Erythema multiforme from hsv ugh

[whitedaisies]

Well reactions to sunlight sometime suggest autoimmune issues.

[2Legit2Quit]

Yup... Think lupus of the skin, you're not supposed to go out in the sun

[Baseballfan]

Thanks

Our derm we see now is also an immunologist and said she does not have lupus --- no other symptoms and biopsy said no SLE.

Just Lousy EM rash what she feels is being fueled by HSV infection that will not go back to sleep or go into hiding.

 

[2Legit2Quit]

Did your wife ever have an ANA test done, tobtest for autoimmune diseases?

[Baseballfan]

Her ANA was positive -- 1:160

Rheumotologist did testing --- determined nothing autoimmune .

Derm doubled famvir dosing Friday --- had a good weekend then woke up Sunday with a couple of new spots. I just can't understand why this is happening. We are going back to see Derm mo day because of infection from her biopsy spot. Completely discouraged--- my wifes skin was so beautiful . Why did this happen to her now? She's had HSV for many years with little or no complications. Made appt with mayo clinic in Florida for late October.

[Baseballfan]

Initial explanation from ana report said possible SLE or drug induced lupus --- both have been ruled out.

[2Legit2Quit]

Umm... An ANA means she has an autoimmune disease . you need to go see an endocrinologist then. It's hard finding a good rheumatologist. I don't know how kupus can be ruled out w a positive ANA test. Time to go see someone else.

[Baseballfan]

We thought same thing but this rheumy was highly recommended and told us she does not have an autoimmune disease and the low titer score of 1:160 did not mean she had autoimmune. He took six viles of blood and said all looked good. Our Derm --- who is also an immunologist tested biopsy for lupus and said it was not lupus --- we are so confused. Our normal life has put on hold. Back to Derm tommorrow for more biopsies. Beginning to wonder if this is going to stop. Very discouraged and an amazed how an HSV she has had for years can suddenly take control of er skin.

 

[2Legit2Quit]

You really need to see an infectious disease doctor and stop messing around w a dermatologist and see about getting anriviral treatment by IV

[Baseballfan]

We saw infectious disease doc when this all started. He referred us to dermatology. We asked about antiviral via IV and was told by doc it doesn't have any advantage. We will ask again tomorrow when we see Derm/immunology at university of cincinnati.

[2Legit2Quit]

Funny, because that's not what nçbi sayssays or the CDC. It absolutely is more easily absorbed and you hadn't known about through IV until I told you, so I'm confused as to what you're saying you addressed that at the start of this?

 

http://www.ncbi.nlm.nih.gov/books/NBK47444/

 

Tbh, there's not that great of doctors around these days. Your beat bet is to find a young one... They're not disillusioned yet and more willing to help.. Hence why I sought after the endocrinologist I found.

[Baseballfan]

I will look at endos and see where it goes --- the ID guy we went to in March is young --- he put her on valtrex and she had a reaction -- so he referred us to OSU derm. The one we see now is a young Derm and is an immunologist. I'll ask her bout IV . Thanks

[Peony10]

@Baseballfan

Do you have an update about your wife’s condition? Has it improved?