AJ2015

Right that's why I was thinking behcets ... autoimmune etc my mom has MS lots of possibilities

Ur awesome thank you ... yeah so I'm certain about what's going on with my daughter. This igg test came back negative as well so that's two negative blood tests and 2 negative swabs. I may contact them .... I woke up with sores all over the inside of my mouth. So, we are going to look at autoimmune diseases.... behcets possibly. But il let u know if I order the western blot.

The lesion was brand new when I got it swabbed, it was a large ulcer that was swabbed the next morning. Extremely itchy and painful, I developed more after that and it took 9 days to go away. That swab was negative as well. The information I have gotten is either from reputable literature or accounts of others on forums like these. I know there is a lot of bull on Google and I wouldn't rely on bs sources for anything. Update as far as my daughter goes, she has moluscus contagious on her hands that she spread worse from scratching. It's a viral skin infection very contagious when scratched, can spread through towels, contact etc. The rest of her rashes they attribute to sensitive skin allergies and weather. She is having an allergy test done at the end of the month. As far as the itchy bumps around her butt no clear answer... keeping an eye on her and dermatologist visit if it continues. But again every reputable source confirms that through skin to skin contact h can be spread, that's also why some people spread it to other body parts especially their fingers. I am having an outbreak of some sort on my butt cheeks painful and itchy with nerve pain :( ... waiting on an igg blood test to come back tomorrow. Just being patient and positive for either diagnosis/results. Will be back with updates ....

I certainly have faith that they will find it. I NEVER considered herpes until I ran into several stories about false negatives... neuralgia from the virus and some stories about it being passed to kids however I do agree that in those cases it was most likely through birth not contact later in life. I will keep u guys updated and I'm thankful for the reassurance.

I know about the chlorine I meant as in skin contact when we go swimming towels etc ... thanks so much hopefully u r right and it isn't that or worse really. I will update u all.

See that's exactly my concern with her as well ... slept in same bed swimming pool sat on my lap in swimsuits at the beach we are extremely close shared towels as well not frequently but it has happened. The reason too why I suspected herpes is because it's constant itching burning in the genitals with no trace of any bacteria or yeast. Also, I did hear about some people who have her herpedic neuralgia... so nerve pain is a complete possibility as the result of the virus aggravating the nerves. Well my daughter is going to the doctor tomorrow both hands are covered by a rash and her whole body seems to itch. I go back to the doctor on Thursday and I'm giving him a list of my symptoms and addressing a referral since both blood and cultures are negative. I will definitely keep you all posted. I'm really appreciating the support and feedback ... it helps to hear from a mom too!!!

Absolutely ... will definitely get that referral

Yeah I looked some stuff up and stories from others with behcets and it sounds like a possibility as well. I just am skeptical because of the itchyness neuralgia and joint pain which many experience with herpes is my understanding.

I did hear that as well that if you have endo or at least one chronic pain syndrome you are prone to others they do overlap. You definitely have a lot going on as well. Thanks for the advice.

Will look into that. Thank u.

I didn't mean that my sympoms are related to endo I've had endo longer at least diagnosis wise and that's with the constant cramping exactly what you describe including painful bowel movements. I just brought it up bc it's actually related to other syndromes that affect the vagina. Sorry for the confusion I obviously have a ton of symptoms lol. I had the blood test done last month, my symptoms have been ongoing since 2014. So yeah definitely within that 4-6 month window of symptoms , I just figured it could be a false negative. will ask for the exact numbers and the type of test next week. I meant the neuralgia like symptoms I have even felt them in the mouth and eyes I.e. burning/nerve pain. I am going to make an exhaustive list of ALL of my symptoms from joint to skin to neurological and take it to my doc next week requesting a referral. Will update you then btw thanks for taking the time to talk to me. And I didn't realize it would have to be more than simple skin contact for transmission to another person. That helps too.

Btw no signs of bacteria or yeast anytime they tested my vagina ... all other std s come back negative as well. The doctor who looked at that ulcer that covered my clitorus is convinced it isn't h but that doesn't mean anything I know. It's that same area that was swabbed twice with negative results. I also have knee pain and swelling which I have had for at least 5 years, the chronic pelvic pain is continuous as well ... so idk if all these things are related and are actually part of an autoimmune disease or something bigger. Or it is indeed h and just haven't tested positive yet.

Idk the values for the blood test either way it would show antibodies my infection has definitely occurred over a year ago no doubt. All the bumps and bright red spots have appeared mostly on my butt cheeks but I have seen them all over my face and literally everywhere. I have had them on my breast my belly my back my thighs everywhere. Now the ulcer I spoke of only occurred once and on my clitorus. It was just raw open skin. The burning and itching on my skin occurs everywhere as well and comes and goes it feels like pins and needles from nerve damage along with sunburn type sensation or icy hot sensations. .. all of which makes me think about neuralgia. I even feel it in my eyes and mouth sometimes. But this as I said has been this way for 2 months .... before then it was just vaginal problems for over a year constant itch burn raw sensation and sometimes sharp pain ... vulvodynia pretty much all year long. Yes I have hemorrhoids so I am sure that is what she has as well. My concern with her would have been if she came in contact with my butt cheeks or thighs during sleep which is totally likely since we used to sleep so close together ... not my genitals never that.

