Nerve Pain

[IJDK]

I have been going through this Ob for 5 days first the cuts, the itching those symptoms went away. now i have nerve pain and its intense What do u do when this happens?

[Strength123]

Hello @IJDK I am so sorry that you are in pain, the good news is that it will pass and symptoms will lessen over time. I wish I had an answer for you but instead I have a question. I have heard people mention nerve pain as a symptom but I'm wondering exactly what that is? Where do you feel the pain? 

[Ms. Congeniality]

I get severe nerve pain in one of my buttocks and down that leg. Epsom salt baths help as well as massage! It’s only temporary but that’s the only thing that I’ve found to help. My SO will massage my leg and I bought a roller type thing and that helps too.

 

[Dandelion333]

I had nerve pain in my lower back, it hurt so bad that I had to spend a couple nights in bed with a heating pad & ibuprofen. I also used a muscle roller that helped. 

[Dreamer07]

I have also experienced nerve pain. I am newly diagnosed as of last week, but I recognize late at night I’m having nerve pain shooting down my left leg. I also have pain in my right thigh, when I’m trying to sleep.

[ihatethis]

My nerve pain was different than some people report! I've only had one known outbreak and it was on my cervix so I had no clue until I went to the GYN and had an exam done. My lower back hurt really bad along with shooting pains down both legs. Along with that, from my butt down to the bottoms of both feet my skin was SO sensitive to the touch, like wearing pants and having them rub my legs was painful and I had to wear shoes or socks even in my house because carpet was painful to walk on. It was intense! 

[Dreamer07]

@ihatethis

Did you find any resolution to your nerve pain? Are you on suppressive meds? My nerve pain keeps me up at night, I’m hoping it doesn’t get any worse than this, but you never know.

[ihatethis]

@Dreamer07

Sadly I just had to suffer through it until it quit! I am on 500mg of valtrex a day, but while I was having my first breakout it was more but I don't remember exactly what the mg was. I know I took 2 a day though, for 2 weeks. It kept me awake too for sure! The back pain and pelvic pain together was awful, and the leg pain made it to where I couldn't stop moving my legs long enough to even try to sleep. It went away eventually, maybe lasting 3ish weeks. I haven't had those problems since that first time, but I have also been on valtrex since because it was such a significant outbreak. 

 

[Dreamer07]

@ihatethis

This is my first outbreak and I am taking 2 pills (2 grams) Valtrex myself. I’ve only been on it since Saturday. When will I get some relief? I’m tired and I’m pain. I feel like my OB is on my cervix as well, but the confusion in getting a clear diagnosis was hell in itself. 

[Ms. Congeniality]

After my second OB (which was only a couple weeks after) I was put on acyclovir twice a day for suppression therapy and it helps with the leg pain. It’s still there when I have an OB but so much better and easier to manage since being started on suppression therapy, to me, the nerve pain was so much more painful than the actual sores were and that’s what mentally broke me. 

[Ms. Congeniality]

Give it some time to build up in your system. To me...I’ve honestly gotten a new sense of “normal” but it gets easier and better with time. I’m still fairly newly diagnosed but give your body time to adjust. It sadly takes time. Just be patient. 

And yes...it is hell when your dr is all in your business downstairs 😩

And honestly you have to listen to your body. I won’t ever tell anyone to “de-stress” your life. I think that’s the biggest joke. It’s life, it’s stressful, ESPECIALLY when you first get diagnosed. But if you feel sick/exhausted try to take it as easy as possible and make sure you get enough rest. That’s key for me. 

[ihatethis]

31 minutes ago, Dreamer07 said:

@ihatethis

This is my first outbreak and I am taking 2 pills (2 grams) Valtrex myself. I’ve only been on it since Saturday. When will I get some relief? I’m tired and I’m pain. I feel like my OB is on my cervix as well, but the confusion in getting a clear diagnosis was hell in itself. 

Yeah, it is hell. I was taking it for 12 days to be exact, then after those 12 days I went to the OB and she checked me again and said it had improved but still had a sore or two that was still trying to heal and she suggested suppressive therapy because the OB was one of the worst she had ever seen (the worst considering the OB was only on my cervix and nowhere else) according to her. The pain didn't completely go away until about 3 weeks after the start of it. So just give it some time, it WILL get better. I'm sorry, I wish I had more advice!

[Dreamer07]

@ihatethis geez 3 weeks. I have no choice but to hang in there. Thanks for the advice

[SeeingClearly]

I'm sad to say it took about 2 months for my nerve pain to settle.. it gradially got better and now around 3 months I don't feel it anymore. It'll get better 💛