Grace78

Hi! I’m just seeing your reply. Sorry for the delay. I have literally no relief. I’ve tried SADBE and that hasn’t worked. No antiviral works either..:I’ve been on them all. My only hope is Pretilvir but who knows when that will ever become available. I blame the Covid shot. I swear I wasn’t this bad until I took that vaccine.

@StPeteMo does the mens version smell as bad as the womens version? I can’t even use it because it stinks so bad.

I’m a 45 year old female with now constant outbreaks. I’m finally getting my hormones tested and likely going on replacement meds in hopes it will calm this crap down. It’s awful. I’ve had this for over 20 years and have never had outbreaks this bad. There is no end to it and it’s a miserable existence.

I have been working out very consistently and have also had OB’s one right after the other. I’m taking valtrex daily and it breaks right through. It’s miserable. Maybe there is a correlation between working out and outbreaks! Seems like the healthier we are the less we should break out.

@Seeker1960holy cow that stuff is expensive! Let me know how you do.

@Seeker1960where did you get the ginsing extract? Is it a powder? Let me know if you see a difference. You may be right about my hormones. My gyn tested me but said I wasn’t pre menopausal yet. But I seriously think that could be the issue. I may look into further testing. I appreciate the prayers and your support here. It’s easy to feel alone in all this.

@Seeker1960 I’m willing to try anything. I’m taking 1000 mg valcyclovir a day and still have constant prodrone and outbreaks. It never goes away and Im losing hope. Im taking all the supplements mentioned above also. HSV is manageable when it’s a few ob’s a year. A never ending outbreak is not a way to live. 😢

Sadly there are no trials near me and I’m not immunocompromised which is a requirement. I’m miss the old days when it felt like I didn’t have this horrid infection. The chains are on..brutal.

Thank you. I will google Pretlivir trials unless you have a direct link to it?

I’m in the same boat. Used the be almost outbreak free now I’m in a constant cycle. It is extremely depressing. I can’t even have normal intimacy with my husband for fear I will infect him. I don’t understand why it’s gotten so bad. All the gyns I’ve seen just prescribe antivirals that don’t work. After reading a bit on here I’m going to look into ozone therapy and this lions mane stuff. No idea where to get it but at least it’s something else to try. Just want you to know I get it and it really does suck.

I will do some research on this. Thank you. Nothing helps. I’ve pumped up the vitamins and still constant outbreaks. This is not sustainable. I’m losing my mind, confidence, everything. I’m 45 and was tested by my doctor in October and am not in pre menopause. Sadly I think a vaccine is the only hope now and who the hell knows when that will actually happen.

Is it possible to become immune to antivirals? I was on acyclovir for a long time and always had symptoms and outbreaks. I just switched to Valtrax and am still having symptoms. I currently have an outbreak for almost a month now. I can’t get rid of it! I’ve had HSV for over 20 years. Symptoms and outbreaks the past few years have been frequent and uncontrollable. All the gyn does is prescribe new meds. Nothing seems to be working. Anyone else have a similar path?

This makes me tear up. So much hope to get rid of this horrid virus. How do we get more info on clinical trials?

If you still check this site, I’m in the KC area.

Any women on here live in KC? I'm in search of a GYN that will actually talk to me about my issues instead of dodging them. I'm SO tired of being alone in this struggle. I need a doctor that will actually listen and brainstorm options instead of just ignoring them.

It frustrates me when I read so many posts that say ‘it gets better with time’. Mine is worse....so much worse. I will look into the red marine algae as I will try anything at this point. How do I go about finding someone that is trustworthy in Chinese medicine? And do they treat you the same as regular doctors ( skip over the topic or avoid it at all costs?)

Hey there! I hope you get some responses to your post because I’m in the same boat. I’ve had this for over 20 years and I have constant outbreaks despite being on Acyclovir 400 mg twice a day. It’s never been this chronic and I also thought it was supposed to get easier the longer you have it. It’s the opposite for me. I am also healthy with exercise and eating. I’m about to change meds but am doubtful that will do anything for me. It’s extremely discouraging. I liked my ‘old’ h life so much better. I can barely get a day where I don’t have symptoms. It sucks. Just wanted to say you aren’t alone.

WingingIt, thanks for reaching out. I'm so sorry for the loss of your boyfriend. That has to be so hard. I would say my stress level is pretty high, but it's been high for a long time. I think I would be able to tolerate the tingling, but the headache that is currently coming with my symptoms is just viscous. I sometimes wonder if the Acyclovir is causing the headache. Part of me wonders if I should just quit taking it for awhile and see if that helps. I've never had headaches before though when taking them (and I've taken all of them), or maybe I always just assumed the headache is part of the prodrome symptoms. I'm just discouraged and was hoping someone on here could give me a quick fix! I follow the research on the vaccine and it doesn't look like it's gaining momentum like it was. This makes me so sad because I was hopeful it could help!

No menopause yet. I do still have one cup of coffee a day and occasionally eat nuts and yes I drink alcohol occasionally. But the thing is I have always done these things and never had a problem before. I don’t feel like I should have to cut all this stuff out especially if I’m on an antiviral. Sometimes I wonder if I have cancer or something and this is my body’s way of telling me!

Hi all- I’m new here but have had HSV2 for over 20 years. The first 10-15 years I rarely had symptoms or outbreaks. This virus was extremely manageable for me. Over the past year it has become unmanageable. I have been on every antivirial out there and none of them seem to be working. I have symptoms ALL the time and the headaches that come with it are becoming unbearable. I have to believe this is what migraines are like. My symptoms used to be worse with my period, so after my last child was born I went on the pill taking it straight through to avoid a period all together. This certainly hasn’t helped as not a week goes by that I’m not feeling symptoms. Any thoughts, ideas, advice would be much appreciated. I eat well, exercise, and have tried Lysine and other supplements. It’s like my virus has been come resistant to everything. I thought the longer you have it, the less of an issue it is. This has been the opposite for me. I miss my old life where I never thought about it! It’s seriously taking a toll on my emotional health. Thanks in advance for your thoughts.