Has anyone seen a infectious disease specialist for herpes?

[Elle27]

Has anyone seen a infectious disease specialist for herpes? My PCP wants me to follow up with an infectious disease doctor due to my outbreak being ongoing for two months. I’m just not sure what they would do for me or suggest, or what questions to ask?

 

thanks!

 

Elle

[Jenn88]

Yes I went to see one 2 weeks after I saw my primary.... he did a pcr blood test which came back negative he said no trace of the virus in my blood. I go see him again on the 19.... I’m also on daily suppressants and he wants to take me off soon 

[Michgirl73]

11 hours ago, Jenn88 said:

Yes I went to see one 2 weeks after I saw my primary.... he did a pcr blood test which came back negative he said no trace of the virus in my blood. I go see him again on the 19.... I’m also on daily suppressants and he wants to take me off soon 

How were you dx originally? PcR? Or blood test by your primary doctor.

[Jenn88]

Blood test first igg positive omg negative a week later a swab was positive I started taking meds and supplements a month later went to infectious disease and my pcr is negative I was for igg snd igm again on Wednesday so now I’m just waiting on those 

[Michgirl73]

6 hours ago, Jenn88 said:

Blood test first igg positive omg negative a week later a swab was positive I started taking meds and supplements a month later went to infectious disease and my pcr is negative I was for igg snd igm again on Wednesday so now I’m just waiting on those 

Your PcR was positive and then negative? I thought that test was supposed to be super accurate?? 

[Jenn88]

Igg was positive, igm negative, swab was positive but a month later I went for PCR and it’s coming up negative. I’m repeating the test on nov 19

[Elle27]

10 minutes ago, Jenn88 said:

Igg was positive, igm negative, swab was positive but a month later I went for PCR and it’s coming up negative. I’m repeating the test on nov 19

If you didn’t have an active outbreak then your swab would be negative. There has to be blister fluid to test. You’re repeating the PCR test?

[Jenn88]

I had a blister my swab was positive yes I’m going the PCR again

[Elle27]

21 minutes ago, Jenn88 said:

I had a blister my swab was positive yes I’m going the PCR again

Can I ask why? Do you currently have blisters? 

[Jenn88]

No. I haven’t had an OB  since September 20. I guess just to make sure the virus is dormant. At this point I honestly don’t know what to think of my test was negative. I’ll also be doing western blot at the end of the month 

[Elle27]

5 hours ago, Jenn88 said:

No. I haven’t had an OB  since September 20. I guess just to make sure the virus is dormant. At this point I honestly don’t know what to think of my test was negative. I’ll also be doing western blot at the end of the month 

The PCR test is going to come back negative if you aren’t having an active outbreak.. meaning you don’t have any lesions or blisters. I don’t know why they would redo it if you don’t have any sores present. My thought is that it would make more sense to redo the IGG test. 

[Jenn88]

I just took the igg again on Wednesday