[Help with HSV IgG testing!]

Hi Protacotaster. So most of my symptoms have been related to severe stress and anxiety. About a week and a half after starting anti Anxiety meds my appetite slowly returned. I travelled to the US and got the Western Blot done at UW at 6months post possible exposure and my test came back negative. I have also not had any lesions to swab. The Anxiety meds have also calmed my muscle twitches and nerve pains,and they only flair up the day after heavy drinking when I feel very Anxious or when I don’t get enough sleep(like 4-5 hours a night). I have never had any nausea. I am really hoping I can put this behind me now. It pushed me over the edge and I found myself with a gun in my mouth twice because I was convinced I had it. I still struggle with depression and anxiety as the negative results seems so unreal. Just not sure what other tests I can do to be sure I don’t have it, esp 6 months later.

[GHSV1 Transmission Questions]

Hi Bloomer

In regards to CMV, can they cause Neurological symptoms? I did have an IgG Antibody test come back abnormally High for CMV but the doctors brushed it off as nothing to be worried about. 
HSV 1 a very low positive and HSV2 still Negative.

[Info on the Western Blot]

Hi Guys

I hope everyone is doing well. I would just like some info on the western blot test.

As I understand there are different strains of HSV, some that will not be detected by die normal type specific IgG tests. 
My question is, will the Western Blot be able to detect them? Also has anybody had the spinal tap done for confirmation by PCR if it does not show up on IgG tests.

I have no lesions that can be swabbed for to do PCR test on, but I am experiencing a lot of atypical symptoms. Had the IgG done at 4 months but still came back negative.

Any help will be appreciated!

[Help with HSV IgG testing!]

On 11/29/2022 at 9:04 PM, Seeker1960 said:

It started a few days after protected sex with a new partner. I also received unprotected oral. It started with an itch on my scrotum. No OB. Then I got night sweats and a electric like feeling through out my body. Felt like my inside nerves were vibrating. Then I developed a burning in my perineum which also included my scrotum. Felt like I was on fire. I also had urethritis. I also had CNS issues like gastroparesis for a while. I did everything you did. I Took a bunch tests, antibiotics so on. I contacted Hunter Hansfield, Terri Warren & Ana Wald. Terri Warren and Hunter Hansfield although they are respected in the field they don't acknowledge that HSV causes nueropathy.

They stick to the idea that this is a skin disease and that it presents with the typical blistering lesions. They are wrong in that regard. I still have nueropathy and I finally test positive on the igg and West Blot for HSV1 only.

It calmed down after about 2 years until recently. I got the last covid booster and flu shot.  The hit on my immune system has triggered it and I have been back with daily nueropathy symptoms like burning butt and back and leg pain for the past month. It seems like it's calming down. I am taking the Lion's Mane that @Bloomer suggested.

You tested positive foe HSV1 which could be oral but with your symptoms you probably have GHSV1 like I do. I think I have developed some other CNS issues affecting my sleep now.

Bottom line is you need to keep your anxiety in check because it does make it worse. You can  live  with this just have to manage it. Not worth ending your life over. The good news is they are working on different things but are a still a few years out.

Hang in there you're not crazy and the "experts" don't know everything about this. The new researchers are learning more and understanding how the virus is affecting the nervous system. 

Hang in there buddy. Keep living it should and will be better in time.

 

What is the Lions mane used for? Where can you get it?

[Help with HSV IgG testing!]

1 minute ago, Ironman22 said:

Hey seeker

I only got started on it 6 days ago. My nerve pain seems to move/ come and go. Today not much in my hips and after Mondays crazy pain in my manlihood it was almost gone for the whole day right untill now before going to bed. Seems to be coming back? 
 

Driving me crazy. Think I might have to go see a Urologist to check what the hell is going on in there. I can deal with the hip, leg pains but damn these are killing me.

No side effects noted so far. I take 25mg in the morning and 75mg at night. 

[Help with HSV IgG testing!]

22 hours ago, Seeker1960 said:

Hey @Ironman22 How is Nurica for nerve pain? Side effects?

