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Gemini 444

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Posts posted by Gemini 444

  1. 1 hour ago, Seeker1960 said:

    @Gemini 444 I am here to give you encouragement to keep hoping and coping. You can message me anytime. I believe there will be better days for you and for me. If our immune systems take a hit for some reason we can have more symptoms. I believe you will get back to the place you were before. It might take a little time. My symptoms flared up recently but I see some improvement as time goes by. Try new things to see if you immune system gets strengthened and can suppressive the HSV. Don't think about ending your life. You matter despite how you feel. I know you are loved by someone and it would a tremendous loss for you to leave. Hang In there and find a new reason for living. Don't let this virus have power over you! You're going to overcome!

    Im 95% sure its stress and my own head causing my constant outbreaks. I hate my life and cant accept myself like this. I wont do anything drastic while my parents are still here, i dont see them often and dont even really get along with them well but it would destroy my mothers life if i died. 

  2. 19 hours ago, Seeker1960 said:

    @Gemini 444 There may be a way for you to get the Pretlivir. It has beena approved as a Breakthrough treament for immunocompromised people. You might qualify for that if you have a Doctor who can state that and prescribe it to you. Also you can try LDN Low Dose Naltraxone. It is not very expensive at all.

    Thanks for more information, its the only thing keeping me going. I just need to find a doctor that cares now. 

    • Like 1
  3. On 12/16/2022 at 9:01 AM, Seeker1960 said:

    @Gemini 444 What type of HSV do you have 1 or 2? How long have you had it? What kind of symptoms do you have?

    My visable symptoms are almost unnotcible, its happens only at the tip of my pee hole, i get shooting leg pain behind my right knee for 1 day and next 4 to 5 days i have a tingle or a tiny insect like sting 7 or 8 times a day. I have 1 or 2 days in between when i notice nothing then it repeats 

  4. On 12/16/2022 at 9:01 AM, Seeker1960 said:

    @Gemini 444 What type of HSV do you have 1 or 2? How long have you had it? What kind of symptoms do you have?

    I have both, i think i always had 1 but caught 2 20yrs ago, my hsv1 cold sores have decreased over time and my hsv2 has increased over time to the point now where im having constant outbreaks for past past 4 years. 

  5. 7 hours ago, Seeker1960 said:

    @Gemini 444There is a trial for Pritlivir signing up. This could work for you. It is a new antiviral drug in development. Here is the info to sign up.

    https://www.yalemedicine.org/clinical-trials/pritelivir-versus-foscarnet-for-the-treatment-of-acyclovir-resistant-mucocutaneous-hsv-prioh-1

    As long as you have hope you can keep living and there is always hope. There is someone who can love and accept you out there. You also have to love and accept yourself. ❤️ 

    Thank you, i will look into this but because i dont get leisions i doubt they will let me participate 😣

  6. Mine never stop, every 9 to 12 days, I have tired everything, im strugglig so bad i don't know what to do, im running out of ideas to try, im afraid if i stop trying im going to end my life. By trying different things it just gives me the most miniscule amount of hope something will work. im so sad and lonely. I dont want to spend my life alone but no one could ever accept me like this. 

  7. I have had herpes for 20 years, i didn't notice any breakouts for the first 10 years or so but now for 7 years i have been experiencing a constant outbreak cycle, every 10 days. My visable symptoms are almost unnoticeable but i know its happening because of the leg pain behind my knee and the tingling and insect like sting i get during the first few days every cycle. I can't date or have sex, im very alone and feelings of depression are getting worse and worse, i have been thinking about ending my life more and more, i really try to concentrate on other things in life but my interest level in everything i once enjoyed has gone. I have very few friends as i also suffer with APD (avoidance personality disorder) seeking help is almost impossible for me, 2 doctors i have opened up to couldn't help. I dont want to be dead but i see no future where i can be content living like this. If there is anything else i can try to stop my outbreaks im willing to try anything no matter how extreme, does anyone know of anything else i can try? Neither antivirals worked for me, i dont drink, i eat well and are in pretty good shape, im 42 now and running out of time. 

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