Herpes and nerve pain

[Danaaaaaasaur]

It came on as soon as my first outbreak from HSV2 started to clear up :( I've never had shingles x

[Getbetter111]

You got a doc to see that it is possible from HSV? I can see my skin flare up in the same spot of my only OB from hsv1? It is constant feeling that I feel at this point is never going away.does anyone know if this ever goes away in the shingles or herpes cases.i can deal with a sore but this constant feeling is going to kill me mental and physical.

[Danaaaaaasaur]

@getbetter111 @jessikarabbit89 Yup mine is 100% from Herpes. If your doctor doesn't believe it then you really need to either find a doctor who does or visit a pain specialist. Also suppressive therapy has helped me stacked because I was also having back to back fortnightly outbreaks...my body has just copped it from the virus big time unfortunately :(

[Danaaaaaasaur]

@getbetter111 @jessikarabbit89 Also I've noticed for me caffeinated drinks like Coca Cola and red bull make the nerve pain worse so try and avoid them if you drink them :)

[Getbetter111]

Does your doc ever think it will go away? That's where I am depression from the phn and the physical part sucks very bad also? I sure hope this is not a life long thing!

[JessikaRabbit89]

I rarely drink carbonated drinks. I used to drink wine on a daily basis even with herpes and had no issues for a good while. So im guessing it has to be the chocolate since it seems to only happen after eating it. Chocolate is my weakness lol. I told my dr about PHN and he says it can very well be a result of HSV2. He said it can last anywhere from a few hours to days to months to life. Just depends on the person and how the nerves are affected. I pray to God its a temporary trigger.

[whitedaisies]

You know what...top h experts say this is impossible and hasn't been medically proven. Moreover I have seen countless doctors and they all deny it. From my experience and lately hearing others on the forum, it is obviously not true.

 

I was told I was delusional to think it was caused by h. It led to part of my depression bc I couldn't convince anyone I was in pain like that.

 

 

[Getbetter111]

Yea that seems to be the problem? I would like to get a doc that would treat it the same as shingles PHN. I'm about to be non stop working mine seems to flare up after all day on my feet so I'm freaking out at this point.i can feel it all day just gets worse by night.i can see my skin turn red right in front of my eyes in the same spot as OB the same way I have read that shingles PHN symptoms happen with the burning. I'm just feeling like the rest of you praying I wake up one day very soon and don't feel this anymore.i would not wish this on anyone.

[whitedaisies]

Ask for nerve pain meds and see if they help

[Danaaaaaasaur]

I'm in Australia so all the doctors I've seen were like well if shingles can cause PNH then I don't see why Herpes is any different since they're basically cousin viruses haha @getbetter11 have you actually been to either a pain specialist or an infectious disease specialist? I've seen you posting constantly about this but it isn't going to get better by itself. Taking the two medications + suppressive Valtrex is the only thing that's helped me so far so you're going to have to go and see someone about it. Take print outs about PNH with you. I hope it isn't the chocolate@jessikarabbit89 with Easter coming up ! :)

[Danaaaaaasaur]

sorry forgot to tag you @whitedaisies :) Are you from the U.S? It's sounds like it's harder to get a straight answer over there sometimes!

[whitedaisies]

Canada

[Bslydell]

What kind of nerve pain are you all talking about? Where do you feel it and how painful is it?

[Getbetter111]

I get mine in same location as my only Ob. It seems to get worse by night I have the burning skin sensitive to the touch anything I wear most of the time it's very annoying pain others it's it unbearable. The skin gets red and inflamed it all I can feel from the time I wake up till I go to bed this is right on my penis head. If it were any other place I could just deal with it but this is killing me. PHN from HSV it's real and I hope it goes away

[Getbetter111]

O yea with a super sore lower back for 2 months? Also with urethra pain. I have been to specialist and urologist none seem to care and I didn't really push the phn at the time they all saying it will go away?

[whitedaisies]

It will go away in time if it is nerve pain. Treat the nerve pain with Tylenol or Advil or aleve if it helps otherwise ask for nerve pain meds.

[Danaaaaaasaur]

I'm going to see a physio today so hopefully it will help :)