Hey seeker

I only got started on it 6 days ago. My nerve pain seems to move/ come and go. Today not much in my hips and after Mondays crazy pain in my manlihood it was almost gone for the whole day right untill now before going to bed. Seems to be coming back? 
 

Driving me crazy. Think I might have to go see a Urologist to check what the hell is going on in there. I can deal with the hip, leg pains but damn these are killing me.

[Help with HSV IgG testing!]

5 hours ago, Seeker1960 said:

Hello @RudiK I know how you are feeling. The not knowing is so frustrating. You might or might not have HSV. Your partner is testing negative do they have any symptoms? You might just have some other urinary issue going on. The person I received HSV1 tested positive for HSV1 & HSV2 so I knew I was exposed before I tested positive. It took over 12 or 13 weeks before I tested positive on an igg test. I first tested positive via Western Blot.

I also did not have the typical symptoms and still don't. I have neuropathy and related symptoms of burning, itching and other nervous  system issues. Good luck in your search for answers but don't overly worry. You might not even have HSV.

Hi Seeker 1960

I saw on other post you said you did not have any typical HSV symptoms. Would you care to share your symptoms?

Did you ever get Urethritis?

[Help with HSV IgG testing!]

No I have not. But they did do a CT scan of the area and nothing was abnormal? I will ask my Physician about the Hernia.

Yes I contacted the University of Washington Directly. Not a simple task to ship the sample from here. But I am willing to do so if it can give me any piece of mind. Damn I really do feel like I’m going crazy.

[Help with HSV IgG testing!]

Hi Bloomer. I have no history of cold sores but my test did come back low positive IgG for HSV-1. The nerve pain does seem to be worse when I move about. The did a scan of my lower back and could not se anything compressed. My work does include driving lots on bad roads, so I don't know if that can be the cause and that the anxiety makes me feel it. Still not sure about the pain in my penis. 
 

I am sure I could contact her via E-mail if possible. Seems like a lot of people think she does not acknowledge strange symptoms and HSV?(Have been searching the forum like crazy)

[Help with HSV IgG testing!]

1 hour ago, Seeker1960 said:

Hello @RudiK I know how you are feeling. The not knowing is so frustrating. You might or might not have HSV. Your partner is testing negative do they have any symptoms? You might just have some other urinary issue going on. The person I received HSV1 tested positive for HSV1 & HSV2 so I knew I was exposed before I tested positive. It took over 12 or 13 weeks before I tested positive on an igg test. I first tested positive via Western Blot.

I also did not have the typical symptoms and still don't. I have neuropathy and related symptoms of burning, itching and other nervous  system issues. Good luck in your search for answers but don't overly worry. You might not even have HSV.

Hi Seeker

So she is not my partner. I tracked her down about 3 weeks ago and got her to do the HIV ,HSV 1+2 IgG+ IgM test. She was happy to do them. Also she says she has never had any symptoms before.

[Help with HSV IgG testing!]

1 hour ago, Bloomer said:

Hey @RudiK! 

Most people who are infected with HSV will be positive by 12 week mark. Some will need more time and those are usually people who are immunocompromised. Unfortunately some people who are infected will never test positive on standard blood tests even if they take Westernblot. Standard blood tests miss 25 percent of HSV 1 infections and around 8 percent of HSV 2 infections. 

Please can you write again what are your symptoms exactly? What made you think that you have hsv and what was your exposure if I may ask? 

So sorry for your situation. I know it is hard to get proper diagnosis if you don't have classical presentation of hsv infection. We need better tests and better treatments for this infection. 

