Worriedgal89
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Posts posted by Worriedgal89
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So starting about 3 days ago I have had swelling , redness and itching . I started taking valtrex 3 days ago , 1 gram the first day , 2 grams the second and 1.5 gram the 3rd .. I woke up this morning still with the same symptoms. I have decided I will do the autoimmune testing , start a strong probiotic and try to overhaul my Health. I’m not even sure that this is the herpes causing my symptoms all I know is my body is very inflamed . Any more responses will be greatly appreciated
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Thank you so much for your response . I am not sure exactly when I contracted hsv so I’m not sure , I have had weird symptoms for even years before that .. like before the pain started I had a cut that didn’t heal for 3 years down there . Very very bizarre. I think you are right and maybe I have an autoimmune issue . I have ms in my family along with arthritis. I will go to the doctor and ask for autoimmune testing along with being referred to a specialist. It is all so bizarre . I really wish I was one of the lucky ones that either don’t know they have it or have very rare symptoms .
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I am posting again to see if anyone new has any advice . I have had burning , swelling , sensitivity, tiny cuts , and nerve pain DAILY for about 6 years straight now . Nothing gives relief . Have tried vitamins , cutting out foods , yeast infection treatments, bv treatments, random creams , steroids , estrogen cream and antivirals . All std tests clear except positive hsv1 .The antivirals seem to work I think .. I just started trying them again after the steroids stopped working . So we will see .. does anyone know if this is herpes why in the hell my body can’t suppress it? I talked to Terri warren and she said that hsv 1 would never cause this. This has been ruining my life for years and I need to know if anyone has experienced this and figured out why their body had this reaction. I met one other girl on here with the same issue and we have been trying to figure out … thanks guys .
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Thank you so much for your response .. I think I have been holding onto the idea that this is lichen and am kinda in denial about it being the herpes causing these symptoms but I just need to accept it. I think I just worry why I am having constant symptoms . When I say constant I mean I maybe get one week of relief a month . It's insane.. I have talked to too specialists in the topic like Terri Warren and she says it's not likely what is causing my symptoms but I think she is wrong ..
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I have had this every day for 5 years including swelling and redness and raw spots in my vulva. Gyno diagnosed lichen but I have no white patches and steroids don't work.. my life is hell.
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What was the outbreak you had like ? If you went ten years without issues this will probably be a temporary thing , has anything changed in your diet /stress etc ?
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But most people test positive for hsv 1
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Hey, if you had a type specific IgG test that says you have hsv that means you do usually . Regardless of having lichen schlerosis or not . You can have both
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So I posted on here a while back about how confused I was about having a hsv 1 + blood test and negative hsv2 . I have had constant problems daily on my labia for over ten years , getting worse in the past 5. I have seen countless doctors and just accepted that it must be herpes and my body must have something wrong with it where it can't fight it . I had every test under the moon and tried everything . Living with a raw vagina for 10 years does a number on your mental health and relationship . Yesterday I went to discuss getting my tubes tied with a new gyno and mentioned this to her , she said she would take a quick look . She immediately said it looks like lichen schlerosis and half my inner labias are gone (which I somehow didn't notice until later looking that day and being astonished) . I don't have the typical white coloring of lichen as I am still early in the progression luckily . But I wanted to put this out there as an option to look into for the people that had responded to my original post . I used the steroid cream she gave me last night and my vagina hasn't felt this good for a decade. If you have cuts , itching , irritation, redness , pain during sex , and raw patches this could be your problem, if you have white areas of thin skin down there this is even more likely but as I said this doesn't have to be the case ! . It can also cause blisters so at this point I'm not even sure if I have genital herpes or not . I thought I would post this so that it might help one or two people . Also ask your doctor about low estrogen if you have this issue.
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Are you able to do the letsgetchecked online blood test? They ship a box to you, you fill a vial and send it back , it's very discreet , do you have ups delivery around where you live? That's how I got my results since I live in Canada and it's super hard to get a bloodtest here , you could maybe even ask them to label it as a hormone test or something if you call
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Most likely , yes . You probably have type 1 , which is generally mild in most people
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13 hours ago, ash128083 said:
This virus is the fucking worst! I honestly think getting on suppressive therapy actually does something to the virus, like somehow makes it stronger so the meds start not working or you need to take an insane amount for them to work. These doctors need to get their shit together and try to find something to get this virus under control for people. I honestly don’t know what’s worse, the physical or mental suffering. I’ve doubled up on the lysine and vitamins and whenever I have “that feeling” I’ll take a half of the 1g Valcyclovir so I do a full gram in the morning and then half for a few days and then I’m ok for a few weeks. But anytime I feel a pain, or anything I fear the worse. I don’t ever remember having symptoms like this. I was going to see if changing how I take the medication, 500mg 2x a day, so its constantly in my system. Who knows what will work.
Yes I have heard twice a day instead of once can help , try that for sure !
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Yes the nurse will talk to you and help you out with info , no problem , hope you get a negative !
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Yes ! I just used it and they were great . When you get the kit though , make sure you prick your finger like right at the tip , it can be hard to get enough blood out , I found just letting the blood drip and not massaging the finger was better . I had my results within 2 or 3 weeks of ordering the kit I think . I had to call to get the exact numbers of my results , ask to speak to the head nurse she is the best I can't remember her name.
