A partial diagnosis

[whitedaisies]

Well I don't know who is following my diagnosis saga but I thought I would post just in case anyone was wondering why my symptoms were all over the map.....

 

Was at my infectious disease specialist and he diagnosed me with post viral syndrome we are thinkin from my initial hsv1 infection.

 

I still don't know what all these bumps are although I am getting its either eczema or folliculiris that appear pretty much everywhere except my vagina. He referred me to a walk in dermatologist to get them swabbed within 48 hours when new ones appear. This is absolutely unheard of in Canada it usually takes 2 to 3 months to see a specialist when it is not life threatening. So hopefully I will get these things swabbed or biopsied so I know.

 

I also asked to be referred to a vulvodynia specialist. And he is doing that for me.

 

Still don't know where I have hsv1 as I don't have classic lesions anywhere. I think I have it both places which caused post viral syndrome and perhaps vulvodynia.

 

Either way this virus has physically and emotionally affected me pretty terribly. 10 months later I finally get a partial diagnosis.

 

I appreciate everyone on this forum who has lent support and been there with advice and kindness.

 

This is still going to be a terribly long journey for me. I have created a great support system and doing what I need to heal.

 

Hugs to you all

[whitedaisies]

Oh and I also had mono this year I found out through blood test. It's been a herpes party in my body this year!

[WCSDancer2010]

Glad you are finally getting some answers. I wonder if you got post viral syndrome because you got HSV1 AND Mono .... maybe too much for the system at once?

 

It makes sense to have a walk in for the swabs - you HAVE to be able to get it within 48 hrs ... so I'm glad that they make that available :)

 

(((HUGS))) friend ... seems that you are moving in the right direction :)

[Helzbelz88]

Good to hear there is some progress.

 

Xx

[whitedaisies]

Got post viral before the mono and it continued after but with more fatigue

 

It's just hard with pain everywhere it's hard to tell when I am having outbreak or pridone bc no typical lesions. And if these bumps are herpetic I am doomed bc they come often which means I am constantly contagious.

 

Still depressed as you can tell by this post

 

Xo

[whitedaisies]

Thanks dancer and helsbelz for te hugs and kisses. I am needing lots and yours help!!!!

 

Xoxoxoxo

[WCSDancer2010]

Just found this ... includes some info on something that may help the pain:

 

http://www.herpesite.org/post-herpetic-neuralgia-from-genital-herpes/

 

"Another treatment that has been shown to be very effective in many cases of neuralgic pain are topical creams containing Capsaicin. Capsaicin is derived from chile peppers, and works by inhibiting accumulation of “substance P,” which sends pain signals from the nerves to the brain. Studies have been done with shingles PHN that have shown Capsaicin’s effectiveness. HerpeSite correspondents have found this to be a very effective treatment. One brand that was designed originally and specifically for shingles PHN is “Zostrix” (named after Varicella Zoster Virus, the herpesvirus that causes chicken pox and shingles!)."

 

[willow]

Well about time! Im happy some one is finally trying to help you figure out what has been happening.

good for you for staying strong, and continuing to look for answers! And i know youve had weak moments, but youve made it this far.... You're going to be super woman by the end of all this!

Big hugs to you chickie!! <----(^-^)---->

(That is my attempt at an internet hug) haha

[whitedaisies]

Thanks for the hug willow. Thx for being there.