Hi Bloomer. The exposure was unprotected sex. Initial symptoms were Urethritis (about 3 weeks after exposure) Was treated with 3 Antibiotics ( Azithromycin, Doxicycline and Flagyl) after I did tests for STd’s but none came back positive. Symptoms were gone about 2 weeks after treatment. At the end of the antibiotic treatment I started to feel some pain in my left lower back. At this stage my depression and anxiety was very high and I was also not sleeping or eating(no appetite?) Fast forward until now Anxiety and depression has become the norm, lots of suicidal thoughts. Can’t sleep or eat.
Had môre tests done for HIV(multiple) HSV(last was 10 weeks after exposure including HIV) and all the others aswell. Went to hospital and was submitted for 5 days where a specialist physician and Neurologist did a multitiude of tests on me. Only treated for my headache (MRI confirmed severe spasm in neck, got physio and the headache is gone). Only thing they could find was that I recently (between 4 and 6 weeks ago) had Rickketsia by IgG(high levels)

CT scan and sonar shows no swollen lymph nodes on my body but I do feel nerve pain in my groin and legs. Not constant pain, it comes and goes. 

Still have the twitches that seem to intensify extremely when my anxiety kicks in. Tests were done by Neurologist and they found no problems with my nerves. Was told to get anxiety under control. The twitches are basically over my whole body. Nerve pain in my sides, hips, groin, sit bones and neck a still stiff. Been taking Nurica and antidepressants for 5 days now. Anxiety and nerve pain is better but not gone by a long shot. Twitches are less. Last week in hospital i felt a slight discomfort in my penis. No pain when urinating. Told the doctor, they did Urine analysis twice for multiple bacteria. Nothing came up. Feeling stayed the same(not severe) Sunday night it suddenly started to pain like crazy up until Monday evening. Pain was excruciating. Took a sleeping tablet + Nurica and this morning the pain is much less but still sensitive.

Yeah I just don’t know what the hell is going on with me. Everyone seems to think it’s all in my head. I have never been so depressed and Anxious in my life. Don’t know where to go from here.

[Help with HSV IgG testing!]

Might also be worthy to note that my stomach has been up and down as well. First constipation, then loose stools. My appetite has been non existant for the last 2 months, I have started eating more but it is way less than usual. Don’t know if it may be due to the medication I am on or from anxiety?

[Help with HSV IgG testing!]

Hi Guys hope everyone is well.

So I have hit the 4 month post possible exposure mark. Depression and anxiety has been extreme. Weeks of insomnia and not eating. Currently on anti depressants and Nurica for what seems to be nerve pain. I have not had any outbreaks. Only what seems to be Urethritis but it hurt really bad for 1 day and then felt so much better the next day? Very strange.

I did Have an IgM and IgG test done at 11 weeks that was negative for HSV. The Person I was with also had the test done with negative Igm and IgG. 
 

My question is how accurate would the IgM and IgG blood test be at 4 months? I do not have access to the Western Blot in my country but I am willing to ship a sample from here to get it done if need be. 
 

So difficult have this disease diagnosed if you do not have the classic symptoms. I have not had any fever, swollen lymph nodes etc. Really struggeling mentally with all of this.

Any help will be appreciated!

 

[Help with symptoms!]

Hi Bloomer

It was an unorotected sex. I am experiencing full body itching and muscle twitches. But I am also extremely depressed and have anxiety attacks because of this. I dont know if it is related to HSV. I have to add that my line of work requires me to drive a lot. I spend a good part of my day driving on bad roads. 

i just don’t know what to do or what to think. A positive IgG result would push me over the edge. I really am suicidal at this stage.

[Help with symptoms!]

Hi Guys

Just checking in on any advice?

Many Thanx!

[Help with symptoms!]

Hi, I am 31 year old male. 
 

I am severly depressed and fearful of having HSV. 
I had bad judgement call about 9 weeks ago and I believe I was exposed. 4weeks after exposure I was treated for NGU Urethritis with a course of antibiotics. The Urethritis symptoms have gone away. I started having severe nerve pain about 3 weeks ago in my lower back, tingling in my thighs and legs and now also hip pain. I have not had any lesions.

My depression and Anxiety/obsession has become so bad. I stopped eating for almost 2 weeks and now also suffer from constipation. Could not sleep for days.

Can HSV cause intense nerve pain without an outbreak? I am suicidal at this stage. IgG blood test came back negative after 7 weeks, but it seems the blood tests are worthless.

I would really appreciate some help.