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monroe

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Posts posted by monroe

  1. On 6/16/2022 at 2:42 AM, 40sBritishMale said:

    Around 5 years ago I got herpes after a one-night stand on holiday. I did wear a condom but it split. The very next day I had an ache in my testicles and I knew something was wrong. I went to the STI clinic a week later and everything came back negative (although they don't routinely test for herpes). A few weeks later I got an unusual sore spot on my bum and after doing my research online, I knew I had picked up herpes.

    I am ashamed to say I was already with a partner at the point of the one-night stand, but I confessed everything and she understood and forgave me. I am still with my current partner so she must also have herpes but she does not have the symptoms I have - mine are really tarnishing my life at the moment.

    All the online information (NHS website etc.) speaks mainly about sores and outbreaks that fade over time. My experience is very different - apart from the first sore, subsequent ones are very tiny and insignificant and they heal and disappear within a couple of days. They don't bother me much at all. What bothers me is the pain I get in my testicles, lymph nodes (in the groin crease where your legs meet your upper body) and now in my lower back. This is usually a dull ache but sometimes the pain can shoot down my legs a bit. Recently the back pain has got worse and it makes me feel like I have a bad back and struggle to bend down or get up off a chair.

    Treatment-wise, I had the original STI screening 5 years ago (all negative) and have had another one 6 months ago (all negative again). I saw a GP 4 years ago with my herpes concerns (he could find no signs of it, but didn't even look for spots on my buttocks). I have found that GPs have very little knowledge about herpes. They expect to find bad sores like the textbook examples, but the reality is very different.

    I have since seen another GP this year and tried a course of acyclovir (this made no difference at all) so I am in pain a lot of the time. Sometimes the pain can disappear completely like it did last week for 4 days and it was heaven, I felt like a normal person again. I have been trying to work out what triggers the pain and I know that ejaculation is definitely a trigger. The testicular pain feels like I need to ejaculate to relieve the pain but it only goes away from a few minutes and then returns.

    I am currently using a private GP to speed things up. I will soon be returning and I am considering asking for foscarnet as this seems to work against acyclovir-resistant strains. Has anyone else taken this and what were the results or side effects?

    Looking online, it seems the pain may be a type of nerve pain and there are tablets that may work for it. Does anyone else have experience of this?

    Also, does anyone else have similar symptoms to me? I feel like I am the only person in the world experiencing this!

    i have been getting bad shooting pain down my leg i have been assuming it was bursitis or sciatica i take gabapentin but my partner just found out he’s positive for type one  coupled this be a flare up because i have no symptoms nor does he besides a little discoloration n some spots 

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