YogaJ12

Sounds like neuropathy. I've had severe neuropathy for over 7 months now. I experience shooting pains, burning, pins and needles. Temperature changes and crawling sensations. It has spread to my arms and legs now: I'm currently taking gabapentin but I still have bad days. I'm experimenting not taking valtrex as well to see if I'm better on or off it supressively. @janedoe

This sounds very promising! I can't wait to hear more about this vaccine! Valtrex has done nothing for me and I hate the dependency on big pharma's "manageable" drug. There is far more to this virus then a blister 2-3 times a year. As a sufferer of neuropathy i am patiently waiting for something new and improved. @2legit2quit

@2legit2quit no autoimmune disease that I know of. My nerves are just really sensitive to this virus. I hope one of the doctors I'm seeing will prescribe something to give me some relief

I'm not happy. It's been a year and a half and I'm in constant pain with electric shocks, pins and needles, and burning sensations almost everyday. I feel like I've regressed. Instead of outbreaks all the time it's nerve pain almost everyday. I've made an appointment with a neurologist March 2nd and I have an appointment with my gynogoloist feb 22nd. I hope one of them can write me a prescription for this pain. I would have never imagined herpes included feeling like a burned victim. I'm tired and I'm exhausted. I believe I am having a outbreak right now, the sensations are so strong. My outbreaks yet so small. I don't understand. That is all.

Thanks! Did the Neurontin work? @2legit2quit

Plus I am pretty much paranoid on the thought of having unprotected sex. I haven't had unprotected sex in a year.

It's been a year a 3 months since I've been diagnosed with herpes. I seem to get outbreaks every 3 months now but that's not the issue. I have severe nerve pain/shocks/burning on the left side sometimes ride side pretty much on a daily basis. This has progressed after my year anniversary. I don't really want to take more meds as I already do suppressive therapy. I've been doing a little research, has anyone tried St. John's wort oil? Any other recommendations are welcomed. It's just a big annoyance, wearing jeans are the worst lol.

Thanks, I am currently on suppressive therapy. I double up if I'm having a bad day of tingling and sensations @whitedaisies

So I made my year anniversary having herpes in September. I haven't really had a outbreak since August. But since September I've had like non stop pins and needles and random tingles in my legs and sometimes arms! What is going on? Is it my immune system just taking over? Again I haven't gotten any outbreaks but my random sensations are almost everyday.

I just wanted to share what a guy who "likes me" said to me last night. 5 months ago I would of cried, last night I laughed and said to myself what a ignorant fuck and deleted him out my text messages. What are the most ignorant things that were said to you when you disclosed about your herpes status? If one thing I've acquired more of with this virus is strength and the ability to know my worth. Don't ever let someone try to make you feel less than or that your lucky for them to accept you. Tell them to kiss your ass and that you're the prize not them. They aren't worth your time. So this is what he said "You better than every n*gga you dealt with I guarantee you this I been around the block a few times and you're wifey material just its just been hard for me to overcome your std issue but I'm hoping tha I continue to mature about your situation cause I really like you " then he asked me for nudes to better accept me. Wtf ?!

Yes Patience and Acceptance is key. I'm still working on patience but I have accepted that I have to live with it. @libra @2legit2quit

Yes @2legit2quit the is the longest I ever had prodromes since my initial outbreak. I just want it to go away. This has been a stressful work week though and I am drained. I guess it has a way of telling us to slow the hell down. Going to rest this weekend and hope it goes away.

I have had constant prodromes since Monday, tingling and shocks from my butt to my toes, with no outbreak but with swollen lymph nodes. It's a pain in the ass. I've just reached my one year mark.

I get the tingly sensations and itchyness too without a visible outbreak. I am currently on day 3 of prodromes and no outbreak. It's a pain in the ass and Im a year in.

Sounds like you may be ovulating I get itchy and tingly when I'm ovulating too. Your hormones fluctuate and may activate the virus without a outbreak

Usually my left leg and butt

Are you about to get your period? I get tingly and achy around the time of the month and may or may not get a outbreak. I'm currently tingly and a bit itchy and my period should be here within a few days.

Trust me when I say, YOU WILL BE STRONGER AND WISER. YOU are still the same person but you will have way more compassion and understanding of people and life. It will get better trust me.

Hello, take a deep breath... I have been there. How long have you had the virus? Are you under any type of stress or hormonal fluctuations? I am on suppressive therapy and have had back to back outbreaks before. I have just reached my 1 year anniversary and can say I am finally coming to terms with it. All I can say is it will get easier as time passes but worrying about it every minute of your life is a waste of time. Just try to ride it out, do things that make you feel better ,get to know you, let go of things that aren't currently serving your life. Herpes is an unwanted visitor, BUT it wakes you up to other things as well. Like shit you need to let go that are doing you harm and what truly makes you happy.

You just have to be patient.. The first year is unpredictable really. I've just reached my year this month and waiting to see if I will have an outbreak for the month of september right before my period, which is usually when mine comes. I have had outbreaks come every other month and then have 2-3 outbreaks in one month. Be patient my friend and don't be hard on yourself, easier said than done I know. I am just now coming to terms with the virus and realizing its not a life ruiner. I have herpes, but herpes doesn't have me.

No I live in NC. I was there for my sisters Birthday. I was however born by Cocoa FL @2legit2quit

Yea its weird, it gets itchy for a few days when I am ovulating then goes away, then I may or may not have an outbreak before or after my period. I guess its my hormones @anna01 @jl13

I get a weird achy feeling down there when I am about to have an outbreak and sometimes like a milky discharge.

As for the stinging , I use coconut oil and tea tree oil it numbs it for me and it dries the blisters out faster.

I still get outbreaks while I am on anti-virals usually before, during and right after my period. That recently happened to me while on vacation. I had one bump before my period, and then I walked around disneyworld for hours and got clusters of bumps in a new area. My body hates the heat and sun. They usually aren't too bad but I have had a lot more recently than I started out when I was diagnosed. I know mine has to do with keep my anxiety,worrying and stress levels low. When I get mad I literally can feel myself heating up in my body and then it will activate the virus. My back will burn and I can feel it moving down my butt and legs. I am trying to remove people and things in my life that stress me out.