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Ohsoscared

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Posts posted by Ohsoscared

  1. On 5/11/2019 at 7:23 PM, ash128083 said:

    I’m a few years late to this conversation but I am experiencing the same thing! I was diagnosed about 10 years ago. For the first year I would get a typical sore that would blister then scab over. I was on acyclovir episodically but was getting outbreaks frequently so I went on suppressive therapy. At first my Dr put me on acyclovir 200mg 2x a day, which is super low and not even the recommended dose for suppression but for a year it worked. After I had my son he upped the dose to 400mg 2x a day and that worked wonders for 8 years! The ONLY time I would get an outbreak, which now came in the form of a yeast infection almost because I would get internal symptoms) is when I was on birth control and this happened every 3 months for a year. When I stopped taking BC the outbreaks stopped completely. Fast forward to last year, I got a horrible outbreak while on suppressive therapy. I could barely walk. It was all internal, no sores, but redness and swelling. I thought maybe this was a one time thing but no, after that I would get the same awful outbreak every month during ovulation for almost a year. I finally went back to my GYNO and he told me its rare to develop resistance unless you’re immunocompromised. He changed me to valacyclovir 500mg once a day which I thought was too low and that did nothing. Finally in January I went to my PC and she prescribed me 1g of valacyclovir to take daily. I have been pretty much symptom free up until I started getting some discomfort this week (which of course is my ovulation week). I’m so worried this will turn into a massive outbreak. It has completely taken over my life. I don’t know why after all this time almost 11 years that I’m still getting these when I thought your immune system is supposed to suppress the virus and it supposed to become less frequent over time. I think what the doctors tell us it’s a crock of bullshit. I always feel terrible I can barely play with my children or be intimate with my husband. I exercise and eat healthy and take vitamins. It doesn’t make sense. Hope things are better for you now!

    Are your symptoms better? 

  2. 22 hours ago, sadguy2019 said:

    What was your IgG score>? if it was below 3.5 you'll need a confirmation via Western Blot. False positive on IgG scores below 3.5 is something like 20-40%! thats quite a a lot so your battle is not yet lost! chin up

    It was 13.1 😑

  3. 1 minute ago, Tk2019 said:

    He sounds like a jerk honestly. I went through a similar situation where the person who gave it to me just stopped talking to me because I had an outbreak... 3 days after we had sex. It really hurt my feelings, but honestly.... the problem was him not me. 

    Are you positive for HSV 1 or 2? If it's 1 most people have it orally and you can get it from lots of sources so there really is no reason to feel like a whore.

    Positive for both 😑😥

  4. On 5/13/2019 at 10:16 PM, Dontknwwattodo said:

    I have the same fear. I was diagnosed with hsv2 about 3 weeks ago and I have been so out of it since then. The first week I was so many emotions then the second week I felt better. Then one little pimple looking bump shower up. Then all down hill from there. I’m a black Woman and it’s sad to say I honestly feel that the black community won’t accept it either. I personally have made a bad joke about herpes also not knowing it would one day affect me. I honestly don’t know how long I’ve had it or who I got it from. A lot of our community makes bad jokes and look at this as it’s similar to hiv even though it’s not. A lot of our community always say very negative things about hsv not knowing anything. I honest can’t imagine telling someone that I have this. I don’t have children and I’m only in my 32. But I feel I would much rather just be alone and not have children or another relationship than to disclose this to anyone. I have only told my mother and she made me feel so much better it was like I was suffering in silence u til I disclosed to her. She thinks it’s no big deal but to me it feels like the end of the world and no one will accept this. I can’t even accept it 

    I said the same... I'll be alone forever. 

  5. 43 minutes ago, 100918 said:

    If you haven't had any OBs yet, were you confirmed to have it through a blood test, I assume?

    That is how I was diagnosed last October. Since I hadn't had any partners in over 10 years at that point, I knew that I had to have had it for a long time. I had spent the entire 10 years cuddling with my child, sharing straws with him, etc. So to think that I would now suddenly be this walking disease spreading machine was just plain silly. Nothing has changed. I still cuddle with my child. If he wants a sip of my drink, he gets one.

    Going crazy about whether or not you gave it to your partner or if your partner gave it to you is not going to help anything. What is past is past. The good thing about HSV is that once you have an established infection, you cannot spread it to other parts of your body afterward. So, if you have genital HSV2, for example, you can't now spread it to your mouth. The virus has made its home and will not spread more within your own body.

    It sounds like you have a partner from your post. Even if you don't currently have a partner, you are worthy of love. HSV does not define you. YOU define you...don't let this be the one thing that you focus on as your identity. When I was diagnosed, I was just getting back into the dating world. 3 months after being diagnosed, I met an amazing man who does not give a shit about my HSV diagnosis. He is negative. He still is negative. I also have not had any OBs since finding out I am positive. Have never had an OB that I'm aware of in the over 10 years that I have had this.

    Your life is NOT over. Please, allow yourself time to be upset about the diagnosis...but then, pick yourself up, dust yourself off, and remember that you were who you are before you learned your diagnosis. NOTHING has changed about you since. You are still the same person. 

    It was confirmed thru a blood test.  We have been dating since Oct but he has decided to end things because I  have made him "diseased". I was married for 11 years and hadn't had an other partners until recently. I free like everything I touch has hsv now. I think I'm just going thru a stage of hurt and I feel like a nasty whore because I cant pinpoint between the 2 where I contracted it. 

  6. I don't know what to expect as I havent had any OBs yet, but I would rather end my life then live like this. My scared to touch my child for they I will contaminate her. The guilt of not knowing if I gave it to my partner or they gave it to me. I'm afraid to touch myself for fear that I will spread it to other areas. I would rather end my life then live thru this hell. 

  7. On 5/6/2019 at 9:04 PM, Tk2019 said:

    Yes most people have HSV-1 but it typically favors the mouth and causes cold sores. And then for some people it never causes anything. My index for hsv-1 was so high I've probably had it for years although I've never had a cold sore in my life.

    Most people who have either strain of the virus don't even know they have it and that's why there is so much misinformation about it. So we aren't alone, we just don't get to live in blissful ignorance of it.

    What would you consider very high? Does the levels go up over time? 

  8. On 1/21/2019 at 9:45 PM, SeraLyn said:

    @Whymewhynow every disclosure I've had has been positive, or at least what was expected.  I told my friends, my mom & sister, and both guys I hooked up with, one of which I'm still dating.  I had a hard time at first with the diagnosis for about two weeks before I said fuck it, and moved on.  I just really didn't have time to focus on this as  being a primary derailer to my life.  I was starting graduate school, recently received a promotion at work - I was feeling good.  How as I gonna let this virus - unbeknownst to me - make me feel less than?  I decided it wasn't.  Now, I haven't gone around yelling from the streets I'm team GSHV-2, but the more people I tell, the less a big deal it really is.  The more you accept it as part of yourself, the less a controlling factor it becomes and just a part of you..a part..not your whole.  I have a post about my disclosure stories if u want more details.

    Help me get to this point

     

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