ash128083

@Sadpanda @Grace78 @beBravebeBOLD This is the first time I have joined a forum and talked to others with the same condition. I have felt so alone for so long. I am trying my best to get the support I need. I don’t want this disease to control my life. I just confided in my best friend of 28 years about this (she gets real bad cold sores so I felt like she could somewhat understand). I was in such fear of how she would react and she thinks that it’s not a big deal, it’s not deadly, and to go to whatever doctor I need to to try and get these symptoms under control so I don’t have to suffer constantly. She thinks my husband and I can work this all out but I’m so scared he’s going to leave me and I don’t know how to tell him. I have been in such horrible pain and discomfort, itching both internally and externally, not to mention I have my period and wearing a pad I think has made this all worse. I’ve increases my acyclovir to 4-5 a day in addition to using monistat and usual vitamins and supplements idk what is working and what’s don't. I can barely walk or do anything with my children. It’s been extremely debilitating. Why would this virus all of a sudden go haywire? Do your doctors have ANY answers? I see my therapist, PC and OBGYN next week and I’m so stressed over it. If they can’t help me I’m going to get a referral to an infectious disease specialist. Something HAS to help. I’ve also noticed with all of these symptoms I’ve had a problem with vaginal dryness. I wish someone could find a vaccine. I don’t think these doctoes understand just how physically and mentally disabling this virus is. I hope once has past I can get back on the 1mg of valacyclovir. The one month I did that out of the past 12 I was symptom free. 1 month out of 12! No one shouls have to live like that. Are any of you in relationships? I’m having a real hard time disclosing to my husband (horrible I know, we’ve been together for 8 years and have 2 kids, I never had symptoms or outbreaks being on the meds and never said anything because I didn’t know how, we were never supposed to be in a relationship and ended up getting pregnant very early and our son passed away shortly after birth, so I never knew when or how would be the right time. When these symptoms startes coming back a year ago I started making him use condoms while continuing my meds and I completely abstain when I start feeling off. He knows something is going but doesn’t know what and I have no idea how to do this now. I’m petrified this will tear my family apart and it’s my fault. I hope mu therapist next week can help me. I’m definitely getting the red marine algae to try and I also read that lauricidian (monolaurian) or something like that is supposed to help. Both are pricey but at this point I’m desperate. Thank you all for commenting. It’s comforting to know I’m not alone.

I have appointments with my therapist, OBGYN and Primary Care next week (super stressful week). Hopefully they can help or refer me to a specialist because I can’t go on like this.

I was diagnosed with GHSV about 10 years ago. I’m not sure if is GHSV 1 or GHSV 2. For the past almost 8 years I have been on daily suppression of acyclovir 400mg 2x a day (I initially started with 200mg 2x a day and even the low dose worked. For about a year now I have been getting chronic outbreaks. They even seem to be worse now then when I was first diagnosed. In the beginning I would get one typical blister that would come out and eventually heal over. While on antivirals it pretty much eliminated my outbreaks (except when I was on birth control pills, then I would get what I thought was an outbreak but felt more like a yeast infection about every 4-5 months. I’ve been off birth control for about 4 years now.) Last year I started to get occasional sharp pain or irritation in my vagina. I figured it was prodome symptoms and increased my acyclovir to 3 pills a day for a week. After a few months of this happening I had what I thought was a very bad yeast infection. I got over the counter medication and increased my antivirals just in case it was an outbreak. I didn’t have any visible sores just a lot of irritations, discomfort and redness. I couldn’t walk at times because it was so uncomfortable. This has been happening about every month now for a year, sometimes twice a month and almost always during ovulation. Last year I was on prednisone for my asthma a few times (and have been in the past without any herpes flare ups) and wasn’t sure if this somehow reactivated the virus. I went to my doctor in August and he thought where I wasn’t having typical sores perhaps I keep getting yeast infections for some reason. He changed my antivrial to valacyclovir 500mg 1x a day (which after doing some research and taking it for a month I know that the effective dose for a healthy person with more than 9 outbreaks a year is 1mg 1x a day. In the month of October I tried take 1g a day and that month I had nothing occur down below, which makes me think these yeast infections could be outbreaks even though I get no sores and almost always the pain, reddness, discomfort and irritation is inside my vagina (sorry if thats tmi). Two weeks ago while ovulation I had an “infection”, I’m 4 days late for my period (not pregnant), have been on antibiotics for 5 days and woke up this morning with extrmeme discomfort, redness and irritation out of no where. I’ve stopped the antibiotics, started probiotocs, increased my acyclovir and lysine intake (I usually take 2-3g daily). I made an appt with my primary care on Wednesday and have an appt with my GYNO on the 10th. I’m not sure which doctor I should even see at this point (my GYNO) prescribes me the antivirals). I’m going to ask to be put on 1g daily valacyclovir and see if that makes a difference. I’m debating on having other tests done to rule out immune disorders etc. Does anyone have this problem? I thought the virus becomes naturally more suppressed over time the longer you have it? Does anyone see an infectious disease doctor for their HSV? I’m a 33yr old otherwise healthy female. I exercise 5x a week and eat well. Sleep could be better but I have two children. This is really taking a toll psychologically on myself and my marriage. Any advice would be great.

