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Undiagnosed and struggling


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Hello everyone, I'm new here.

I have been struggling to get a diagnosis but I'm 98% sure I've contracted it. I am also struggling with it emotionally and mentally. I've lost about 20 pounds over the last month and not having a diagnosis is making it worse. I plan on getting tested via blood again soon.

I've seen 3 doctors and they all said I don't have it.

It started off with back pain, loss of sensation of when I need to urinate, my mouth hurts, I get irritation/rash around my mouth, watery discharge, among other things...

I'm just looking for support at this moment. 

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Hi @jacquelyn and welcome. I'm sorry you're going through it! Doesn't sound pleasant, for sure.

If all of these symptoms are indeed herpes related, then know with time your body will get control over the virus as it's producing more and more antibodies as we speak. And to be sure you have it, get the Western Blot test. IgG and other blood tests tend to give too many false positives and false negatives to give a definitive diagnosis without an actual outbreak to back that up. Here's an article on that: https://www.herpesopportunity.com/post/herpes-tests

This content is for informational purposes only. This information does not constitute medical advice or diagnosis. I'm not a medical professional, so please take this as friendly peer support. 

Helpful resources:

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