Reaching out

[Balletdancer23]

New to this forum, wondering if anyone would be willing to stay in touch and help each other cope, share everyday life struggles, suggestions etc, through direct messaging. I use an app called Kik to stay in touch with friends, but it’s not the same and it will never be, because they do not have a clue what I face on a daily basis. I have been facing this for about seven years now, and there are so many things that I know now that I wish I would have known back then. The one thing I’ve learned is that the antiviral works best if you are also taking supplements to boost your immune system. I found this out years later, after long OB periods with little to no relief. Also, the most helpful topical relief I’ve found are essential oils. Still struggle with diet, and that is one of my greatest challenges. 

[Healingneeded]

I found this forum to be helpful as well.  Would love to stay in contact not sure how to direct message on here yet so if you find out how I can share my info let me know.  I also can help with diet I can share more directly.

[Ohhey143]

Yes! Let’s keep in touch 🙂 I’m having difficulties as well 😕 Hopefully we can be H buds. Lol

[Jenn88]

On 10/13/2018 at 11:41 AM, Balletdancer23 said:

New to this forum, wondering if anyone would be willing to stay in touch and help each other cope, share everyday life struggles, suggestions etc, through direct messaging. I use an app called Kik to stay in touch with friends, but it’s not the same and it will never be, because they do not have a clue what I face on a daily basis. I have been facing this for about seven years now, and there are so many things that I know now that I wish I would have known back then. The one thing I’ve learned is that the antiviral works best if you are also taking supplements to boost your immune system. I found this out years later, after long OB periods with little to no relief. Also, the most helpful topical relief I’ve found are essential oils. Still struggle with diet, and that is one of my greatest challenges. 

You can message me anytime... I could definitely also use someone to help me cope as I too really don’t have anyone that understands what I’m going through. I have told 1 friend and my sister and they feel like I exaggerate my feelings and that I will be fine 

[Ohhey143]

Do you guys have hsv1 or hsv2??

[Balletdancer23]

Thanks @Healingneeded, @Ohhey143, @Jenn88 it truly is difficult navigating through life with this. We can look so normal on the outside, but inside so much turmoil, mental and emotionally draining, which doesn’t even help the condition. Do any of you have kik messaging 

[Jenn88]

@Balletdancer23 just messaged you my kik name

[Ohhey143]

No is the app called kik? I’ll have to get one.

[Jenn88]

I’m es I just downloaded it it’s a messaging app where you create a username this way you don’t have to give people your number r

[Balletdancer23]

@Ohhey143Yes, it’s a free messaging app, you just create a user name and don’t  need a phone number or anything. Figured it’s easier to message each other helpful tips, or vent on bad days and just help each other through this.