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Ellie88

Constant Prodrome

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I’m new to the Hopp family and am struggling to manage my prodrome symptoms. I contracted HSV (unsure of the type) 4 months ago and haven’t received a positive test, but all signs point to HSV. I have an overall feeling of tingling, burning, itching and discomfort in the genital/anus area constantly. I’ve taken natural supplements, tried creams, and have been taking Valacyclovir for the past 2 months and nothing works. I thought after the initial outbreak (3 small spots on outer labia and a horrendous and angry cluster on my neck) cleared that this was something I could manage and cope with, but these constant feelings serve as a constant reminder and are painful and discouraging. Has anyone had a similar experience or any suggestions? Thanks in advance : )

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5 hours ago, Ellie88 said:

I’m new to the Hopp family and am struggling to manage my prodrome symptoms. I contracted HSV (unsure of the type) 4 months ago and haven’t received a positive test, but all signs point to HSV. I have an overall feeling of tingling, burning, itching and discomfort in the genital/anus area constantly. I’ve taken natural supplements, tried creams, and have been taking Valacyclovir for the past 2 months and nothing works. I thought after the initial outbreak (3 small spots on outer labia and a horrendous and angry cluster on my neck) cleared that this was something I could manage and cope with, but these constant feelings serve as a constant reminder and are painful and discouraging. Has anyone had a similar experience or any suggestions? Thanks in advance : )

Yes! I've yet to receive a positive, but several specialists have not been able to solve this. I've had a few doctors tell me that I could very well have HSV and it's not being detected by the tests.

Did the cluster on your neck look like the images you'd see on Google images when you search "neck herpes"?

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I haven’t been able to find any other case stories or images of it happening on a neck.

It started out as one, I just thought it was a scratch and everyday there were more and more blisters.  It was incredibly painful. 

So you have these constant sensations too? 

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Yes. I am dealing with basically the same issues as you and have been for the last 8 months now since I tried to have protected sex with an HSV2 positive woman.  But the condom broke seconds into it, and here I am today.

Almost everyday I am dealing with some form of tingling, burning or itching in my genital or anus area.  Sometimes I feel itchy in my legs and burning in my face as well.  I may have about 5 days where I will go without any symptoms but they always eventually return.  

The beginning of my problems all started two days after the exposure.  I was celibate for 5 months before this one time exposure and I had never in my life experienced any of these symptoms like this.  

I was sure my blood test would eventually turn positive, but every single test I took remained negative all the way up to 7 months.   Doing my own research, I found out from the internet that the blood tests  for HSV unfortunately are very unreliable.  Its pretty sad when you have to diagnose yourself with a lifelong STD because no doctor can give you an answer.

I just started trying lysine now, so we’ll see if that helps at all but I doubt it will.  As the days go by, Im losing hope that my body will ever go back to normal again and I may probably just have to learn to live with these annoying sensations every day.

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What other medications have you tried? 

Im so sorry to hear that you’re both experiencing this as well, I can’t seem to find any information on it. It’s just so frustrating because no doctor seems to be able to tell me or explain why I have these constant symptoms, as it doesn’t fit the classic presentation of the virus. I feel like I could adapt to HSV if it was just an occasional outbreak and there were periods of relief but this constant discomfort is horrible. 

Im hoping to try a couple other antiviral medications. 

Thank you both for responding : ) 

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