I was diagnosed with GHSV about 10 years ago. I’m not sure if is GHSV 1 or GHSV 2. For the past almost 8 years I have been on daily suppression of acyclovir 400mg 2x a day (I initially started with 200mg 2x a day and even the low dose worked. For about a year now I have been getting chronic outbreaks. They even seem to be worse now then when I was first diagnosed. In the beginning I would get one typical blister that would come out and eventually heal over. While on antivirals it pretty much eliminated my outbreaks (except when I was on birth control pills, then I would get what I thought was an outbreak but felt more like a yeast infection about every 4-5 months. I’ve been off birth control for about 4 years now.) Last year I started to get occasional sharp pain or irritation in my vagina. I figured it was prodome symptoms and increased my acyclovir to 3 pills a day for a week. After a few months of this happening I had what I thought was a very bad yeast infection. I got over the counter medication and increased my antivirals just in case it was an outbreak. I didn’t have any visible sores just a lot of irritations, discomfort and redness. I couldn’t walk at times because it was so uncomfortable. This has been happening about every month now for a year, sometimes twice a month and almost always during ovulation. Last year I was on prednisone for my asthma a few times (and have been in the past without any herpes flare ups) and wasn’t sure if this somehow reactivated the virus. I went to my doctor in August and he thought where I wasn’t having typical sores perhaps I keep getting yeast infections for some reason. He changed my antivrial to valacyclovir 500mg 1x a day (which after doing some research and taking it for a month I know that the effective dose for a healthy person with more than 9 outbreaks a year is 1mg 1x a day. In the month of October I tried take 1g a day and that month I had nothing occur down below, which makes me think these yeast infections could be outbreaks even though I get no sores and almost always the pain, reddness, discomfort and irritation is inside my vagina (sorry if thats tmi). Two weeks ago while ovulation I had an “infection”, I’m 4 days late for my period (not pregnant), have been on antibiotics for 5 days and woke up this morning with extrmeme discomfort, redness and irritation out of no where. I’ve stopped the antibiotics, started probiotocs, increased my acyclovir and lysine intake (I usually take 2-3g daily). I made an appt with my primary care on Wednesday and have an appt with my GYNO on the 10th. I’m not sure which doctor I should even see at this point (my GYNO) prescribes me the antivirals). I’m going to ask to be put on 1g daily valacyclovir and see if that makes a difference. I’m debating on having other tests done to rule out immune disorders etc. Does anyone have this problem? I thought the virus becomes naturally more suppressed over time the longer you have it? Does anyone see an infectious disease doctor for their HSV? I’m a 33yr old otherwise healthy female. I exercise 5x a week and eat well. Sleep could be better but I have two children. This is really taking a toll psychologically on myself and ny marriage. Any advice would be great.