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I've had the same GHSV-1 outbreaks and ever burning symptoms for 2 years and they have NEVER gone away. Not even for a day..

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I never thought I'd be writing another post here. I have gone a LONG way mentally since June 2019. I've been going through weekly therapy ever since. But i am back again because I have exhausted EVERY option imaginable to at least HAVE ONE DAY where i don't feel and see the SAME COLD SORE on my genitals and the ever burning sensation on my inner thighs and penis.

HOW IS THIS EVEN POSSIBLE? How come no one ever talks about this?! All i hear on these podcasts/interviews talking about their outbreaks going away for weeks, months, even years before experiencing one again. For me, I HAVE NEVER GOTTEN A BREAK NOT EVEN FOR 24 HOURS. It is DAILY TORTURE. Burning on my thighs and penis non stop for absolutely no reason. I feel like my case is a unique one because when i talk to a few friends who also have herpes, they don't experience even an 1/8th of what I've been going through in my day to day. I am slowly losing my mind... so I'm sorry to speak so desperately on here. But I am desperate.

Before anyone suggests any medications in their valuable attempt to help, I have taken all of them:14 day cleanses, reducing meat and processes foods/diets, Valtrex, acyclovir, topical creams, etc. As well as supplements: L-Lysine, Cat's claw, zinc, vitamin C, b-complex, YOU NAME IT- I have taken it. Still, it has not gotten away or improved in terms of pain/discomfort or visually. I have not been intimate with anyone over 2 years because of this. This is no way to live and lord knows i have immense hope because i rarely think of suicide, because i know others who would if they had to deal with what I'm currently going through.


Can anyone please help... I am desperate.. Thank you..

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Wow, I'm sorry to hear of the physical and emotional turmoil you are experiencing. I wonder if you have been tested for any underlying illnesses that may be exasperating your outbreaks like being immunocompromised or having an autoimmune disorder. Have your doctors prescribed any non HSV medications to try to help?

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You are not unique as I feel as I am in your situation. However, my condition has been for almost 20 years. I forget the exact timeline of all my pain but like you I see a visual indication of this problem and have consistent nerve pain in my legs, genital soreness. 

I am going to add that I have never been diagnosed, but I know I was infected as my situation is unique which is pointless to discuss here. All 3 approved antiviral drugs had no effect on me.

My post is not to depress you but highlight that what you are being told by doctors, that it is in your mind, isn't necessarily correct. It is your body and you understand what is going on.

I have had a relatively good past 10 years, and my life was back to normal, HSV was in the back of my mind all the time but I wasn't in pain. I have had continual symptoms since January and hence looking for help again, which for me is to get closure and a positive diagnosis.

Hang in there.. life will get better, 



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  • 4 weeks later...

@elysium17 Hello!

First, I am so sorry for your pain. Your feelings are valid and you have every right to vent freely in this space. 

I really hope you are feeling somewhat better since this post. You do not deserve this at all. I also have GHSV1, but not at all in the severity which you have explained. 

Herpes lives in the spinal column, so perhaps, as another member mentioned, you are immunocompromised, or have another underlying viral condition which is amplifying the HSV1, or you are sensitive to the herpes simplex virus overall. 

You could take a blood test and ask your doctor for a full metabolic panel and a test of various sexually transmitted diseases (check for HIV especially). You can also have your hormones checked, as these can affect outbreaks. 

In the meantime please know we are here for you. If you ever need buddy support, please feel free to direct message me at any time and I'll try to get back to you ASAP.

Stay well. Be kind to yourself. Stay strong. Remember, the world needs you.

➡️❤️➡️ If you ever need to contact the suicide hotline, call 1-800-273-8255. Don't hesitate to call for help. You are worthy of help and support. Always


❤️ You are loved ❤️

❤️ The 🌎 needs you ❤️

Sending healing and happy prayers your way!! ☀️☀️☀️

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Have you tried probiotics? I am a woman with HSV2 but I was experiencing constant burning for a while. For me I take probiotics for vag health and it works.. I also suggested it for another member on this site and she told me it helped her too. I know the have probiotics for men (I’m not sure if they have some for penile health) but it won’t hurt to give it a try

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  • 2 months later...

There are other options if you have a viral strain that is resistant to the 3 most common antivirals. You need to see a specialist. There are IV meds that can be given in the hospital and interferon treatments that can help. You can also try gabapentin or a trycyclic antidepressant for nerve pain. 

The first step is to prove you have a resistant strain through viral sensitivity testing. 


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