dbop123

Good to note. I can get another check done on the HSV, but I had all the typical symptoms early on. Mouth lesion, sore throat (horrible like I was being choked), flu like feeling. I've had 2 subsequent mouth visits since then. Regarding the encephalitis, the incidence from HSV is the most common form of encephalitis, although it is rare, and this is a very serious thing. However, the ID doctor I saw told me that contrary to what most think, encephalitis happens more frequently in non immunocompromised people. I was surprised but he confirmed that. Encephalitis can happen and be very mild or it can be severe. And to be clear, HSV migrating to the brain is rare, but it does happen, and I think in my case I may be one of the people. After being tested for literally everything, I am losing hope of eliminating a whole lot more possibilities. I hope the neurologist may help with some answers.

Hi Seeker, Your mentioning of your Bell's Palsy really got me thinking. I don't have any facial droop or visible issues, but I sure do have a numb tongue, pressure in my ears, tinnitus, and my nose always seems to be runny on one side. I could be experiencing Bell's Palsy. Those are some of the symptoms. I've taken claritin to make sure allergies aren't the issue. They are not. I have an appt with a neurologist and I am going to be sure to speak with him about that. I appreciate your perspective. Thank you very much. BTW, my HSV1 IgG level was only 1.5 when tested which is very low, so I don't think my immune system is being overwhelmed. My doc confirmed that.

Thanks so much for your help. I understand encephalitis can be mild or can be very severe and life threatening. Does it only occur once and then done? Or can it happen more than once. I may have a mild case. Also, HSV1 indeed migrates into the brain. Herpes encephalitis is the most common form of encephalitis. Its rare, but it happens. What no one seems to know about is where the virus hides out in the brain if it migrates there. I imagine in the brain stem because that is where all of the nerves come together from the face that can carry the virus. Normally it hides in the nerves behind the ear. I am wondering since I have symptoms that have to do with functions of the brain stem that the virus is hiding there undetected by my body, but nevertheless wreaking havoc. This is such a bastard of a virus. It really is.

Here is my story. I’m interested if anyone else has gone through this hell. In May, I got HSV1 from kissing someone. I got the characteristic sore in my mouth (and was later tested to verify it). About 7 days later I got a sore throat unlike no other. I could barely talk for 2 weeks and had a white coating on my tonsils characteristic of herpetic pharyngotonsillitis. After 2 weeks, the sore throat subsided. In early July, over the course of two days severe ringing in my ears developed along with a sore throat, numb tongue, and pressure in my ears. It’s like a switch turned on. I would encounter periods of light headedness and numbness in certain portions of my head. The pressure and ringing in my ears would vary along with the sore throat. I have those symptoms daily. Every day is a new day. I’m not sure how I will feel getting up in the morning but those symptoms in varying forms are always there. I have been to my primary care physician, an ID doctor, an ENT, and a chronic diseases doctor (fibromyalgia and chronic fatigue syndrome). I have had every test run that could be run. I am generally healthy. No HHV6, HIV, CMV, EBV (in remission). All blood work is good. I have good energy and can work out. All of the doctors are stumped and say its stress. They cannot explain what is happening to me. Numerous times a day my ears pressure up, throat gets sorer; head gets light, almost dizzy. The ringing gets louder when my ears pressure up. It does not go away…ever. It’s like I have something alive moving through my head. I am convinced that since the only thing that changed between May and now is that I contracted HSV1, it migrated to my brain. The “on” switch in July was when it happened. The only references on line to HSV in your brain are for encephalitis, but what does the virus do if you don’t get encephalitis and it moves to your brain? The ID doctor I saw had no explanation or information. He just said its “recumbent” and can’t be moving in your brain. No one is able to explain, but I am going through a living hell. This virus is no joke. Can anyone relate to what is happening to me? Thank you so much in advance.

HSV1 migrated to my brain Here is my story. I’m interested if anyone else has gone through this hell. • In May, I got HSV1 from kissing someone. I got the characteristic sore in my mouth (and was later tested to verify it). About 7 days later I got a sore throat unlike no other. I could barely talk for 2 weeks and had a white coating on my tonsils characteristic of herpetic pharyngotonsillitis. After 2 weeks, the sore throat subsided. • In early July, over the course of two days severe ringing in my ears developed along with a sore throat, numb tongue, and pressure in my ears. It’s like a switch turned on. I would encounter periods of light headedness and numbness in certain portions of my head. The pressure and ringing in my ears would vary along with the sore throat. I have those symptoms daily. Every day is a new day. I’m not sure how I will feel getting up in the morning but those symptoms in varying forms are always there. • I have been to my primary care physician, an ID doctor, an ENT, and a chronic diseases doctor (fibromyalgia and chronic fatigue syndrome). I have had every test run that could be run. I am generally healthy. No HHV6, HIV, CMV, EBV (in remission). All blood work is good. I have good energy and can work out. All of the doctors are stumped and say its stress. They cannot explain what is happening to me. • Numerous times a day my ears pressure up, throat gets sorer; head gets light, almost dizzy. The ringing gets louder when my ears pressure up. It does not go away…ever. It’s like I have something alive moving through my head. • I am convinced that since the only thing that changed between May and now is that I contracted HSV1, it migrated to my brain. The “on” switch in July was when it happened. The only references on line to HSV in your brain are for encephalitis, but what does the virus do if you don’t get encephalitis and it moves to your brain? The ID doctor I saw had no explanation or information. He just said its “recumbent” and can’t be moving in your brain. No one is able to explain, but I am going through a living hell. This virus is no joke. Can anyone relate to what is happening to me? Thank you so much in advance.