AJ2015

I dont think that it would be passed on through kissing since its not in that region... yes i am breastfeeding and because I am so concerned of passing it on from my skin to his I am considering stopping. I didnt have any issues above the belt until a few days ago and funny enough its my back that is burning and itching but no sores. The outbreaks are continuous but for the last six months always below the belt so I have learn to stay covered. My heart is breaking too at the idea that I may have passed it on to either one of my children but I keep reminding myself that this is NOT life threatening. Frankly, it would not be a big deal to me if I had figured out a way to control it. Its such a huge deal because its a non stop issue and this is not all that common. I am frustrated and I would like to cuddle with both of my kids in peace smh.

Thank you for your response. My diet is almost sugar free, extremely high in veggies, drink plenty of water, no grain, organic meat/fish. I am not pregnant anymore the outbreaks started in my third trimester it has now been going on for 6 months non-stop. The Valtrex is not the solution neither is Acyclovir. Tried both there isnt anything else medically speaking I can try. I have been taking multivitamin supplements, licorice root, lysine, garlic and zinc. nothing is changing.

so please never worry about that part with H lol

I had my son 8 weeks ago vaginally ... beautiful strong and healthy baby

Somebody please tell me that this gets better! Since January pretty much when I entered my third trimester of pregnancy I started having outbreaks in the vagina, ever since then the outbreaks are constant but move from one area to another. thighs inner, outer, buttocks, even my back sometimes.... the skin will burn a while then itch, most of the time I do not see anything then sometimes I will notice a little sore here or there. There is a daily itch in my vagina too. I used to have nerve pain and that went away actually. I have been on Valtrex for months now and no relief. Sometimes my skin even itches and tingles from head to toe. I am going to give up Valtrex, my diet is on point, I delivered a healthy baby but of course I do not get enough sleep, my stress levels are pretty high .... its driving me insane i have to keep my skin covered up and its brutally hot I would like to wear shorts. Emotionally I am way over that phase of anger disbelief etc. I honestly dont even care about having herpes because i im fine with who I am. I am bothered by the fact that my body isnt able to adjust.

How do I message you? I'd love to

Oh how I understand what ur dealing with. Like I told u the list of crazy symptoms is far too long for me, well beyond the vaginal discomfort. My partner thinks I'm a complete lunatic seeing the tests have always come back negative. Like u said I think it's the search for answers that is more exhausting than anything because once u have a clear diagnosis u can move on to treatments by trial and error. I promise to keep u posted! Things will however get better, they always do.

Is the damage from lack of clarity or the idea of it being herpes? Have u seen a specialist a gyn dermatologist somebody to look at your skin. 30 swabs? That's insane it really could be something else.

I've never had anything pus filled on my genitals no. I don't see why someone wouldn't test unless they know they have something. Girl ur not giving me much hope lol because even if he is positive for hsv1 that doesn't mean it's genital. Ughhhhhhhh... this is demoralizing like I've gotten to the point where I don't even care if I have it. I just want to know for proper management and behavior. Hugs girl!

About my negative results she said that after 2 years having elisa tests miss hsv2 is slim to none but that it misses hsv1 quite often. She does say that the testing is rather accurate I think she was as baffled as I am.

He has no other choice so yes. Well I have genital ulcers nothing puss filled no bumps straight raw patches of skin which combined with my other problems she says doesn't sound like herpes. I described the ulcers she said strange. Now, The little sores aren't fluid filled either just very itchy all over my legs bikini area down to my knees. What for me mostly indicates herpes is the neuropathic aspect. Cold sensations down my back buttocks legs, burning, itchy tingling skin all over and electric shock type sensations. Aligns with pudendal neuralgia which can be caused by the virus. Along with weird joint and muscle aches. I have a long list of symptoms who knows if they are related or not. So in other words you were never officially diagnosed with genital herpes?? That's what that sounds like. Negative swabs and you came up positive per WB for hsv1? Which of course can be genital but it also isn't confirmed. Dang. I'm on an autoimmune disease forum and if I told them that they would all have new worries lol. Because all these people with similar issues have been ruled out for genital herpes and most haven't taken a WB but several Elisa. I just don't get why for some of us it's so hard to figure out. My hope is that the testing evolves not just the "cures" this is ridiculous

Yep she actually asked me a couple questions and finds that after 2 years of potential exposure it's beyond odd. She said send my partner to get tested if his is positive it means that it hasn't converted in my blood from negative to positive yet which happens in 1% after 12 month following exposure. And that if he's negative then so am I. But yes that was Terri.

not sure if you ladies will see this update. I took the Western Blot and it came back indeterminate for both hsv1 and 2.

The elisa test is that the igg test? But yes the percentage of false negatives is actually scary means even more people probably have it too. Checking western blot now.

Ok will do