Zihna

Same here. I had HSV2 for 15+ years and the weird burning sensations all over my body for the past 6-7 month. My obgyn said the virus lives in the nerves. That could be causing the weird nerve sensations. Which kind of makes sense. It's driving me crazy cause nothing makes it go away. Excedrin helps a little to take the edge off a bit and so does Valtrex for me. Excedrin gives me horrible stomach pain though, so it's not a great solution for me.

If your immune system is compromised, H will always win. I had to take high doses of valtrex to move on and stabilize and now take it twice a day. Took my 5 months to get here of consistent and sometimes rather high med dose. Suppressive won't hinder, only support your immune system. It's worth it... then after 6-12 months maybe try going off and see what happens. Taking daily pills suck and I hated adding two more - but such is my path! Hey Sunset, when you say rather high med dose, what was the highest you took a day? Valtrex seems to help, but doesn't make it go away completely. I wonder if I need to add a bit more. I am currently taking 500mg twice a day. I did read somewhere that some people took up to 3000mg a day to get rid of symptoms.

I have the burning sensation on my upper body too. Face, shoulders, arms, upper back, etc. The area also turns slightly red. I am on Valtrex 500mg twice a day and it helps a little bit. Also started anxiety meds a little over a month ago. But not much changed. It's a little better, but has not gone away. :( Been dealing with this mess for 7 month now.

Hey Goran. Back in November I started having a burning/tingling sensation on/in my Vag. Been to several Doctors. Got tested for everything from STD's to Autoimmune disease. Tried tons of creams and potions. At some point the burning / creepy crawly under skin sensation also spread to my face, chest, back, arms, shoulders and sometimes my thighs. Every day is different. I have good days and bad days. Some days it burns when I pee, some days it doesn't. The only test that came back positive was HSV2, but I have had that for 15+ years but never had any major problems. My Obgyn thinks it's from herpes, but he also recommended to go see a Dermatologist. However, he can not find anything wrong down there. For now I am on 1000mg Valtrex. I take 500mg in the morning and 500mg in the evening. It takes the edge off some, but the burning and tingling are still there. Just not as bad as it was the first 3 month. I still want to go see a Urologist since my urethra seems to be affected, just to rule anything out on that end, then Dermatology. If they don't find anything, then it's definitely from Herpes. We are about to move across country in 2 weeks, so for now my Dr visits are on hold until we relocated. Maybe new Doctors have an idea.

Wow I guess This is the post I’ve been searching for! My vagina has been burning for weeks now so I guess this is a outbreak! I’m going to get on some medicine because I’ve never taken any before! My back and arm was burning as well but the dr said it’s not Herpes related but I think It is as well. It’s just hard to deal with OMG yes --- you sound like me!!! Did your Dr say anything what the burning skin on arms/back could be from? My Doctors are not very open with information. Only my first Doctor said that the burning sensation on the skin is usually nerve pain. For now they are trying to blame it on the herpes. I am still on the meds, but not really any improvement yet. The first time I was on the meds it helped with the overall body burn, but this time there is not much relief. :( Its been almost 6 month and I am going crazy and when I ask for something for the pain, they tell me to take ibuprofen or other OTC pain meds, but they are not really making a big difference!!! My PCM said he wants me to stay on the Valtrex for at least 4 weeks before he prescribes anything for nerve pain since those meds will come with side effects. Keep me updated if you find out anything!!! I will do the same.

OMG FunnyGirl!!! THANK you so much for your response! Maybe it's our 15 year herpes anniversary gift! :-D It's so crazy!!! I know that stress can lower the immune system and I guess that's when herpes thinks it's a great time to mess with the body. I don't mind taking the meds, thank god they don't give me any side effects. I am so happy to hear that you found some relief after a few weeks. So I will give it some time. It's been going on for so long, I guess it will take a bit to get back to normal. You definitely gave me hope! After 5 month and treating for all kinds of stuff it could be, with no improvement, there has not been much hope left. I just put the creams and potions on and swallowed the pills they gave me each time something else didn't work. And I felt like maybe its all just in my head and the Dr must be thinking I am crazy! Fingers crossed the Valtrex will kick in full force soon and I can get back to my normal life without having to constantly think about why I am having an angry vagina. ;-) Thank you so much! <3

I had hsv2 for probably 15 years. I did get a few small outbreaks over the years. Like 1 bump either on my outer labia or between my butt cheekies. I was never on any meds for it or anything. (hubby has it too so no big deal) I am gonna try to make a long story short. Back in November I had severe stress and my vag started burning. Can't really remember if I had a bump with it or not at that time. But I never had vag burn with a bump in the past, so I would not have put those two symptoms together and would not have paid much attention to the well known bump. Then in Dec I got nerve pain and sometimes tingling sensation on my thighs, chest, arms, face and upper back. It was all really weird and neither me or my Dr could figure it out. There have been many doctor visits and tests for all kinds of STD, STI and even for autoimmune diseases. But nothing came out of it EXCEPT my HSV 2 IgG Type Specific test came back as 20.91. ---- Does anyone know if that is a high positive? I can't find anything online except that it is positive if it is >0.91 or something like that. After the test my Dr put me on Valtrex 1g twice a day for 10 days. It had gotten a little better and the burn on face, back, legs, arms and chest actually went away completely after that. The vag burn improved a bit, but was still there. 2.5 weeks ago it all came together when my 14 year old dog got sick and we put him down and I was super sad and stressed again and I got several bumps and at the same time the face, leg, back, chest and arm burn returned. That's when I knew for sure that the bumps and burn were related and it must be from the herpes. The vag burn also intensified for about a week. I told my OBGYN about it and now I am on Valtrex 1g a day for 1 year. I started about 10 days ago or so, and it has improved a little, but the burning sensation has not gone away yet. Can it take a while for the nerves to recover since I had the symptoms for over 5 month? Could it be that herpes symptoms can be so severe after 15 years all of a sudden due to extreme stress? I always read that the first OB is the worst. But definitely not in my case. :-( Would really be great if someone had a similar experience with herpes. Sometimes I still think there is something else going on, but all tests say I am fine. I think I worry so much about having some undiscovered disease, which only adds to the stress and then it will never get better.