@1974 First and foremost, I want to thank you for your words. They have touched me in ways I can never accurately articulate. I am so eternally grateful for your honest reply.
Regarding your doctors not making a big deal out of herpes - I think that's because herpes is NOT a big deal. It's just a minor skin condition that most of the world has (many of whom don't even know they have it!)
But your nerve problems!. That is a sucky situation. When I was mid-outbreak I was having some bad muscle aches and nerve pain, too, so you aren't alone in that symptom either.
However -- you are wrong that there is no hope for research being done. There is LOTS of research going into looking for a cure or a vaccine. But, like with all viruses, it's hard to cure. This virus has been on the planet -- mutating, changing, making it harder to irradicate -- for thousands of years so a cure will take time. But there IS hope on that front so hold onto that.
Reading your replies here really helped me feel better about myself because I can see my own thought patterns being reflected back at me in your words. My sister refers to this as when I tell myself false stories. You and I -- we are telling ourselves that we have no support. We are telling ourselves that our communities will reject us, that our lives will be ruined, that we can't be out and raise children, that the world will never accept us. But they're just stories -- and they aren't true. WCSDancer's story is proof of that. They're just false stories. They're the stories you and I are telling ourselves because on some level we allowed ourselves to treat ourselves badly because of the false notion that herpes makes us less than. But it's not true -- your doctors aren't making a big deal out of it so why should we? Because the more we believe these stories, the more real it becomes -- when we believe these stories we perpetuate the stigma we're trying to fight.
Honestly? I think if I treated another person with herpes the way I treat myself I would be considered a horrible person. I bet the same can be said for you. Let's start treating ourselves better together. You and I -- lets make a promise to each other that we'll work towards loving ourselves again. I know I let this virus consume me -- I've forgotten who I am, what I love about me, I let it stop me from doing the things I love, from being the person my friends and family adore. And those people still love me, even though I'm not me right now. And I know you have people like that in your life.
I will make a promise to you to every day I am going to write an entry in my journal. I'm going to think about a time I felt really good about myself and really proud to be me. And then I'm going to dissect that memory -- why does that memory hold value to me? What does that memory say about me? And use those entries to craft a collection of words that describe me, the me that I'M a fulfilled and glad to be. I hope you try the same.
For today: I'm thinking of my college graduation. I felt so proud of myself for completing college in three years -- I am determined and tenacious. I worked multiple jobs while I did it -- I am a hard worker who can't be stopped from achieving her dreams. I got raped my freshman year but finished anyway -- I am a fighter who cannot be kept down. I was so proud of myself for being able to stand up in front of my family -- all my favorite people came -- and smile the biggest, brightest, smile I have ever smiled -- I have a big heart.
Right now I'm trying to Remember this when I slip back into the patterns of hating myself -- a heart is not judged by how much you love (yourself) but by how much you are loved by others.
To the rest of the responses -- thank you. From the bottom of my heart. Your words, courage, and those links you sent were some of the most helpful pieces of advice I've ever read.
@WCSDancer -- I'm ready to come out, too. I am a writer and I think I need to be one of the voices paving the way for acceptance. I would love to get involved with whatever projects you're starting.