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Infectious Disease Doctor

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Has anyone ever seen an infectious disease doctor for their herpes outbreaks? If so were they even helpful? I have had herpes for 14 years with no issues but for the last 4 months I’ve had outbreaks nonstop which is driving me to the deep end. I’m currently on suppressive therapy and I’ve tried all the antiviral medications I also take daily supplements lysine vitamin C, Zinc with no luck. I requested a referral from my doctor to see an infectious disease doctor but the process has been almost impossible still waiting a month to see the specialist. I was hoping someone could give me some insight on their experience. If they are only going to recommend everything I’m already doing I won’t keep fighting to see the infectious disease doctor 

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Hi @LovelyB91! You might consider reaching out to Terri Warren. She knows her stuff, being on the front lines of a lot of this herpes research and seeing patients for decades now.

Note: This is for informational purposes only. This information does not constitute medical advice or diagnosis.
I'm not a medical professional, so please take this as friendly peer support. 

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Hi @LovelyB91 yes I finally managed to see one this year (after 2 years + of being passed around various doctors and consultants!) He was a great help, he's prescribed a further year of suppression (Acyclovir) also told my GP to prescribe me with Famciclovir to take if I get an outbreak whilst on suppression.

Worth noting I've still had a few mild outbreaks in unusual places whilst on suppression this last year but nothing compared to what I was getting.

Hope you get sorted, it'll calm down.

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  • 4 weeks later...

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