Struggling for a diagnosis

[jacquelyn]

I have been back and forth to my primary doctor, my gynecologist, urologist and now I have a referral for a dermatologist. Help.

On or around 1 September, I had severe back pain and lost the ability to tell when i needed to urinate. This is about 2 weeks after my suspected exposure. I've been dealing with some occasional vaginal irritation and itching, urinary retention, blood and protein in urine, had a positive test for BV, a viral infection in my eye, some kind of infection in my gums, I was having a rash around my mouth but that cleared up with antibiotics. I have a couple of follow ups with my urologist.

Can anyone weigh in? I am mentally and emotionally exhausted. My last 3 igg and 1 igm have come back negative. I just had another igm drawn today. I understand it can take up to months for a positive blood test. No sores or lesions present. 

[lil devy]

@jacquelynI’m having similar issues with the blood and protein in my urine along with the back pain. Have you been on any medication that’s for hsv? I also show no symptoms but have horrible nerve pain. I’m seeing a urologist later this month. Lemme know what you find out!

[jacquelyn]

 

@lildevy

For me, the back pain only lasted about a week or so.

I was put on a week of antivirals, but I initially messed up the dosage. Idk if it did anything and around that time is when I had the mouth infection show up. So idk if it's because it's not HSV or if the dosage wasn't strong enough.

I will! I have a urologist appt later this week.