Homewardxxbound

@JeffH I plan on it. I also feel like informing my doctor that he should read up on it

@JeffH it's amazing how my doctor didn't want to retest. I'm going to ask my dermatologist. If it was that low it should be a standard to retest. I don't understand doctors nowadays.

So now that I've done my fair share of reading, I'm thinking about getting another blood test done and then following up with the western blot. My results came back as 0.93. I'm not sure which one it was(I'll have to double check). Anyone else have test results similar to this? I'm not getting my hopes up, but I'm more curious to see what another round of results would come back as. Also, I was quite devastated when I found out my diagnosis, but I have to say things are getting better. Holding my head up high and thanking my lucky stars that I found my way to this site and the wonderful people on here :-)

@SPATX919 I don't think he knew. I think he may have thought it was something else like dry skin. I asked him to go but he won't so I'm not going to push it. I filled the prescription just to have. I figure if I do have an OB I'll just take them. I did make sure to call him immediately when I found out. He had the right to know. At least I just spit it out. I know people are saying how difficult it can be to tell people. Not gonna lie, I was sweating and covered in hives when I told him haha.

@SPATX919 my doctor didn't even want to give me antivirals. I actually had to ask him for it. I'm pretty sure my boyfriend gave me H because I was tested before we met and I was negative. I'm definitely feeling super self conscious and I know it's because I was recently diagnosed. I feel like taking the pills just to keep things at bay, but I keep reading conflicting things about it.

Since getting my diagnosis, I literally just stare at myself in the mirror and try to wrap my brain around how anyone would find me attractive now. My boyfriend brushed it all off and wants to have sex every 5 seconds and I'm just not ready. Honestly, I'm not sure I'll ever be ready. I feel like he's asking every minute and not respecting my wishes. I'm not sure how else to say I'm not ready. He doesn't understand that I'm asymptotic and that I have no idea if I'm having a "shedding day". He doesn't understand that I currently hate myself and I want to just crawl into a hole and stay there for the time being. I currently feel like my body is toxic and I don't want to expose him to anymore of this. I don't know. I don't know how to handle this situation. Any thoughts?

@Feli71 all the more for people to get tested. I was terrified to ask questions on here, but I had to get over it. I want to know everything possible and I want to hear people's stories. I think that's my way of coping. It's nice having people to turn to on here, considering how scary it is at first. I'm going to keep saying it. So glad I found this little corner of the Internet!

@Onedayworthit I'm thinking about taking it. It can't hurt, right? I would like to try and follow the diet to see what happens out of curiosity.

@littlelibra haha me too! I turn to Mexican and Thai when I'm upset. Dont even get me started on hormones. I feel like that itself is a whole other uphill battle lol

@HikingGirl there's gotta be a way to change all of this. People need to know. I mean it's too late for all of us here, but thinking about my friends kids growing up and getting incorrect information is terrifying.

I've been reading up and I keep seeing thing for a high lysine diet. Has anyone chose to follow the diet and cut out any food that may be high in arginine? What worked for you? What didn't work for you?

@HikingGirl I don't understand why they don't make it part of the panel. It would save so many people from hurt and frustration. people need to be educated. I don't know about you, but I was always told that if I wear a condom I would be okay. I feel a little stupid now

@GotWhat haha releasing a fox into the hen house. I should do it.

@HikingGirl it's really funny that you ask because two of my doctors wouldn't do the test. I acuwent to my pc and told him I wanted it and he wrote the script for it. Because I showed no visible symptoms they figured I was fine.

@HikingGirl I know! I just turned 29 and I never thought it would happen to me, but it did. I've having a lot of issues for the past two years. From bladder infections, to stones, to yeast infections. So I know the pain. I was getting yeast infections so often that I had them test me for hiv several times. I think my mom being there when they called with my results helped. It lifted a weight off of my shoulders. I get anxiety just thinking about how I would have told her. I'm so lucky to have her. She's in mom mode and has been non stop researching. I told her there is no cure and that I appreciate everything she is doing. That we just need to deal with it. I'm glad I can talk to her but at the same time it's frustrating because she doesn't understand where I am coming from. I'm just really happy that I found this little place with wonderful people who get it. It's making the process a lot easier. I feel bad because I just joined, but I just want to keep posting things and seeing what other people think. It's like my little blog.