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Not a problem at all! It definitely plays tricks with your mind . Go to the top right corner drop down menu and go to the little envelope , I messaged you
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1. Technically I think you could cause herpes Whitlow , although I think it is probably pretty rare. Sorry I don't know exact statistics , but assuming the virus much prefers mucus membranes . You could make sure the hands don't have any cuts or abrasions , use a barrier method if you really want. You wouldn't spread the virus to their genitals through the hand though obviously , unless they quickly rubbed your juices onto themselves , although that would also probably be pretty rare.
2. From my research hsv2 much prefers the genitals and it would be hard to transmit orally , although it does happen and is possible .. I think the risk is low , again a barrier method if you are really worried.
3. Haven't used a female condom sorry , but assuming it would be krinkly haha. I'm sure it's not that bad.
I think going on daily suppressive therapy along with consistent condom use should lower the chances of transmission to about 2-4 % per year or lower . I would recommend asking these questions on Westover heights to Terri Warren . Then you can show your partner an expert's opinion on these topics. Also get your partner a blood test if you haven't already to make sure she doesn't already have it .. I'm sure you already did this .
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I've been married for 8 years and just got ghsv1 from my husband going down on me , this is not something to be ashamed of or feel dirty for . Most of the people that make fun of herpes have it themselves and are completely uneducated. Keep your chin up , you have lots to live for ♥️
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Hey ! We have all been through this and please trust me when I say it does pass and you will regain your confidence and realise you didn't do anything to deserve this . We are all human , and we all have sex . This doesn't make you tainted or dirty. My friend said to me the other day she has decided to refuse to feel ashamed of her body doing things she didn't give it permission to do . I thought that was pretty smart , and have tried to think the same way . Are you male or female ? There are so many people out there who this won't be an issue for , don't worry . People poke fun at herpes , but that's only because they are projecting it away from themselves , or they are uneducated on the topic. When you meet someone you really click with ,they will be willing to educate themselves on the subject which will make it less scary , and there is a possibility they will have it too . This is not the end of the world . At the beginning , when I was also going through the mourning /depressed phase , what really helped was watching videos of people who had the worst lives ever.. haha. As terrible as it sounds , when you watch a documentary on someone born with no eyes , one arm , and a giant tumor protruding from their head , and they are super positive and living life to the fullest .. it helps put things into perspective. Picture yourself on your death bed , looking back on life when you are 90 , wishing you didn't let things like this get in the way . Obviously you need some time to be sad , and that's okay , but don't forget there are SO many people dealing with this , you are not alone . Feel free to pm me of you need to talk ♥️
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Just get the western blot , that way you can be sure and move on with life , get it through the Westover heights website . I thought the IgG tests were pretty accurate for hsv ? The igm ones are the innacurate ones I thought
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On 9/14/2019 at 6:36 PM, elnino said:
@ash128083 I’m a guy but I have the same story. Normal symptoms for 1.5 years, then went suppressive acyclovir and had zero symptoms for over 6 years. Then I had an explosion of neuro symptoms along with weird OBs all over my body (not all at the same time). The neuro problems were from my scalp to my toes and severe. They included tingling, twitching, spasms, altered taste, night sweats, gastrointestinal problems. It drove me to put a loaded gun in my mouth and tried to convince myself to pull the trigger but didn’t.
I saw doctors who didn’t believe me or didn’t care. Most of these sensations are exactly the same as I would get back when I got classic OBs, but with the addition of many more, so there’s no question they’re caused by HSV.
I have no solution for you other than endure. I finally found a doc who believes me and has tried lots of creative stuff and we settled on a regimen of tramadol and gabapentin just to treat the pain and lift my mood a bit. My symptoms eventually did calm down a lot over that course of 3 years, but sometimes they flare up and cause me to become suicidal again.
This virus is absolutely not “just a skin condition” lol. It’s a wrecking ball to your nervous system.
Thanks for the reply , I totally agree , there is something going on with herpes that specialists and doctors don't understand . It must damage the nervous system in some people for sure . I have wierd scalp sensitivity and skin sensitivity all over my body now too , it has also driven me to contemplate suicide . I don't care that I have herpes anymore , just make the stupid symptoms go away! It makes you feel so dirty and gross having to think about itchy burning crotch all day every day for years , and the people I vent to about it don't want to hear it anymore .. including my husband . I wish there was a cure , and was so bummed to hear about the therapeutic vaccine failing
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Hey! I have hsv1 genital and have been told numerous times it's impossible for me to have a constant outbreak but I literally have for the past like 4 years with the most breaks being 1 week or so , I am glad you posted this because now I know maybe it's due to inflammation too .. hope it gets better for you , it probably will
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Certain bacterial infections can also cause blistering
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That sounds awful I am sorry you are going through that, I'm also suffering constant outbreaks . I would recommend speaking to Terri Warren , an expert on the topic , on her website Westover heights . You can pay to Skype her or to ask a question . She has spent 33 years studying herpes and will give you some insight. Were you treated immediately with antivirals right after your first outbreak ? Or did you wait a while and then get the IgG test ? Anyways please talk to Terri Warren she is very helpful , it usually takes her about 5 days to respond
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Ps I'm a stress Ball too maybe that's why ? But no never in a new location that I know of
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Constant for years
in General herpes discussion
Posted
Just to clarify I always have the nerve pain and itching on and off every day but the big swelling and redness happens like once every few months