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Danaaaaaasaur

Post herpetic nerve pain - any tips?

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I've been struggling with nerve pain since I had my for ob last August. I'm currently taking suppressive Valtrex and a mixture of Lyrica & amitriptyline to try and settle the nerve pain along with topical Oestrogen cream for the vulva area. I was just wondering if anybody else has struggled with this or struggled for an extended period of timeline myself? If so are there any other tips or tricks to reduce the pain besides medication? Could diet & exercise play a factor?

Any help would be much appreciated :)

Thank you x

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When I went to a natural path, she suggested I go through a cleanse as when ur body reacts like that there is lots of inflammation in the body. He started me on an elimination diet. I never did it as it was really strict. But I may try it soon.

 

Certain foods can increase inflammation.

 

Maybe u can try natural path.

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Well I believe it can.

 

I didn't do the elimination diet yet but I will. I was struggling with diagnosis so it was just too many appts for me.

 

I plan to go back though when things settle w appts which is tomorrow. I have specialist appt. took me 6 months toget.

 

Certain foods increase inflammation so at important u avoid those. Not just those related to h.

 

I think u should visit a natural path. It can only help.

 

 

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Biggest cause of inflammation is sugar - so if you want to try an elimination diet, look up the Yeast Free diet -

 

Best supplement to reduce inflammation is Tumeric ... also Cinnamon, Lemon Bioflavanoids, Bromelain (from Pinapples) are good sources. You can get them in pill form at most health food stores :)

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Danaaasaaur, Were you ever healed? I am experiencing similar nerve pains. Please let us know. It has been 5 weeks now for me

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Danaaasaaur, Were you ever healed? I am experiencing similar nerve pains. Please let us know. It has been 5 weeks now for me

 

Hi Fonda!

 

I'm sorry you're going through this. I can 100% confirm my pain has almost all gone away :) but it did take about 2 years before it got a good deal better. I had next level pain though so hopefully yours isn't so bad, even if it is please know it does slowly get better :) Have you been to the doctor about it?

 

 

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Sorry for the delay, just saw the post, but yeah, I am still in pain and am wondering if it is the nerves or something else. My urologist said it is nerves but I dont get how that explains the swelling and redness of my penis. He prescribed me ametriptyline as well and I hope that it works. Thank you again for the reply and for sharing :)

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I have what the think is nerve pain, it's like a constant 'niggling' feeling in/around my anus that's been going on for about 9 weeks now. 

I started 10mg Amitriptyline 3 weeks ago and have upped to 20g last week but still pain.

Anyone used it successfully and if so at what dose?

Thanks 🙂

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@GlitterGlimmer @Mooeuk @Danaaaaaasaur I just posted about these sensations and am happy to hear that I’m not alone but also sad that we’re all experiencing these horrible feelings. I’m 4 months in from my initial outbreak and it’s so constant. Two years is a looooong time to wait for this to go away : ( 

Have people found specialist appointments to be helpful? 

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Just checking in to see how everyone is doing....I too have had weird nerve pain since my initial outbreak in August 2019....also started having really painful orgasms in March 2020...getting an ultrasound done tomorrow to see if there’s a unrelated HSV cause (cyst or fibroid)....no doctors seem to know much about it (I’ve gone to 4 doctors). 

The nerve pain started in my genital region and then 6 months later traveled to my lower abdomen. 
 

just wanted to see, since this post is older, if anyone’s nerve pain got better over time?

 

Thank you!!

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@Blue1982 I’m 1 year and 8 months since my initial outbreak and sadly am still dealing with nerve pain. 

I had tried Lyrica but had a severe reaction that caused me to lose function in my hands. It only last a couple hours for two days, but was scary. 

I am currently taking a lot of natural vitamins and 35mg of amitriptyline and it’s been life changing. I started at 10mg, but 35mg seems to be the dose for me. I try to go off it every 3 months, but it slowly comes back so I have to restart the medication again.

Apparently nerve pain is quite complicated. Im just so grateful for this medication, it honestly makes me forget all about HSV! Sadly no doctor seems to know too much about this.

Good luck with your tests, I hope they’re able to figure out the cause of your pain ❤️

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Thank you for your response!!! It’s so strange to me how some people get daily nerve pain and others do not.

all the doctors I’ve spoken to don’t really think it’s related to HSV but I didn’t have any of these symptoms before my initial outbreak.

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@Blue1982 Ugh.. I know, the lack of info and expertise about this is beyond frustrating. I’ve spoke to 4 doctors, an infectious disease specialist and 2 gynaecologists and they have all told me that they’ve never seen this before. 

Unfortunately my initial outbreak was in two locations so I feel the pain down below and on the left side of my neck.

Thankfully not while taking amitriptyline, it’s truly a god send! Fingers crossed our nerves will chill out ❤️


 

 

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