Hey guys, So for about 2 years I have had chronic pelvic pain no cause, possible endometriosis but don't know. Now for over a year I seem to have pretty much constant burning tingling itching sometimes sharp nerve pain. It comes and goes some days or weeks are worse than others. Never noticed any lesions or anything until a month ago I started itching burning and having nerve pain all over my body from.scalp to my feet. I have red bumps with white heads, red spots, skin color bumps, u name it popping up one after another in different locations come and go. Sometimes a few hours or a day or so then they disappear. My butt & back burn the most and seem to constantly have those red things just moving from one to the next pimple. For the very first time I ended up with an ulcer that pretty much covered my entire clitorus, rather painful bothersome and itchy for about 8 days then skin went back to normal. I had a blood test come back negative and I was swabbed twice negative. That ulcer was swabbed within 24 hours of it showing up when the skin was wide open. I am at a loss... clearly this is herpes. Does anyone on here deal with h and small children? Anyone transmitted it to them? Regardless how do you cope? Are u worried about them having it? My daughter and I are super close she used to sleep in the bed with me almost every night she wears a shirt and panties and so did I. We don't sleep with our pants on, of course that stopped completely I won't dare not be fully clothed now seeing that my entire body feels infectious. Honestly, whatever I have is fine I can live with but my poor child though. She has always had very sen sit I've skin, since she's been a baby she just seems allergic to everything that touches her skin, her complaints about an itchy anus and sometimes blood in her stools nothing new we attributed that to her diet lack of fluids and doctors agreed. Last month she developed a rash on both of her hands and between her fingers now I noticed a cluster of little pimples inside of one of her butt cheeks. I am so terrified! Any advice, kind words of support will be appreciated.

Awesome story thank you for that perspective. .. I have friends with hpv which even without outbreaks is so much worse. Indeed ... it's there for life ... just like the wheelchair in your friends life ... kinda makes u reevaluate how u look at life period

I've seen 6 so far I'm gonna press the issue with my current OB but definitely expect the blood test to give me answers

It's been since we have been together ... my doctor mentioned allergic reactions too but thor symptoms wouldn't be ongoing I would think. Although it's definitely worse after intense periods of sex then I take a break lol.

Thank u again ... will let u know if anything comes up and when I get my results

He's definitely asymptomatic and didn't have a clue ... I agree the hard part is dealing with the daily symptoms. I will take as long as I need mentally ... I suffer from depression too ... it's going to be a while before I'm me again an improved me actually ... can't wait for those days Thanks so much ....

A lot of those symptoms sound like mine ... no he doesn't get cold sores ... most likely dormant in him ... I'm just trying to stay positive and as so many have told me it's not the end of the world ... just takes time to adjust I guess ... how are u coping?

What are ur symptoms and this has been going on for a year and a half.

I swear that just helped me so much. No he's never had symptoms, I did start my antidepressants I needed that badly. It's been bad all around not just because of this. He's supportive, worried and concerned but is convinced that he doesn't have anything. I definitely need a lot of support, I did share this with my close friends and have strong support all around. But I need to keep in touch with someone who understands. That's different.

Here is my story .... Over a year ago I felt discomfort inside of my vagina and stinging and saw something that looked like a paper cut. No symptoms just stinging when I touched it or water ran over it. Pretty much since then I have had constant itching, burning often sharp pain in my vagina sometimes even my anus. Hot/cold sensations throughout my body, nerve pain and once that I can remember something that felt like shooting pain in my lymph nodes in groin and near breast. Also, I have felt like I have frequent yeast infections and every once in a while I will notice 3 red spots under the hood of my clitorus. Always the same place same spots, they disappear within hours or maybe a day. Ooh and I also sometimes have blatter/urethra pain and what feels like a uti but I'm sure isn't, disappears within a few days too. I've looked up all my symptoms read so many similar stories and have succesfully diagnosed myself with this disease. I had 2 swabs over time that came back negative. Was told that blood test would hardly be accurate, assumptions of vulvodynia. I have seen 6 doctors some of them ob's all of which said not herpes.... yet I do know they are clueless ... I am getting a blood test done next week but I know what this is. Gut feeling! I am 22 weeks pregnant, have an amazing and supportive boyfriend and a 6 year old daughter. I cannot sleep or eat, my anxiety is through the roof at the thought of how I am going to live with these chronic symptoms and possibilities of outbreaks for the rest of my life. I am at a complete loss extremely depressed ... like severely ... I've started counseling because the whole pregnancy has been a stressor in itself. So, I am rounding up help everywhere and figured I would seek help here too...