AndSheSaid

“I have never felt so fucking small” - I felt this in my soul...you are not alone. I’m sorry to hear that you are in so much pain - I don’t have any helpful medical advice to share (besides don’t skip your pills) but I can tell you that my initial outbreak was by far the WOOooooRSTand in the ~2 years since, I’ve not experienced anything even remotely as physically uncomfortable as that first time. My initial lasted for what felt like forever and I ended up going to another doctor for it (first time was a walk in clinic) who put me on the same suppressive meds as you. I’ve had times where I had to skip or ration the pills (insurance issues) and sometimes I’d have what I describe as a “twingle” (a cross between a twinge and a tingle) - usually only when really stressed, getting my period, and skipping pills - that goes away with a day or 2 of regular doses.