Hello all. Background First. Problem second.... Apologizing in advance for how long this is...
I was diagnosed in April of this year. I had no symptoms, I just finally found out that I had never been tested before.
My ex-husband has had a history of cold sores and a mysterious "bump" that would scab over or disappear on his "member" (hahaha, I just wanted to use that word-romance novelists are funny) and I think in my happy-go-lucky ways, I just believed that it was a "dry patch". Looking, back, I laugh at my naivete.
I say I had no symptoms HOWEVER, I did have a new partner in February, and within a week, had what we thought was the worst case of strep throat ever known to man. I couldn't eat or sleep or move and had a high fever for a week before the antibiotics started working. Then I remained ill for 3 weeks. Then my right foot broke out in something shingles-looking along the side of my foot and ankle, along with the side of my right hand. This is when I started to wonder- maybe it isn't a strep throat. Maybe it was from this new partner. And my doctor didn't believe it was shingles, because I'm just 36.
Despite that, a DIFFERENT convenient care MD gave me Valtrex 1gm BIDx7days, because I asked him too. I was convinced I had shingles. For "peace of mind" he gave it to me. It cleared up w/in 2 days from my foot and from my hand. And I got better too, with the small bit of throat pain I had going on still.
Next was my yearly physical in April. I asked for the test in addition to the regular round of STD testing.
Fast forward to test result day. Negative for HSV1, Positive for HSV2. I was SORT OF surprised, but not shocked. Remember, I had always held some belief in the back of my head that my ex probably had given something to me, and that I was a dormant carrier. My doctor's nurse said, "Don't worry, you'll KNOW." when I asked how would I know if I was having a breakout.
Fast forward to my menstrual cycle in May. I developed a wierd little patch on my lower right thigh, near the back of my knee. I'd thought it was poison ivy or something. I called my Dr. because my best friend looked at it and said, "No, that's herpes. It can be ANYWHERE." My doctor DIDN'T BELIEVE IT WAS AN OUTBREAK. Said, NO-It will be in your vaginal, groin, or inner thigh areas only. Told me to go to Immediate Care!!!
THERE- another MD (these docs have worked over 20 & 30 years) said, "Um, no I don't think it is HSV2. But for your piece of mind, we'll do a viral culture." and also another Rx: This time for Valtrex 1000mg BIDx7d. It took the whole week to clear up.
NOW, end of June, my cycle is due any day and VOILA! 3 more bumps next to the patch behind my knee. And 2 days later (yesterday) the line along my right hand again. I went to Convenient Care again (knowing my MD will probably still deny it) and the doctor there took one look and said, "Absolutely. HSV2. It can be ANYWHERE. You are not going crazy, you are not imagining things. This is it. This is what it looks like." He was even kind enough to make me feel better by saying, "I have it too- around my mouth. Not now, obviously, but I do." That was SO NICE OF HIM to share that with me. This time I received Valtrex 1gm -2 pills Twice for 1 day. I just took the 2nd dose. He gave me FIVE refills because he knew I'm at a loss w/my current physician's attitude.
We looked up the viral culture that was done and sure enough- positive for Herpes Simplex blah blah blah.
SO....
I'm anxiety-prone with this. Because it's not in my genitalia (YET!!!) every time I get a bug bite, a PIMPLE, a scratch, a normal hey-I'm-skin-and-I-itch-sometimes spot. My ECZEMA acts up -which I've had my entire LIFE. I get a case of vaginosis or a yeast infection (also I've had those my ENTIRE LIFE).... My Tinnea Versicolor that I've been dealing with on my neck for 4 years now on and off.... When any of this happens- I FREAK OUT!!!
I'm at a loss. Nobody ever posts about having NON-genital breakouts. But that's ME!! I feel alone and very paranoid. I wipe everything down w/ Lysol Disinfectant Wipes to avoid passing it to my daughter unknowingly. I wash and disinfect my hands a million times a day. I use New-Skin liquid bandage on the spots and then cover/with Tagaderm. I put EXTRA (not unsafe though) levels of Chlorine and Bromine in the Hot Tub to protect her and others. I don't allow sharing of towels or eye makeup.
I'm terrified to pass it to my genital area on my own by accident. I'm terrified to use my contacts. I have to leave in 10 minutes for a contact lens fitting and eye exam and I have to disclose this to my physician because maybe he'll have insight. I'm wearing my glasses right now, obviously. I couldn't handle the anxiety of wearing the contacts I've had on for the last week. Actually,now that I think about it- I should throw those away and buy new cases too.
I started a ton of herbal supplements. I have tinctures and potions on the way through Amazon.
I'm just...
FREAKING OUT. PARANOID. ANXIETY.
HELP!!!