Infectious Disease Doctor

[LovelyB91]

Has anyone ever seen an infectious disease doctor for their herpes outbreaks? If so were they even helpful? I have had herpes for 14 years with no issues but for the last 4 months I’ve had outbreaks nonstop which is driving me to the deep end. I’m currently on suppressive therapy and I’ve tried all the antiviral medications I also take daily supplements lysine vitamin C, Zinc with no luck. I requested a referral from my doctor to see an infectious disease doctor but the process has been almost impossible still waiting a month to see the specialist. I was hoping someone could give me some insight on their experience. If they are only going to recommend everything I’m already doing I won’t keep fighting to see the infectious disease doctor 

[mr_hopp]

Hi @LovelyB91! You might consider reaching out to Terri Warren. She knows her stuff, being on the front lines of a lot of this herpes research and seeing patients for decades now.

[J1010]

Hi @LovelyB91 yes I finally managed to see one this year (after 2 years + of being passed around various doctors and consultants!) He was a great help, he's prescribed a further year of suppression (Acyclovir) also told my GP to prescribe me with Famciclovir to take if I get an outbreak whilst on suppression.

Worth noting I've still had a few mild outbreaks in unusual places whilst on suppression this last year but nothing compared to what I was getting.

Hope you get sorted, it'll calm down.

[RingofFire]

Hey @LovelyB91, I went to one after a year of nerve pain and being diagnosed. He didn't offer much. He just said my nerve pain could be post-herpetic neuralgia, but didn't have anything else to offer. It was a waste of time for me, but I hope it's helpful for you.

[Chelsea514]

I have severe nerve pain after my first bad HSV 2 outbreak.  My doctor said it was neuralgia. An inflamed nerve.  I’m on 1500mg of gabapentin and it helps tremendously.  I tried to stop taking it after 8 days and the pain came right back. So I can’t come off yet 

 

Gabapentin may work for you